“The Tourette Association of America (TAA) has been and continues to be a solid foundation for our family when our daughter was first discovered with Tourette 20 years ago. The greatest fear about any medical condition is the inability to learn about it and how to live with it.
Lee Ching was 10 years old when we finally knew why she was making sounds for no apparent reasons. The painful truth is she has tics, both vocal and motor, since she was seven. She is fortunate to have good friends and teachers who understood her disability and are ever supportive.
We are very fortunate to have found TAA and with it, bountiful resources on Tourette and a wonderful opportunity to share and learn from one another through your websites and in particular the newsletter That Darn Tic which my daughter wrote to on a few occasions. It was through TAA that we established a small informal help support group among family members and their special children in Malaysia. We also set up a website Tourette Syndrome Awareness Malaysia with support of TAA but it lasted only a few years.
We were once worried it would be impossible for her to live an ordinary life. However, with support from friends and many kind souls, she is today leading an extraordinary life living her passion as a stage actor. All this started with the strong foundation of support from TAA and is now progressing even more with the fantastic understanding and support of the founders of the Kuala Lumpur Performing Arts Centre, Faridah Merican and Joe Hasham, as well as Malaysia’s perfoming arts community.
Lee Ching has performed in several plays at the Kuala Lumpur Performing Arts Centre where she is employed as Actor-in-residence. Today, she is 27 years old and enjoying herself as an actor. The joy of acting overflows and drowns out her tics. It is a miracle that her tics disappear on stage.
I below please see the article on Lee Ching, from the Tourette Association America in the hope that they will serve to inspire others especially the younger ones that they know they can live extraordinary lives with Tourette and that they will be showered with love and care by kind souls at TAA and the world.
Once again, we thank you for all your help and support. TAA truly inspires hope for a better tomorrow.”
– Robert Ho