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Tourette Association Youth Ambassador Training

Congratulations on your acceptance into the Youth Ambassador Program! Please review the information below before submitting the Training Response and Media Release form at the bottom of the page. We look forward to having you join us! Any questions, please contact Natalie Joseph-Pauline (natalie.pauline@tourette.org).

Important Dates and Information

  • Friday, January 29, 2021: Youth Ambassador Response form due
  • Wednesday, February 10, 2021: National Advocacy Day Webinar at 8:00pm EST. Click here to register.
  • Monday, February 22, 2021: Pre-training Modules for Youth Ambassador and Adult Team Member due.

Youth Ambassador Training

Day 1 – Friday, February 26

6:00 PM – 8:00 PM EST

Welcome and Meet and Greet

Day 2 – Saturday, February 27

11:00 – 5:30 PM EST

Youth Ambassador Training

Day 3 – Tuesday, March 2  

6:30 – 8:00 PM EST

Advocacy Day Kickoff and Preparation

Day 4 – Wednesday, March 3

Time TBA

Advocacy Day

National Advocacy Day

Wednesday, March 3—National Advocacy Day

Proper business attire must be worn for National Advocacy Day.  Since the event is virtual, please wear and shirt and tie or a blouse/dress. Blazers are fine but are optional in a virtual environment.  Please wear teal if you have some.). TAA will provide one teal tie and/or scarf for the YA and Adult Team Member.

9:30– 11:45am: (Session 1) Teams will break on their own for individual meetings with House Representative and Senators.

12:00pm– 1:00pm: Virtual Children’s Briefing on Tourette Syndrome Luncheon

1:00pm- 5:30 pm: (Session 2) Teams will break on their own for individual meetings with House Representative and Senators.

All YA teams are required to attend the mandatory National Webinar training on Wednesday, February 10th at 8pm EST. Click here to register. During this webinar, Diana Felner, TAA’s VP of Public Policy, will provide guidance on how to hold your meetings.

TAA National Advocacy Day advances the legislative priorities of the Tourette community through in-person meetings with Members of Congress and their staff.  Senators and Representatives and their staff represent their state or district and manage thousands of issues and priorities.  With all the pressing issues and current events they face, it can be easy for other issues to get lost in all the noise.  National Advocacy Day is the opportunity to let YOUR Senators and Representative know what it like to live with Tourette Syndrome or Tic Disorders and how they can help you, their constituent, and the other 1/100 school aged children in their state or district who live with Tourette Syndrome or another Tic Disorder.  Not only are you self-advocating, but you are also advocating on behalf of the approximately one million people in the United State with TS or another TD.

TAA’s goal is to educate and inform Members of Congress on how TS impacts their constituents and to garner support for TAA’s Tourette-specific legislative issues:

Continued funding for The CDC’s Public Health Education and Research Program on Tourette Syndrome

  • Increasing membership in the Congressional Tourette Syndrome Caucus
  • Continued funding for medical research at NIH
  • Ensuring access to care and treatment
  • Continuing increased access and coverage for treatment by telemedicine

Youth Ambassador Teams will spend Wednesday, March 3 meeting with their House Representative and two Senators and potentially meetings with other Representatives in their state.  Appointments will be made by TAA’s Public Policy Department.  DO NOT MAKE YOUR OWN APPOINTMENTS.

If there are other delegates attending from your state, we will email all of you in order to coordinate activities as a delegation. If you do not wish to share your email address with the other delegates from your state, please let Natalie Joseph-Pauline know.

The YA Training is concluded at the end of the day Wednesday after your Hill appointments.

Additional family members are invited to join your team for National Advocacy Day. The cost is $75/pp and the webinar, Advocacy Day Kickoff and National Advocacy Day.  To register for National Advocacy Day by February 14, please visit www.tourette.org/advocacy-day.

Pre-training Modules

In order to prepare for the Youth Ambassador Training, we are asking all Youth Ambassador Teams (YA and adult team members) to complete two mandatory training modules; one for newly accepted Youth Ambassadors and one for their adult team member. Both modules can be found by clicking here: http://tourette.org/resources/pre-training-modules/. Password: module. Please complete these training modules by February 24.

  • Adult team members
    • Complete the Introduction to Tourette Syndrome module. The module will take about 45 minutes to complete. By the end of the module you will be able to understand the basic science of Tourette Syndrome, describe common treatment options and management strategies, describe common co-occurring conditions and differentiate between behaviors and symptoms. You are required to complete this module by February 24.
    • Please complete the following steps prior to attending the in-person training:
      1. Take the Introduction to Tourette Syndrome module.
      2. Download and fill out the certificate of completion and email it to ya@tourette.org as proof of completion.
  • Youth Ambassadors
    • Complete the Youth Ambassador Pre-Training module. This will take about 45 minutes to complete. By the end of the module you will have received an introduction to the Youth Ambassador Program and the Tourette Association, you will be able to understand the basic science of Tourette Syndrome and know how to talk about your experience with Tourette Syndrome. You are required to complete this module by February 24.
    • Please complete the following steps prior to attending the in-person training:
      1. Take the pre-training module.
      2. Download and fill out the Story Development Guide. Remember to bring your completed guide to the in-person training.
      3. Complete the post-test survey.
      4. Download the certificate of completion and email to ya@tourette.org.

In order to prepare for the Youth Ambassador Training, we are asking all Youth Ambassador Teams (YA and adult team members) to complete two mandatory training modules; one for newly accepted Youth Ambassadors and one for their adult team member. Both modules can be found by clicking here: http://tourette.org/resources/pre-training-modules/Password: modulePlease complete these training modules by February 22.

  • Adult team members
    • Complete the Introduction to Tourette Syndrome module. The module will take about 45 minutes to complete. By the end of the module you will be able to understand the basic science of Tourette Syndrome, describe common treatment options and management strategies, describe common co-occurring conditions and differentiate between behaviors and symptoms. You are required to complete this module by February 22.
    • Please complete the following steps prior to attending the in-person training:
      1. Take the Introduction to Tourette Syndrome module.
      2. Download and fill out the certificate of completion and email it to ya@tourette.org as proof of completion.
  • Youth Ambassadors
    • Complete the Youth Ambassador Pre-Training module. This will take about 45 minutes to complete. By the end of the module you will have received an introduction to the Youth Ambassador Program and the Tourette Association, you will be able to understand the basic science of Tourette Syndrome and know how to talk about your experience with Tourette Syndrome. You are required to complete this module by February 22.
    • Please complete the following steps prior to attending the in-person training:
      1. Take the pre-training module.
      2. Download and fill out the Story Development Guide. Remember to bring your completed guide to the in-person training.
      3. Complete the post-test survey.
      4. Download the certificate of completion and email to ya@tourette.org.

Again, welcome and congratulations! We look forward to seeing you on February 26!