Online Support Groups for Parents

In cooperation with the Centers for Disease Control and Prevention, the Tourette Association of America is pleased to offer a series of online support groups. These support groups are available for people who may be located in an under served area without access to support.  Each support group will meet approximately one Tuesday a month throughout the year. Please note there are two series of groups. You may only participate in one of the series.  The support groups will be moderated by Eva Tukuafu, MSW, LCSW.

The only equipment you will need to participate is an internet connection and a working microphone on your computer.  You will be able to see the moderator on her web cam.

Dates and List of Topics for Parents (Group 1):

  • October 16, 2018 – Introduction: The Hardest Job on Earth: Parenting
  • November 21, 2018 – Coping with the Comorbidities: Is it a a Tic or Acting Out? The Discipline Dilemma
  • December 18, 2018 – Focus & Attention: The Stress of Repeating Yourself
  • January 22, 2019 – Impulsivity and Rage
  • February 19, 2019 – School & Learning: Accommodations and Rights
  • March 19, 2019 – School & Learning: Working with Your Education Team
  • April 16, 2019 – Managing Conflict
  • May 21, 2019 – Study and Time Management Skills
  • June 18, 2019 –  TS and Relationships: Sibling Rivalry and a Child with Special Healthcare Needs
  • July 16, 2019 – TS and Relationships: Making Friends and Appreciating Differences
  • August 20, 2019 – Encouraging Independence as a Parent
  • August 27, 2019 – How to Mess Up and Still Keep Going: Parenting Life Lessons

The group runs from 6:00 to 7:30 PM Eastern time.

Dates and List of Topics for Parents (Group 2):

  • October 23, 2018 – Introduction: The Hardest Job on Earth: Parenting
  • November 6, 2018 – Coping with the Comorbidities: Is it a a Tic or Acting Out? The Discipline Dilemma
  • December 4, 2018 – Focus & Attention: The Stress of Repeating Yourself
  • January 8, 2019 – Impulsivity and Rage
  • February 5, 2019 – School & Learning: Accommodations and Rights
  • March 5, 2019 – School & Learning: Working with Your Education Team
  • April 2, 2019 – Managing Conflict
  • May 7, 2019 – Study and Time Management Skills
  • June 4, 2019 –  TS and Relationships: Sibling Rivalry and a Child with Special Healthcare Needs
  • July 2, 2019 – TS and Relationships: Making Friends and Appreciating Differences
  • August 6, 2019 – Encouraging Independence as a Parent
  • August 31, 2019 – How to Mess Up and Still Keep Going: Parenting Life Lessons

The group runs from 6:00 to 7:30 PM Eastern time.

To register for either series 1 or series 2 of the parent or young adult support group please click here to fill out a form. For more information please contact Angela Sullivan, CDC Program Coordinator.

 

All registrants must be signed up by Thursday, October 11, 2018.

 

PLEASE NOTE: Space for these support groups is extremely limited and registration is on a first come, first serve basis.  Due to the limited space, please only register to join if you intend to be fully involved and participate in all of the group sessions. If you participated in the last series of the online support groups, you may register again, but priority will be given to those who have not yet participated.

Eva Tukuafu, MSW, LCSW, is a clinical program manager and social worker in the Department of Neurology at the University of Utah and is a PhD student in the College of Social Work, where her research focuses on neurological social work care. Ms. Tukuafu joined the department in April 2015 in a newly created position designed to integrate behavioral health into clinics to help meet patients’ needs and as a coordinator for the movement disorder patient Centers of Excellence.  She provides clinical care in the Muscular Dystophy, ALS (Lou Gehrig’s), Huntington Disease and Tourette Syndrome clinics and facilitates several of the department’s patient support groups and specializes in teaching Grief & Loss therapies, chronic health coping skills, Cognitive Behavioral therapies and psychosocial functional assessments. She also creates and coordinates the Neurology Social Work Training Program, which she designed to give graduate level social work students more direct clinical practice with neurological conditions.  Ms. Tukuafu is certified in Comprehensive Behavioral Intervention for Tics (CBIT) through the Tourette Association of America. Eva also remains actively involved in Huntington Disease and Tourette Syndrome clinical research and has previous experience working in geriatrics and psychiatry (inpatient) and providing behavioral therapy for children with Autism.