Illinois Chapter

P.O. Box 7271
Prospect Heights, IL 60070
DONATE TO YOUR LOCAL CHAPTER

Details

The Tourette Association of America, Illinois Chapter is a volunteer led, nonprofit organization supporting the needs of individuals and families affected by Tourette Syndrome and Tic Disorders. We are committed to raising public awareness and fostering social acceptance; advancing scientific understanding, treatment options and care; educating professionals to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders; advocating for public policies and services that promote positive school, work and social environments; Providing help, hope and a supportive community across the nation; and empowering our community to deal with the complexities of this spectrum of disorders.

Events

Adults with Tourette

Please register for Adult Webinar Series: Navigating Romantic Relationships on May 4, 2021 7:00 PM EDT at:

https://attendee.gotowebinar.com/register/2991565944047342349

After registering, you will receive a confirmation email containing information about joining the webinar.

2021 Illinois Golf Classic & Ladies Game Day!!

This outstandingly successful event will be held on August 30, 2021 at the Bryn Mawr Country Club in Lincolnwood, with some changes to the lineup.  We are looking forward to seeing all of the participants and supporters of the Illinois Chapter.  For those who cannot make it but wish to continue your support of the Tourette Association, please click here.

Covid-19 UPDATE

Due to the lingering effects of Covid-19 all support groups and gatherings are on hold.  We look forward to seeing our “family” in the near future and will post information as it becomes available.

Services

Support Groups

SUPPORT GROUP – CHICAGO!!!
The Chicago group is currently on hiatus.  Watch for updates.
HEART OF ILLINOIS SUPPORT GROUP – Due to family health issues, this group remains on hiatus.  We will post updated information as it becomes available.

 

Tic2gether – Oswego/Plainfield Support Group is on hiatus until further notice.

We are looking for a new indoor location, any suggestions would be appreciated.  For more information email Nicole at tic2gether@gmail.com

 

 

 

 

 

Youth Ambassador Program

The TAA Youth Ambassador Program brings together, trains, and supports teens to advocate for and talk about Tourette and Tic Disorders in their community, with their elected officials and before their peers at school, sports leagues, scout troops, camps and after-school programs. Learn More

Education In-Service

The TAA conducts in-service presentations around the state with various schools on an as needed basis. It can make a tremendous difference in your child’s academic experience to have the school staff educated about the many facets of TS. Learn More

TS Genetic Study Opportunities

Research Study at University of Wisconsin

Dr. Hanjoo Lee from the Psychology Clinic at the University of Wisconsin-Milwaukee (2441 E Hartford Ave. Milwaukee, WI53211) is recruiting children /adolescents aged between 9 and 17, who experience moderate to severe tic symptoms, for a treatment study.

This study examines whether a computer-based cognitive training program can improve the effects of behavior therapy for Tourette Syndrome/tic disorders. Participants will receive 8 computer-based cognitive training sessions in addition to 8 weekly behavior therapy sessions, with clinical evaluation before, during, and after the treatment.

Interested individuals/families are encouraged to contact Dr. Hanjoo Lee, by email (leehj@uwm.edu ) or call him at 414-229-5858.

**********************************************************************************

Worldwide Research Study Available for Children and Adolescents Living with Tourette’s

Rush University Medical Center in Chicago,  is partnering with  Inclinix, Inc., a Wilmington, NC-based clinical trial enrollment solutions provider specializing in Global patient enrollment for pharmaceutical research studies to recruit children and adolescents diagnosed with Tourette’s for AWARE, a new worldwide clinical research program.

Frequent and severe motor and vocal tics, commonly associated with Tourette’s, can cause impairment in school settings, social activities and in relationships.  Symptoms of Tourette’s usually appear during childhood and worsen progressively, showing the greatest tic severity at 10 years of age. The average onset occurs between the ages of 7 and 10 years and males are affected three to four times more often than females.

About the AWARE clinical research program This study is evaluating an investigational drug being studied as a possible treatment for children and adolescents with Tourette’s Disorder.  Dr. Katie Kompoliti is looking for volunteers to participate in the study at Rush University Medical Center.  If interested, please call 312-563-2900 (Press 4).

You may be able to join the AWARE study if you:

  • Are 7-17 years old and have a doctor’s diagnosis of Tourette’s
  • Are experiencing tic symptoms such as unwanted twitches, movements or sounds that disrupt normal activities or behavior
  • Are without a history of psychotic disorders
  • Are not pregnant, not planning to become pregnant, or not planning to get someone pregnant
  • Have the approval of your parent or guardian

Study-related tests and study drug will be provided to the study participants at no charge.

This study is evaluating an investigational drug that is being studied for approval by the United States Food and Drug Administration (FDA) or the European Medicinal Agency (EMA) or other regulatory agencies in other countries. In the AWARE study, participants will be randomly assigned (like picking a number out of a hat) to receive either active study drug or a placebo, which is similar to a sugar pill and contains no active medicine.  However, study participants who complete a placebo-controlled study may be eligible to enter a follow-up study where all participants will receive the active study drug.

Carefully conducted clinical studies like this one are one of the best ways to find new medicines that could mean more treatment options for children and adolescents with Tourette’s.  The AWARE research study is approved and closely monitored by an Institutional Review Board (IRB) in the US and Independent Ethics Committees (IECs) in other regions of the world.

For more information, please visit  www.joinawarestudy.com, or call 1-877-787-132

About Inclinix

Inclinix a Wilmington, NC-based clinical trial enrollment solutions provider, specializes in recruiting patient populations across a wide variety of therapeutic indications, including pediatric and adolescent trials.  Inclinix is familiar with and sensitive to the challenges associated with recruiting a pediatric population.  Inclinix, Inc. specializes in customized Phase I-IV clinical trial enrollment solutions that deliver productive investigator sites and qualified patients resulting in successfully completed clinical trials for the pharmaceutical, biotech and medical device industry. Clients benefit from ten years of experience in multiple therapeutic areas, as well as leading edge technologies that meet the challenge of clinical development from feasibility through compliance.

For more information on Inclinix please visit: www.inclinix.com.

*****************************************************************************

 Tourette Syndrome Genetic Study at John Hopkins University Needs Participants!

ABOUT THE STUDY

  • This multi-site study will find the genes that are important in the development of Tourette Syndrome
  • Locating genes will give us an understanding of the biology of TS and make individualized treatmentspossible.
  • This research is funded by the NIH through the Tourette Syndrome Association and involves six participating university centers.

HOW CAN I HELP?

Participating in the TS Genetics study will involve

  • A visit to the John Hopkins Hospital in Baltimore OR a home visit by a team member
  • Self-report questionnaires reviewed by a physician
  • A blood draw
  • A 15-minute computer activity

You will be compensated $25 for your participation and all visit expenses will be covered.

WHO IS ELIGIBLE TO PARTICIPATE?

  • Children and adults diagnosed with Tourette Syndrome
  • Participants must be 7 years or older

 This is our chance to help future generations overcome Tourette Syndrome!

 Please call Dr. Marco Grados at (443) 287-2291 or e-mail at mjgrados@jhmi.edu for more information

Leadership

Jennifer Johnson, Chapter Chair
Susan Fischler, Education Coordinator & Support Group Mentor
Rod Sickler, Officer
Nicole Rousseau, Officer
Sue Lester, Staff