Category: Resources & Support

Noah Brick’s Bar Mitzvah

Noah recently celebrated his Bar Mitzvah. At the event, he gave a speech called a D’var Torah, which explains the Torah portion he chose to read. His speech focused on having Tourette Syndrome and relating it back to Moses’ last speech to his people. It was a powerful moment for all in attendance and ended with the poem written by his mother, Jennifer, called “The Real Me.” As a special surprise, Jennifer worked with 27 different congregations from Toronto to Florida, NY to LA to also honor Noah and spread Tourette Advocacy and awareness by also reading this poem to their congregations the weekend on his Bar Mitzvah. Here is an excerpt from Noah’s speech: “I can relate to Moses in another way. At the beginning, Moses had a disability, where he would stutter or had a speech impediment every time he talked. You might think someone with this set back wouldn’t make a good leader. And yet, Moses was a great leader. He was able to overcome his disability and not let it stand in his way. He needed to teach God’s words, lessons and messages to the Jewish people. I too have a disability and I am proud
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TouretteConnect – November

To kick-off the season of giving, we hosted the 2019 annual Gala honoring David Begnaud, Lead National Correspondent for CBS This Morning, on November 18. The event raised more than $850,000 and featured empowering messages from David, TAA Youth Ambassadors Mia Mantei and Jordan Falkenstern, NYC Public Advocate Jumaane D. Williams, and an amazing performance by the Michael Wolff Trio. We all know the best deals are on Black Friday and Cyber Monday, but it's Giving Tuesday that's the most rewarding. For this international day of giving, we are calling on you to join the movement and support the TAA by making a donation, hosting a Facebook fundraiser, or by sharing our important messages throughout the day.
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Double Your Impact

It is estimated that 1 MILLION Americans have Tourette Syndrome (TS) or a Tic Disorder. While that number may be staggering, our collective awareness efforts have increased understanding of the disorder, resulting in improved time to diagnosis. In a recent impact study led by the TAA, 71% of caregivers of children with TS reported receiving a diagnosis in less than 2 years, where most adults were diagnosed after 10+ years. HOWEVER, THE NEED FOR PROGRAMS AND SUPPORT RESOURCES CONTINUES TO GROW. Make a year-end gift and it will be doubled, thanks to the Ochsman Foundation.
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Facebook Live: Transitions to Adulthood

Developing from a teenager to a young adult can be a challenging and rewarding process, especially for individuals with Tourette Syndrome. Through self-advocacy as well as recognizing and utilizing their strengths, young adults can feel empowered to take control over their life. Dr. Anthony Rostain and Dr. Marc Schmidt recently discussed the process of transitioning from childhood to adulthood.
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TouretteConnect – October

It's October, and while many of us are making plans to celebrate Halloween we cannot ignore some important causes the month sheds light upon. October is National Bullying Prevention Month, ADHD Awareness Month and OCD Awareness Week. Tourette Syndrome is an extremely layered and complex disorder and remains so vastly misunderstood among the general public. There is no one-size-fits-all approach, and because of this, the TAA partners with like-minded organizations that support our efforts. I encourage you to reflect on your journey with Tourette Syndrome and if you’ve been impacted by any of the above, please send us your personal story to help us join their efforts in elevating awareness for TS and co-occurring conditions.
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Layers of Tourette Syndrome

If there’s one thing Tourette’s knows how to do well, is being unpredictable, and everything changes all the time. For me, tics got relatively worse after my teens, and the (um, literal) pain of it is what shocked me enough to do some digging into “what is up with me”. But, I guess I’m pretty used to ticcing by now. It’s something I’ve done since I was 9, as far as I remember, and it can be annoying, and the absolute worse, but also, just fine. What I never saw coming, though, was how wild the *other* side of Tourette’s would get for me. Because it’s not just tics...
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Online Support Groups for Tourette Syndrome

A series of online support groups both for young adults and parents. These support groups are available for people who may be located in an area without easy access to support.
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15 Days of School

15 days of school. 4 telephone meetings. Daily behavior report cards and multiple emails. He’s six years old. He hates himself because he “can’t be good”. My fun loving, intelligent, intuitive son has had maybe three full “good” days of school. I believe there are certain parents who have pulled away from us because he is a “bad” kid and they do not want their children influenced. We have had BIP’s, IEP’s, a 1:1 and yet still school sees a different version of the child I see. I’ve been asked questions like, “Has anyone said he has ADHD or mentioned ODD to you?” The answer is no. The answer is I wish I had an answer.
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TouretteConnect – September

The month of September is National Suicide Prevention Awareness Month. I am grateful for the continued public awareness and open discussions about this very serious topic. In a recent Impact Survey led by the TAA, an alarming 51% of adults and 32% of parents of children with TS reported to have considered suicide or participated in self-harming behaviors. In light of this, there are a number of helpful organizations (AFSP, NIMH, NAMI) and resources to support you and your loved ones, including Chapters and Support Groups across the country. Please know that if you need help, there is always someone to call. A Support Group Leader from the TAA Florida Chapter shared a personal story about how suicidal thoughts impacted her family that really hit home for me.
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