The Rising Leader (RL) will play a key role in increasing awareness and understanding of Tourette Syndrome in their community. RLs are expected to practice what is learned in the training, identify presentation and volunteer opportunities in the community, and spread awareness to interested groups in partnership with the Tourette Association of America and, when available, their local Tourette Association Chapter/ Support Group. In addition, the RL is expected to be a mentor to YAs and an ambassador for the Tourette Association. The Youth Ambassador RL Training Program is designed to give the RL skills that are needed to complete the minimum yearly expectations. Rising Leaders are also asked to volunteer at least 5 hours a month by meeting the following expectations. These expectations include but are not limited to the following:
- Become an active TS advocate and learn about the issues impacting the Tourette community.
- Prepare short statements (written and verbal) to explain TS and its impact on your (or a diagnosed individual’s) life.
- Be active on social media regarding TS and be interviewed by your local media.
- Meet, call, or write to federal and local elected officials.
- Attend functions to present short presentations about TS and network with community members.
- Participate in Public Policy Action Alerts and recruit other local activists to support grassroots advocacy efforts.
- Participate in Tourette Syndrome awareness month (May 15-June 15).
- Mentor Youth Ambassadors and youth with TS.
The role varies throughout the year, and is often linked directly to major annual events. For example, a Rising Leader might work with a local university to table at major events during Tourette Syndrome Awareness Month (May 15-June 15) of each year.