Youth Ambassador Archives - Tourette Association of America

Two individuals, Ellie Jarvie and Andy Tiefenthaler, sit down in Wisconsin to discuss their various experiences and challenges with living with Tourette Syndrome. Andy Tiefenthaler is a young adult with Tourette Syndrome who shares his experience working at the Tourette Syndrome Camp USA. Ellie Jarvie also shares her experiences as a TAA Wisconsin Chapter Chairmember. Ellie Jarvie speaks about her life as she was a young teen into her thirties and her struggles with going in public with her tics. The two also discuss a dance they both attended that was organized by Andy Tiefenthaler in the 9th grade to raise money and awareness for Tourette Syndrome. "Tourette's is just another art form." -Andy Tiefenthaler

June 27, 2018

A Tourette Conversation: Hayley Gripp and Eric McGowan

https://tourette.org/resource/a-tourette-conversation-hayley-gripp-and-eric-mcgowan/

Two young adults, Hayley Gripp and Eric McGowan, sit down to speak about their lives living with Tourette Syndrome. Hayley Gripp discusses her diagnosis experience, co- occurring conditions, CBIT, and how she manages her symptoms by creating a more positive environment through education. Similarly, Eric McGowan discusses how he addresses his symptoms with others through honesty about his diagnosis. The young adults bond over managing their symptoms through doing what they love, music and cooking. "There are days I hate my diagnosis and days where I think I wouldn't trade it for the world." -Hayley Gripp

June 27, 2018

A Tourette Conversation: Hayley Gripp and Janine Tejada

https://tourette.org/resource/a-tourette-conversation-hayley-gripp-and-janine-tejada/

Hayley Gripp and Janine Tejada sit down in Southern California for a conversation on Tourette Syndrome. Hayley Gripp and Janine Tejada speak on their diagnosis reaction and experiences with Tourette Syndrome. Hayley Gripp, who has educated over 200,000 individuals since becoming a youth ambassador for Tourette Syndrome, shares how a negative experience made her realize the importance of advocacy and awareness. Hayley Gripp explains how the introduction of her and Janine Tejada offered hope while Janine accepted a difficult diagnosis for her son. Janine Tejada is the mother of Jonah, who has Tourette Syndrome, and speaks about the importance of education because of the misunderstandings of Tourette Syndrome. "Tourette is one of the most misunderstood neurological conditions." -Janine Tejada

June 27, 2018

Tourette PSA

https://tourette.org/resource/tourette-psa/

A PSA aired in Times Square, New York City for 24 hours about Tourette Syndrome. Special thanks to TAA Youth Ambassador, Josh, for filming with the TAA and being part of this exciting Tourette Awareness initiative.