Annual Report

Celebrating Real People and Real Progress

Annual Report

Fiscal Year 2018

It has been nothing short of an exceptional year for the Tourette Association of America. Looking back on all that has been accomplished, it’s hard to believe so much change could be possible in so little time. But that’s the beauty of our resilient community, and it’s the gift of your continued support. We cultivate strength from nurturing one another and from listening to each other’s stories. Our efforts empower awareness and growth that can shift public perception and understanding.

A particular highlight was Tourette Syndrome Awareness Month reaching millions of people across the nation. We kicked off our National Awareness Walk at Flushing Meadows Corona Park, where we witnessed an unprecedented number of attendees and once again
surpassed our fundraising goal. Together, we also spearheaded an engaging social media campaign, #TAA45. We worked with so many
incredible people who were willing to share their personal stories—their successes, failures, struggles, and victories. Stories of loneliness and confusion marked by hope and healing. This is what courage sounds like.

Working closely with the TAA leadership team and Board of Directors, we have identified and developed new strategic priorities for the Association. These efforts will continue into the new year, during which we will work to strengthen our operational capacity and infrastructure, increase programmatic impact and mission delivery, invest in our people, and foster even more connections to bolster organizational awareness. Our phenomenal doctors and practitioners continue to amaze and inspire us
with the breadth of their knowledge and deep commitment to the TS community.

If you haven’t had the opportunity to do so, please take advantage of the many resources, information and support that the Tourette Association has to offer. We invite you to become part of the process — whether through a donation or by participating in a special event. Our work to make life better for all people affected by Tourette Syndrome and Tic Disorders is only made possible by the support of the communities we serve.

The Tourette Association of America is a cohesive network of professionals and volunteers working together to make life better for all people affected by Tourette Syndrome and Tic Disorders. As we reflect on this year, we are both humbled to be leading this organization and working hard to make a difference.

Each year the TS community continues to inspire us with their outreach, dedication, and willingness to fight ignorance through education and advocacy, while helping us to raise money so we can continue touching lives. We truly couldn’t do it without you.

Amanda Talty and Randi Zemsky

Donor Recognition

What we do would not be possible without the help of so many generous supporters and members of the community. Your hard work and sacrifice has brought immeasurable light and happiness into the lives of others, and for this we thank you.

$1,000,000 +

Ken & Julie Moelis

$100,000 +

Sidney Dubrow Trust
Darryl & Diane Mallah
Neurocrine Biosciences
The Ochsman Foundation Inc.
Alisa Yaffa & Ken McElvain Family Philanthropic Fund

$50,000 – $99,999

Coulter Enterprises Inc.
Consolidated Press Holdings Limited
Wachtell, Lipton, Rosen & Katz

$25,000 – $49,999

Abide Therapeutics, Inc.
Astoria Bank
Mark and Debbie Attanasio
Bharti Airtel USA Ltd
Joseph Campolo
Canyon Partners LLC
CBS Corporation
Choice Hotels Foundation
Lawrence and Emily Chu Foundation
The Crain Breckenridge Family Fund
Joseph & Kelly DePaulo
Anne & Paul Devore
Eric Diamond
Claire Friedlander Family Foundation
Fogelman Family Trust
Foundation for the Greatest Good
Adrian Goodisman
Thomas & Holly Gores
GUESS Foundation
Hamilton E. James Family Fund
Michael Hooks
Investors Foundation
Johnson & Johnson
The Karsh Family Foundation
Patrick P. Lee Foundation
Sheila Nevins & Sidney Koch
Richard & Cynthia Leaman
MacKenzie Partners, Inc.
Navid & Joanne Mahmoodzadegan
Ronald & Kerry Moelis Family Foundation
Motulsky Family Foundation
Nelson & Claudia Peltz Family Foundation
Omnicom Management, Inc.
The Perelman Family Foundation Inc.
Stephen & Maureen Quill
Jeffrey Raich
Benoit Renon
Resnick Family Foundation, Inc.
Ressler/Gertz Family Foundation
Anton Sahazizian
Silicon Valley Community Foundation
Robin & David Small
Standard Industries
Stonehill Capital Management, LLC
Stuart Subotnick
Sullivan & Cromwell, LLP
The Travelers Companies, Inc.
Eddie Trump
Stuart & Jane Weitzman
Randi Zemsky & Bob Lane

$10,000 – $24,999

Frank J. Antun Foundation
Apollo Global Management LLC
Assured Guaranty Corp.
Barron Development LLC
John & Donna Barto
Bessemer Trust
Art & Dahlia Bilger
Frederick Cook
Dentons US LLP
Jared Dermont
Thomas H. & Jeanne Gnuse
Goldman, Sachs & Co.
Griffon Corporation
Rodgers & Nancy Harper
Mark & Deborah Henkels
Peter Hollenbeck, PhD
Mark & Joyce Jansen
Dan & Tamara Kilmurray
Kissick Family Foundation
Patrick Loftus-Hills
Sheldon & Sandra Mallah
Gaye Gross Moelis Fund
John Momtazee
The Garrett and Mary Moran Family Foundation
Mussafer Family Fund
New York Yankees Foundation
Stephanie & Peter Nolan Foundation
Ressler Family Foundation
Marc J. Rowan
Yadin Rozo
David & Karen Sachs
Sandler O’Neill & Partners, L.P.
Jerry & Linda Saslow
Augusto Sasso
Robert & Rovena Schirling
Zack Schnoll
Skadden, Arps, Slate, Meagher & Flom LLP
Jonathan and Sheryl Sokoloff
Leon & Leesa Wagner
Helene Walisever & Steve Berkson
Warren Woo
Jay Zises

$5,000 – $9,999

Abrams Capital
Dwight & Ingrid Alpern
Bradley & Carol Asness
Louis & Julie Bucksbaum
Brian & Carol Callaci
Milton Carroll
Cigna Foundation
Susan Courey, Ph.D. &
Mark DS. Courey, M.D.
Charlie & Bobbie Denison
Robert Gold
Gulf Coast Community
Gary Jones
Ross Kemper
Brad & Cindy Kurtz
Leslie Fund, Inc.
Vincent & Beth Lima
Dave Mahoney
Barry & Sheryl Mallah
Lloyd & Marnie Mallah
Ted Mathas
John & Teresa McAllister
Milken Family Foundation
Nelson Family Foundation
Stuart & Marcy Newberger
New York Community Bank Foundation
Otsuka Pharmaceutical
Dominick & Ellen Petrosino
Pfizer, Inc.
Peter & Merryl Silberlicht
Jane Smolik
Squar Milner
TEVA Pharmaceuticals
The Cheshire Group
Kenneth & Amy Viellieu
Todd & Britten Wadler
Osamu Watanabe
Winnick Family Foundation, Inc.
XL Catlin

$1,000 – $4,999

Mark & Patricia Adler
Jeffrey Aeder
Erick Alberti
Kendra Aliano
American Funds
James & Kathy Ames
Rhonda Ashinoff
Jennifer Bailey
Joe & Judy Baldwin
Bayside Business Association, Inc.
Dana Beaver
Robert & Gail Bedoukian
Leon Behar
Bel Air Investment Advisors LLC
Robert & Robin Berman
Dilip Bhatt, MD
Frank Joseph Biondi
Robert & Lenore Birnbaum
David Bonderman
Gabriel & Deborah Brener
David Brickler
David Brown
Stephen Brown
Christine Brykowytch
Donna Burick
Robert Calnon
Capital Credit Union
Thane & Jennifer Carlson
Charitable Adult Rides & Services, Inc.
Peter & Kate Ciafone
Kevin Cogan
Andrew Cole
John Colella
Christine Contardi Stone
John Costas
Robert Crowley
CRM Properties Group Ltd
Michel & Susan D. Corp.
Mary Danzig
Maarten de Jong
Lois Deluca
The Derrough Fund
Nathaniel Deutsch
Dime Community Bank
Mike DiYanni
R. Donoghue
William Draper
Patrick Dunleavy
David Dwyer
Anthony Earley
Erika Falk
David Faris
David Fenton
Timothy Fitzsimmons
Robert Flachs
Kerry Fleischman
Seymour Flug
Flushing Bank
Mark & Jill Freeman
Jordan Friedman
G.A. Paving
Construction, Inc.
Todd Gardella
Philip George
Rachel Gibbons
Stuart Goldstein
Richard Goodman
James Gracer
John Grady
MH Graff & Associates, Inc.
Harley Greenfield
Otavio Guazzelli
David Gubbay
Andrew Haber
Susan Haggerty
Kenneth Halaby
Charlotte Hale
William Harnisch
David Heller
John Heyman
William Heyman
Janet Higgins
Ramy Ibrahim
Scott Israel
John James
JK Group Inc.
Michael & Mari Johnson
Charitable Foundation
Robin Josephs
J.T. Plumbing
Rudolf Kats
Mark Keller
Mark Kerman
Keith Ketelsen
Hedi Kieselstein
Marcie Kirkpatrick
Christopher Kirsten
Richard Kleinman
David Koch
The William & Shelia Konar Foundation
Howard Kristol
Alan Kuban
Lawrence Kwon
Adam Labkon
Scott Ladany
Charles Ladenheim
Steven Lebow
Julie Lerner Levine
Howard & Elayne Leshtz
Ellen Levitt
Sheree Linker
Mark Liss
The Margaret & Daniel Loeb
Cathy Louchheim
Jon Lundy
Adam Mallah
Evan Mallah
Barbara Manilow
Marc Realty, LLC
Stephen Massad
J. Stephen McNally
Meritage Homes
Midwest Industrial Metals
Cheryl Mitchell
Stefanie Mittman
Herbert Moelis
Moldman USA
Michael Montuori
Much Shelist. P.C.
Municipal Credit Union
Glenn Muscosky
John Neichter
Marc Newman
Old Oaks Foundation, Inc.
Richard Orders
Alonna Ostad
Penny Owings
Partners Financial Charitable Foundation
Paul Pavao
Martin Perez
Bruce Pielet
Pink Tie 1000 Foundation
Peter Pritchard
Pritzker Traubert
David Pursell
Quantum Foundation Inc.
Terry Reardon
John Reyna
Robert Wood Johnson Foundation
Leslie Rotureau
Alan Rothenberg
Chris Ryan
Nicholas Saggese
Jorio Salgado-Gama
Moshe Sassover
Kent Savagian
Neal Schneider
Katherine Schneider
David Schwartz
Frank Segall
Richard Seligman
Steve Serck
Robert Sharon
Sanam Sheikh
June Shill
Diane Shropshire
Sigma Sigma Sigma-Chi
Howard Silberstein
Joseph Simon
Linda Singer
John Sipp
Jerry Skurnick
Dina Smith
Greg Starkins
Jonathan Stern
David Studenmund
Shih-Ping Sun
Steven Swidler
Stephen Taffet
Ina Taffet
Sidney Taurel
Dianna Tesauro
The Laubacher Company
The Mint Julep Boutique LLC
The New York Community Trust
Karen Tolmich
Lewis Topper
Paul Tosetti
Chris Tosheff
Michael Traino
Trinity Heating and Air
Turner Construction
Blaise Urato
Leon Vahn
Rudy Valner
Van Horn & Friedman, P.C.
Jennifer Vargas
Jennifer Vitiello
Robin Vorel
Vulcan Global Manufacturing Solutions
Andrea Wachter
Craig Wadler
Rick Weinstein
Mindy Weiss
Kara Willis
Rebecca Wisher
Bradley Wiss
Roger Wood
Arthur Zeizel
Richard Zellmer
Don Zietlow
Arthur Zuckerman
Howard & Jane Zwilling