New York - Greater Rochester and the Finger Lakes

PO Box 124
Fairport, New York 14450


The Tourette Association of America New York – Greater Rochester and the Finger Lakes Chapter is a volunteer led, nonprofit organization supporting the needs of individuals and families affected by Tourette Syndrome and Tic Disorders. We are committed to raising public awareness and fostering social acceptance; advancing scientific understanding, treatment options and care; educating professionals to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders; advocating for public policies and services that promote positive school, work and social environments; Providing help, hope and a supportive community across the nation; and empowering our community to deal with the complexities of this spectrum of disorders.


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Tourette Association New York Centers of Excellence

New York State Consortium
Weill Cornell Medical College
New York, NY
Director: John Walkup, M.D.
Co-Director: Shannon Bennett, Ph.D.
(212) 746 1891

Northwell Health
Manhasset, NY
Director: Cathy Budman, M.D.
Co-Director: Jane Zwilling, Psy.D.
(516) 562-3223

University of Rochester Medical Center
Rochester, NY
Director: Jonathan Mink, M.D., Ph.D.
Co-Director: Heather Adams, Ph.D.
(585) 275-2808

Ichan School of Medicine at Mount Sinai
New York, NY
Director: Barbara Coffey, M.D.
Co-Director: Wayne Goodman, M.D.
(212) 659-1677

Youth Ambassador Program

The TAA Youth Ambassador Program brings together, trains and supports teens to advocate for and talk about Tourette and Tic Disorders in their community, with their elected officials and before their peers at school, sports leagues, scout troops, camps and after-school programs. Learn More

Education In-Service

The TAA conducts in-service presentations around the state with various schools on an as needed basis. It can make a tremendous difference in your child’s academic experience to have the school staff educated about the many facets of TS. Learn More

Parent Support Group

Specifically for parents of children with TS and significant behavioral issues. This group meets on the second Monday of each month at Starbridge, 1650 South Ave, Suite 200. Rochester, NY 14620. (Just south of Elmwood Ave) 585-224-7364 for details.

Location: Starbridge, 1650 South Ave Suite200, Rochester NY14620


Gary Wainwright, Chapter Chair
Vice Chair
Robert Gleason, Treasurer
Amy Vierhile, Secretary
Diana Pratt, Board Member & YA program coordinator
Deborah Weber, Board Member