Tag: Parent/Family Member

It is with great sadness that we share the loss of Ellen Meyers. Ellen’s involvement with the Tourette Association of America spans over 20 years. As a parent of an adult son with Tourette Syndrome and her background in education, Ellen has been an invaluable resource for the Tourette community. Her life’s work was dedicated to education and empowering youth.  Ellen was a dedicated member of the TAA Education Committee and the TAA Education Advisory Board. She was a tireless champion, advocate and role model for the community, touching the lives of so many.
For patients with Tourette Syndrome (TS) and Tic Disorders, it can be difficult to find specialists and many drive hours or travel lengthy distances for physician visits. This is especially true in rural areas.  The ability to conduct medical appointments/evaluations through a computer or electronic platform via telehealth could reduce leave from work and travel costs.
Eliana 3
Dear Tourette Association of America, Thank you so much for sending us so much stuff for this program at my school. We could not have done this program without you. We are very grateful. The program is the first annual Ability Day at my school. What they do is they get people to set up a booth. Then other people will come over to learn about the ability that they are talking about. There is one side where you are just talking to the people, but the other side is where you talk to people and provide a demonstration of what it feels like to have this ability. We are on the side where we talk and have a demonstration.