Founded in 1972, the Tourette Association of America (formerly known as the Tourette Syndrome Association) is the only national organization serving the community, and works to raise awareness, advance research, and provide ongoing support to patients and families impacted by Tourette Syndrome and Tic Disorders. To this end, the TAA directs a network of 31 Chapters, 83 support groups and recognizes 18 Centers of Excellence across the country. The TAA is a nonprofit 501(c)(3) organization.
What We Do:
- We raise awareness and FOSTER SOCIAL ACCEPTANCE through education and robust social media campaigns.
- We INVEST IN RESEARCH that will advance scientific understanding, treatment options and care. Over $22 million has been awarded to over 450 research projects across 16 countries.
- We EDUCATE PROFESSIONALS to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders. Over 450,000 health care providers, school personnel, families, individuals and members of the general public have been reached through in-person and online trainings.
- We PROVIDE SUPPORT, HOPE AND HELP through our network across the nation. We host virtual and in-person discovery and learning sessions, support groups for a variety of ages, and maintain a library resources in various different languages to distribute and raise understanding.
- We EMPOWER THE COMMUNITY to advocate for the most pressing issues facing the TS community. Over 1,000 Youth Ambassadors and their team members have been trained to educate their peers, adults, and government officials about TS. In addition, hundreds of congressional meetings are held annually with local representatives to lobby for continued funding and support for TS.
Program development, education and medical programs, government outreach, adherence to the Tourette Association of America’s mission, maximizing efforts, minimizing expenses, TeamTourette events, awareness month, publications, chapter relations, research grants, scientific and medical conferences, are ongoing efforts of the Tourette Association of America’s full-time professional staff.
Volunteers of extraordinary dedication and professional merit serve on the Tourette Association of America’s Board of Directors, Medical Advisory Board (MAB), Scientific Advisory Board (SAB) and Education Advisory Board (EAB).