Improving Research. Improving Lives.

When you invest in research, there is a clear and direct impact on the lives of individuals with TS. Please consider making a gift today that will bring hope, help, and acceptance to the hundreds of thousands of individuals who live with Tourette Syndrome and Tic Disorders across the nation.
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15 Days of School

15 days of school. 4 telephone meetings. Daily behavior report cards and multiple emails. He’s six years old. He hates himself because he “can’t be good”. My fun loving, intelligent, intuitive son has had maybe three full “good” days of school. I believe there are certain parents who have pulled away from us because he is a “bad” kid and they do not want their children influenced. We have had BIP’s, IEP’s, a 1:1 and yet still school sees a different version of the child I see. I’ve been asked questions like, “Has anyone said he has ADHD or mentioned ODD to you?” The answer is no. The answer is I wish I had an answer.
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TouretteConnect – September

The month of September is National Suicide Prevention Awareness Month. I am grateful for the continued public awareness and open discussions about this very serious topic. In a recent Impact Survey led by the TAA, an alarming 51% of adults and 32% of parents of children with TS reported to have considered suicide or participated in self-harming behaviors. In light of this, there are a number of helpful organizations (AFSP, NIMH, NAMI) and resources to support you and your loved ones, including Chapters and Support Groups across the country. Please know that if you need help, there is always someone to call. A Support Group Leader from the TAA Florida Chapter shared a personal story about how suicidal thoughts impacted her family that really hit home for me.
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OCD in Tourette Syndrome – A Primer for Parents and Families

Join the TAA for a FREE webinar where Dr. Erica Greenberg will discuss the basics of obsessive-compulsive disorder, including when and how it typically presents and the current treatments options. She will focus on “early-onset” OCD - OCD that arises in late childhood and/or early adolescence and will discuss in detail “Tourettic OCD” – the type of OCD more frequently seen in children/adolescents with tic disorders. Dr. Greenberg will also discuss how to begin to separate OCD-compulsions from complex tics, and why that differentiation may be informative from a treatment perspective.
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Everybody is Somebody in New Mexico

The Tourette Association of America (TAA) Tourette Syndrome Health and Education Program (THEP) delivers presentations and educations across the nation to the people in the Tourette Syndrome and Tic Disorder community, the general public, physicians, allied professionals, and school personnel. After an intense and unfortunate bullying situation occurred, Albuquerque’s Public Schools sought out an education opportunity to enlighten students and administrators. Representatives from TAA traveled to New Mexico on September 10 and 11 to deliver a powerful educational experience about Tourette Syndrome and Tic Disorders to nearly 1,000 people.
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Misconceptions about Comprehensive Behavioral Intervention for Tics

Common Misconceptions About CBIT There has been a lot of conversation about behavioral therapies for Tourette Syndrome such as Comprehensive Behavioral Intervention for Tics, or CBIT. As psychologists who have witnessed many of our patients, both children and adults, benefit so greatly from behavioral therapy, we’re excited to hear such a vigorous conversation about this topic. LET’S START WITH THE BASICS, WHAT IS CBIT? CBIT is a 10-week behavior therapy program in which a person works with a trained provider to develop individualized skills they can use to effectively manage their tics. We know from multiple, large-scale, scientifically sound studies that CBIT is effective for teaching tic management skills, which in turn result in a decrease in tics and tic-related challenges for many (but not all) individuals. What we also know to be true about CBIT is, when delivered properly, it does not cause harmful side effects, such as those that can occur with various medication treatment options. Recently, the American Academy of Neurology recommended CBIT as the first line of treatment for people with TS, which is a tremendous step toward making sure that all TS patients will have the same experience no matter where they are treated. CBIT
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Ivette’s Back to College Story

My name is Ivette De Aguiar and I am a Rising Leader from Miami, FL diagnosed with Tourette Syndrome (TS). Anxiety is a common co-occurring condition with TS, so these are some tips that have helped me deal with anxiety.
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Free Webinar: Workplace Accommodations and Disability Rights

The first webinar, as part of a six-part series designed for adults with Tourette Syndrome, will be focused on understanding your rights in the workplace and will review questions about disclosure and accommodations at every step of the process— from the application process and interview issues that may arise on the job.
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August TouretteConnect

The August TouretteConnect features an upcoming webinar on resilience, what you can do to reach out to your senators, and resources for the Back to School season.
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CDC Tourette Syndrome Program

Congress has left for August recess, but they landed a budget deal that will allow for deliberations on their spending bills. This includes the $2 million for the CDC Tourette Syndrome Program. To encourage support for this program, the TAA will be providing the State Chapters and Support Groups email drafts that you can send to your local Senator's offices. Get involved, and encourage your friends and family to reach out to their Senators to have them support the CDC Tourette Syndrome Program.
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