Amanda's message for April's TouretteConnect asks others to pledge against using Tourette as an insult. Also, learn about upcoming events, new webinars and community updates as Tourette Awareness Month approaches.
"I remember the first time I noticed my tics like it was yesterday. I remember being a little scared—having this weird urge to contract my stomach muscles. I remember thinking if I just did it, it would go away and I’d be fine... but that was not the case." - Britney
Read Britney Wolf's story as featured in the Tourette Association Annual Report.
Of all the words in the English language, none come close to describing the feeling that took root in my heart the day I heard those words fall from my child’s lips. Here he was, only 7-years-old and already exhausted by his existence, overwhelmed by a body beyond his control and destroyed by the certainty that he was less than.
In celebration of Tourette Awareness Month, the Tourette Association will be creating a sea of teal at the TODAY Show Plaza at Rockefeller Center on Wednesday, May 15 at 6am to raise awareness, acceptance and understanding for Tourette Syndrome.
Josh Ertter is living with Tourette Syndrome (TS), and often has to take the extra step to inform those around him that he may make involuntary movements and noises. That’s what he did last month before working out at his local Planet Fitness. He was still told that he was unwelcome. Later, Planet Fitness apologized and met with Josh and Amanda Talty, TAA President and CEO.
The Tourette Association of America (TAA) hosted its Annual Research and Medical Meeting of our Scientific Advisory Board, Medical Advisory Board and Centers of Excellence from April 9 - 10 in New York City. The meeting covered the latest news on research and medical practices for Tourette Syndrome and brought leading experts together to share their knowledge.
My tics are like that friend who crashes on your couch. He eats all your food, he breaks your favorite guitar and he embarrasses you in front of every girl you meet. You wake up 11 years later, and he’s still there. – Trevor Smith
Eighteen-year-old Trevor Smith is ruled by thousands of tics, constant movements that batter his body and disrupt his day.
"The first time I saw my twelve-year-old son blinking unnaturally, I thought he must have gotten an eyelash or a piece of dust stuck in his eye. Every few seconds, he blinked his right eye — more like an extended wink, which he held down tightly. But even after washing his eye and examining it thoroughly, there was no evidence of any foreign body trapped inside."