Just like any age group, adults can struggle with symptoms associated with having Tourette Syndrome or another Tic Disorder. The Tourette Association of America is dedicated to supporting people of all ages with TS and Tic Disorders. We are here to help you through your whole journey!
What is Tourette Syndrome?
Tourette Syndrome (TS) is a neurodevelopmental disorder that becomes evident in early childhood or adolescence.
It is part of the spectrum of Tic Disorders and is characterized by motor and vocal tics. The current estimates are that 1 out of every 50 children has TS or another persistent Tic Disorder.
This toolkit is intended to be a guide for adults who are learning to navigate life with Tourette Syndrome (TS).
Although TS has been traditionally thought of as a childhood disorder, it is important to understand that Tourette affects people of all ages. There are many life transitions to understand and consider as an adult with Tourette Syndrome. In this toolkit you will find information on the following topics: co-occurring disorders, managing treatment, and coordinating lifelong care, workplace accommodations and disability rights, navigating stress, navigating family and personal relationships, and managing anxiety and depression. The TAA has also included a list of resources to assist you.
Toolkit Coming Soon!
Upcoming Workshops and Events
Join the Online Support Group for Adults (26+)
Meeting: Every 1st Thursday of the month from 7:00-8:30 pm EST
Audience: Adults (26 years and older)
Description: This virtual group is designed to bring together adults (26+ years old) with Tourette Syndrome and Tic Disorders to provide support & a sense of community. Participants will be able to share their lived experiences as an adult with TS and Tic Disorders and will receive access to helpful information & resources.
I Have TS ID Card
Much of the stigma that surrounds Tourette Syndrome (TS) and Tic Disorders comes from misunderstanding.
These informational cards help explain the effects of TS and Tic Disorders and are particularly useful in high stress situations, like traveling and crowded places.
Join a Local Chapter or Support Group
Our Chapters and Support Groups provide local support across the nation for adults with Tourette Syndrome and Tic Disorders and the professionals who serve them.
The TAA hosts free webinars addressing a variety of topics relevant to adults with TS from managing your healthcare, navigating all types of relationship, to learning how to enter & thrive in the workplace. Check out TAA’s Event Calendar to register for upcoming webinars.
Recordings of the webinars are housed on the TAA’s YouTube Channel – click the button below to view now!
Become a TAA Volunteer
The Tourette Association of America relies on volunteers across the country to perform a variety of critically important tasks, from organizing local support groups, advocating at community events, to fundraising, promoting awareness by meeting face-to-face with legislators.
Resources for Adults
If you or someone you know are experiencing a mental health crisis, please contact the Suicide Hotline by dialing 988.
If you or someone you know are experiencing homelessness, please call your local 211 service line. To find your local 211 service, visit https://www.211.org/about-us/your-local-211.
If you or someone you know feels that your disability rights have been violated, please contact your state’s Protection Advocacy (P&A) System. To find your state’s Protection Advocacy System’s information, please visit https://www.ndrn.org/about/ndrn-member-agencies/.
If you or someone you know are dealing with law enforcement, please visit https://tourette.org/resources/overview/tools-law-enforcement/ for more resources