Category: Resources & Support

OCD in Tourette Syndrome – A Primer for Parents and Families

Join the TAA for a FREE webinar where Dr. Erica Greenberg will discuss the basics of obsessive-compulsive disorder, including when and how it typically presents and the current treatments options. She will focus on “early-onset” OCD - OCD that arises in late childhood and/or early adolescence and will discuss in detail “Tourettic OCD” – the type of OCD more frequently seen in children/adolescents with tic disorders. Dr. Greenberg will also discuss how to begin to separate OCD-compulsions from complex tics, and why that differentiation may be informative from a treatment perspective.
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Everybody is Somebody in New Mexico

The Tourette Association of America (TAA) Tourette Syndrome Health and Education Program (THEP) delivers presentations and educations across the nation to the people in the Tourette Syndrome and Tic Disorder community, the general public, physicians, allied professionals, and school personnel. After an intense and unfortunate bullying situation occurred, Albuquerque’s Public Schools sought out an education opportunity to enlighten students and administrators. Representatives from TAA traveled to New Mexico on September 10 and 11 to deliver a powerful educational experience about Tourette Syndrome and Tic Disorders to nearly 1,000 people.
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Misconceptions about Comprehensive Behavioral Intervention for Tics

Common Misconceptions About CBIT There has been a lot of conversation about behavioral therapies for Tourette Syndrome such as Comprehensive Behavioral Intervention for Tics, or CBIT. As psychologists who have witnessed many of our patients, both children and adults, benefit so greatly from behavioral therapy, we’re excited to hear such a vigorous conversation about this topic. LET’S START WITH THE BASICS, WHAT IS CBIT? CBIT is a 10-week behavior therapy program in which a person works with a trained provider to develop individualized skills they can use to effectively manage their tics. We know from multiple, large-scale, scientifically sound studies that CBIT is effective for teaching tic management skills, which in turn result in a decrease in tics and tic-related challenges for many (but not all) individuals. What we also know to be true about CBIT is, when delivered properly, it does not cause harmful side effects, such as those that can occur with various medication treatment options. Recently, the American Academy of Neurology recommended CBIT as the first line of treatment for people with TS, which is a tremendous step toward making sure that all TS patients will have the same experience no matter where they are treated. CBIT
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Teal for Tourette Syndrome Awareness

Alexandra Cuttler and Jack Carlin are TAA Youth Ambassadors for the New York – Hudson Valley Chapter, having been trained in 2018 and 2019 respectively. Through their proactive efforts, they started the Project Lights initiative, which was their mission to light up the Governor Mario M. Cuomo Bridge (formerly the Tappen Zee Bridge) teal for the final day of Tourette Syndrome Awareness Month. This was no small task for Jack, Alexandra, and their families. The project began back in March, when the group began mapping out the process they would undertake.
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TS by the Numbers

I'm Katie Danis. Pleased to meet you. I'm an undergraduate student at the University of North Carolina at Chapel Hill. I run a public health and sex ed YouTube channel with two of my best friends. I'm training for an ultramarathon. And at age two, I was diagnosed with Tourette Syndrome. I've had the privilege of sharing my story in essay, Buzzfeed article, and video format. However, I've never attempted to quantify my condition. I've never identified the numerical impact of my TS or the life it affects. Until now.
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Diversity Committee

The TAA has recently established a Diversity Committee dedicated to investigating and addressing these disparities. We would like to hear from you! Please submit your thoughts on how we can better and engage and serve the diverse needs of the TS community.
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Bullying Prevention

Join us for an afternoon webinar on Thursday, February 7th given by Julie Hertzog, Director of PACER’s National Bullying Prevention Center and leader in bullying prevention.
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Bullying is Nondiscriminatory in How it Discriminates

Those who bully are not always the stereotypes portrayed in movies and television shows. While many people think bullying is demonstrated by individuals such as Regina George (Mean Girls) or Biff Tannen (Back to the Future), too often they aren’t an obvious living, breathing typecast. The same can be said of the individuals who are the targets of bullying - they are not always the smallest, weakest, ‘unpopular’ children. There are many forms of bullying and it happens largely due to a lack of understanding or knowledge about something that may appear different. The truth is it can happen to anyone, by anyone regardless of the age or setting.
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10 Things Employers Should Know About Their Employees with Tourette:

10 things employers should know about their employees with Tourette: Written by Pat O’Leary, Developer Relations Engineer with Havok and adult living with Tourette Syndrome 1) Tics are not representative of someone’s inner thoughts or desires. The notion that the tics of Tic Disorders like Tourette are related to hidden or suppressed urges has been thoroughly debunked years ago. Tics may seem contextual, but the urge to move or make noise comes at random without any underlying need. 2) Tics are not constant. Some days your employee may appear less symptomatic than other days. That doesn’t mean they aren’t struggling with less visible tics or other invisible symptoms of Tourette. 3) Encourage ‘flow’ states. Many people with Tourette find that mentally engaging activities can help control tics. Keeping their to-do list loaded with appropriately challenging tasks to their skill level can encourage the sort of calm focus that ease the symptoms of Tourette. 4) Minimize distractions. Many kinds of sensory stimuli can interrupt ‘flow’. Unexpected noises, movements, smells, or even simply tapping someone on the shoulder to talk when they’re otherwise engaged can really challenge someone’s ability to manage their symptoms. To that extent, some prefer email or instant messaging
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TAA Spotlight: Lynette LaRocca

TAA Spotlight: Lynette LaRocca. As Accounting Coordinator, Lynette is responsible for accounts payable and receivables for the Association. Read more about Lynette.
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