July TouretteConnect

The July TouretteConnect features the Facebook Fundraising guide, a review of the recent Orlando Youth Ambassador and Rising Leader training, and an update from Amanda.
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What is Advocacy?

During our recent Youth Ambassador and Rising Leaders training in Orlando, Florida, we discussed the three basic types of advocacy: self, individual or systems advocacy. According to the Merriam-Webster Dictionary, advocacy is defined as “the act or process of supporting a cause or proposal: the act or process of advocating something.” Advocacy is not only lobbying your Members of Congress and Senators, though that is also an important part.
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Life with Tourette…

"People notice and they wonder. 'Are you cold?' they ask politely as I shake in my seat. 'No, I just have Torrette’s,' I tell them."
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Building and Maintaining Positive Partnerships with Your Child’s School

Attending school can be challenging in many ways for children with Tourette Syndrome and tic disorders. Building a positive partnership between home and school begins early and needs to be nurtured throughout the year.
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The Southern California Chapter is Looking for Volunteers

The Southern California Chapter is looking for passionate and motivated individuals to help lead support groups in San Diego County and start a new support group!
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Teal for Tourette Syndrome Awareness

Alexandra Cuttler and Jack Carlin are TAA Youth Ambassadors for the New York – Hudson Valley Chapter, having been trained in 2018 and 2019 respectively. Through their proactive efforts, they started the Project Lights initiative, which was their mission to light up the Governor Mario M. Cuomo Bridge (formerly the Tappen Zee Bridge) teal for the final day of Tourette Syndrome Awareness Month. This was no small task for Jack, Alexandra, and their families. The project began back in March, when the group began mapping out the process they would undertake.
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Amy’s Story

A mother's story of her daughters Tourette Syndrome diagnosis at five years old and how she has grown into an accomplished seventeen year old.
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TS by the Numbers

I'm Katie Danis. Pleased to meet you. I'm an undergraduate student at the University of North Carolina at Chapel Hill. I run a public health and sex ed YouTube channel with two of my best friends. I'm training for an ultramarathon. And at age two, I was diagnosed with Tourette Syndrome. I've had the privilege of sharing my story in essay, Buzzfeed article, and video format. However, I've never attempted to quantify my condition. I've never identified the numerical impact of my TS or the life it affects. Until now.
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June TouretteConnect

Amanda's message for the June TouretteConnect summarizes what we have accomplished during Tourette Awareness Month and what we are working on now.
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Discussing Disclosure July Facebook Live

Join us for a Facebook Live this July during our YA and Rising Leaders training in Orlando, Florida. The speakers include Sarah Reed, Ph.D., and Jake Melton, who will discuss the topic of disclosure in regards to Tourette Syndrome.
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