Details

The Tourette Association of America Greater New York Chapter is a volunteer led, nonprofit organization supporting the needs of individuals and families affected by Tourette Syndrome and Tic Disorders. We are committed to raising public awareness and fostering social acceptance; advancing scientific understanding, treatment options and care; educating professionals to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders; advocating for public policies and services that promote positive school, work and social environments; Providing help, hope and a supportive community across the nation; and empowering our community to deal with the complexities of this spectrum of disorders.

Events

2016 Tourette Symposium: A Primary Care Provider's First Encounter

Join the Tourette Association of America and the New York State Consortium Center of Excellence for a FREE Tourette workshop for educators and families affected by Tourette and Tic Disorders. This symposium will offer an overview on Tourette and Tic Disorders, and impact of TS and Tic Disorders on student learning and management in school settings, an overview of the resources offered through the NY Centers of Excellence, and managing periods of life-transition, whether it is going to college, entering the work force, and other aspects of living with Tourette or Tic Disorders.

Date: Saturday, November 5th, 2016
Time: 8:30 AM – 1:00 PM EDT
Register: Click Here

2016 Tourette Symposium: Understanding Tourette: From a Family, Student, Educator, and Young Adult Perspective

Understanding Tourette: From A Family, Student, Educator, and Young Adult Perspective
Join the Tourette Association of America and the New York State Consortium Center of Excellence for a FREE Tourette workshop for educators and families affected by Tourette and Tic Disorders. This symposium will offer an overview on Tourette and Tic Disorders, and impact of TS and Tic Disorders on student learning and management in school settings, an overview of the resources offered through the NY Centers of Excellence, and managing periods of life-transition, whether it is going to college, entering the work force, and other aspects of living with Tourette or Tic Disorders.

Date: Saturday, November 5th, 2016
Time: 1:00pm—4:15pm EDT
Register Here: http://ts-symposiumpm.eventbrite.com
Click here to learn more

Services

Support Group Contact Information

Western NY
Contact: Sue Conners at the chapter office – 716-839-4430 or conners@roadrunner.com

Albany area
Contact: Support Group Leader Judy Doepel – 518-384-1765 OR gedjad@verizon.net

Central NY
Contact: Support Group Leader, Becky Lunkenheimer – 315-635-6967 0R twocor520@aol.com

Mid-Hudson Valley / Dutchess & Ulster County
Contact: Dawn Van Kleeck, dvkleeck@aol.com

Central Support Group Meetings

Join us for our Central Support Groups:
10/18, 11/15, 12/20, 1/17, 2/21

Location: Baldwinsville Library

Western NY Support Group Meetings

Join us for our Western New York Support Groups:
10/19, 11/16, 12/21, 1/18, 2/15

Location: Kenmore Library

Tourette Association New York Centers of Excellence

New York State Consortium
Weill Cornell Medical College
New York, NY
Director: John Walkup, M.D.
Co-Director: Shannon Bennett, Ph.D.
(212) 746 1891

Northwell Health
Manhasset, NY
Director: Cathy Budman, M.D.
Co-Director: Jane Zwilling, Psy.D.
(516) 562-3223

University of Rochester Medical Center
Rochester, NY
Director: Jonathan Mink, M.D., Ph.D.
Co-Director: Heather Adams, Ph.D.
(585) 275-2808

Ichan School of Medicine at Mount Sinai
New York, NY
Director: Barbara Coffey, M.D.
Co-Director: Wayne Goodman, M.D.
(212) 659-1677

Youth Ambassador Program

The TAA Youth Ambassador Program brings together, trains and supports teens to advocate for and talk about Tourette and Tic Disorders in their community, with their elected officials and before their peers at school, sports leagues, scout troops, camps and after-school programs. Learn More

Education In-Service

The TAA conducts in-service presentations around the state with various schools on an as needed basis. It can make a tremendous difference in your child’s academic experience to have the school staff educated about the many facets of TS. Learn More

Doctor Referrals (Local)

Buffalo Brain and Spine Center

  • Dr. David Lichter 716-631-3555

University of Rochester Medical Center (Child Neurology)

  • Dr. Jonathan Mink
  • Dr. Erika Augustine
  • Amy Vierhile, NP  – 585-275-2808

University of Rochester Medical Center (Adult Neurology)

  • Dr. Kevin Biglan – (585) 341-7500

Albany Medical Center

  • Dr. Charles Nichter (518) 262-6611

Schenectady, NY

  • Dr. Richard Simmons (Child Neurology) 518-381-9202

Dent Neurologic Institute – Amherst, NY 716-250-2000

  • Dr. Mohammed Qasaymeh (Child Neurology)
  • Dr. Alex Rovner (Child Neurology) 716-404-2604

Psychologists

Tourette Syndrome Counseling Program Buffalo

  • Dr. Nathan Diegelman, PH.D. 716-859-5474

Fayetteville, NY

Dr. Paul Cohen, PH.D. 315-637-9131

 

For full list of Medical and Allied Professionals, click here.

Leadership

Susan Conners, President
John Silverwood, Chapter Chair
Becky Lunkenheimer, Vice Chair
Judy Doepel, 2nd Vice Chair
Mary Barkamian, 3rd Vice Chair
Mary Russell, 4th Vice Chair
Theresa Diegelman, Treasurer
Michelle Phillips, Secretary
Gordan Scherer, Board Member
Chris Grandits, Board Member
Keith Russell, Board Member
Shawn McCormick, Board Member
Dawn Van Kleeck, Mid Hudson ValleyDutchess & Ulster County