Help Contribute to Tourette & Tic Disorders Research and Participate in a Clinical Study

We need your help! The following research studies are actively looking for people affected by Tourette Syndrome (TS) to complete surveys about their experiences or join clinical research studies. Your participation is invaluable in helping researchers learn more about the condition to develop better treatments.

In addition to the studies highlighted below, the TAA keeps an updated list of selected studies for TS that are looking for participants on our website. For a full list of all clinical studies recruiting on TS visit clinicaltrials.gov.

The University of Utah Tic Lab

The University of Utah Tic Lab is interested in your experiences navigating the healthcare system! We’re hoping to gather experiences from a wide variety of families in order to work on improving healthcare for children with tics. To learn more about the study and complete our survey, please follow this link.

For questions, contact Brianna Wellen at brianna.wellen@psych.utah.edu

Do You Have a Connection to Tourette’s Syndrome?

Deep brain stimulation is an emerging therapy for severe Tourette’s. We want to know what you think about it – complete our web survey to help further progress in the treatment of Tourette’s.

Family Accommodation in Children with Chronic Tic Disorders

Researchers at Kent State University are seeking parents of children/adolescents ages 7-17 to complete a survey designed to help us better understand how parents of children with chronic tic disorders interact with their children. This posting has been approved by the Institutional Review Board of Kent State University. If you have a child between the ages of 7 and 17 years and live with them 50% of the time or more please select the following link to participate in this study.

A No-Cost Clinical Trial: Modified CBIT for Children

The Tourette Association of America is proud to support Dr. Erica Greenberg and Massachusetts General Hospital in their efforts to conduct a no-cost clinical trial with children and adolescents (ages 10 to 17 years) who are bothered by their tics and who also are suffering from ADHD. You can contact Erica Greenberg, MD at 617-643-934 andegreenberg@partners.org, or Eliza Davidson, BS: 617-643-4357 and ejdavidson@mgh.harvard.edu for more information.