Details

The Tourette Association of America Long Island Chapter is a volunteer led, nonprofit organization supporting the needs of individuals and families affected by Tourette Syndrome and Tic Disorders. We are committed to raising public awareness and fostering social acceptance; advancing scientific understanding, treatment options and care; educating professionals to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders; advocating for public policies and services that promote positive school, work and social environments; Providing help, hope and a supportive community across the nation; and empowering our community to deal with the complexities of this spectrum of disorders.

Events

June Support Groups

Friday, June 3 2022

7:30 – 9:00PM

*DeMatteis Center/101 Northern Blvd./Greenvale, NY 11548

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We have three separate support groups  running simultaneously: one for children (siblings, cousins, friends are welcome), one for teens, and one for  parents/adults.

The children and teens really enjoy coming to the Group and we hear they always remind their parents to come every month!

The parents all feel that they receive much needed information and support.

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As usual, siblings of TS kids are invited.

And as always, our teen Buddies will be available to the children.

For the safety of all of our children and to honor the building we use, it is important for all children in the Youth meeting to be picked up as soon as the meeting is over.

~No children should be unsupervised~

Thank you!!

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Saturday, June 11 – FAMILY FUN DAY

Please stay in touch! We are here for you!!!

2022 Family Fun Day back IN PERSON in Massapequa Park!

Join the Tourette Association of America, Long Island Chapter for our Family Fun Day is an event where families will come out, have fun and enjoy the day, while Long Island Tourette Association has an opportunity to raise awareness, acceptance, and sensitivity for the individuals we serve. The funds generated from this event will be used to support vital chapter activities, such as support group meetings, advocacy and social events.

Date: Saturday, June 11, 2022
Time: 1:00 PM – 5:00 PM EDT

McKenna Elementary School

210 Spruce Street

Massapequa Park, NY 11762.

Click here for more information.

Services

Support Groups: Children, Teens, Adults

Support groups meet the first Friday of the month from September through June, except where noted otherwise. All sessions begin at 7:30 p.m

We will have three separate support groups running simultaneously: for children, teens and parents/adult. As usual, siblings of TS kids are invited. The Youth Ambassador (peer education) training program participants will also meet. And as always, our teen Buddies will be available to the children. The DeMatteis Center is located on the north side of Northern Boulevard in Old Brookville, directly opposite the New York Institute of Technology campus. To get there from the Long Island Expressway (495), take Exit 39N (Glen Cove Road). Follow Glen Cove Road north to Northern Boulevard (Rte. 25A). Make a right and proceed east, about one mile to second traffic light. Make a left into the Center’s parking lot. The Center is approximately one mile east of Glen Cove Road and one mile west of Route 107.

Location: The DeMatteis Center in Old Brookville.

New York Centers of Excellence and Medical Centers treating Tourette

Long Island Center for Tourette and Associated Disorders

Director: Cathy Budman, M.D.
Co-Director: Jane Zwilling, Psy. D.
Coordinator: Florentina Lazaroaie
Contact: (516) 365-0587

1615 Northern Blvd., #306, Manhasset NY 11030

https://www.litourettecenter.org/

Weill Cornell Medical College, New York, New York-Center of Excellence

Director: Shannon Bennett, Ph.D.
Co-Director: Dr. Justin Mohatt, Ph.D.
Coordinator: Shannon Gasparro
Contact: Weill Cornell Specialty Care: 646-962-2820; NY Outpatient Department Insurance Related Care: 212-746-3830 (must inform Resource Liaison you are seeking treatment for Tourette through the CofE. To contact Dr. Specht: Resource Liaison NY Presbyterian Hospital Westchester Division Outpatient Psychiatry Department Insurance Related Care: 914-682-6977; Private Care: Dr. Specht: 914-997-4347

NYU School of Medicine/NYU Langone Health, New York, New York- Center of Excellence

Director: Mark Knepley, PhD
Co-Director: Glenn S. Hirsch, MD
Coordinator: Tanya Catarine, BS
Contact: 646-754-4958

Icahn School of Medicine at Mount Sinai, New York, NY- Center of Excellence

Director: Robert Jaffe MD
Co-Director: Ariz Rojas PhD
Coordinator: Sarah Yonan
Contact: (212) 241-2135

Center’s specialization(s):Tics and Tourette’s Disorder, OCD, ADHD, Anxiety.

Patient population: Children, Adolescents, Adults

Website: https://www.mountsinai.org/care/behavioral-health/services/ocd-tics/tourette-coe

Youth Ambassador Program

The TAA Youth Ambassador Program brings together, trains and supports teens to advocate for and talk about Tourette and Tic Disorders in their community, with their elected officials and before their peers at school, sports leagues, scout troops, camps and after-school programs. Learn More

Education In-Service

The TAA conducts in-service presentations around the state with various schools on an as needed basis. It can make a tremendous difference in your child’s academic experience to have the school staff educated about the many facets of TS. Learn More

Leadership

Jane Zwilling, Psy.D., Co-Chair
Kate Callan, Co-Chair
Jen Argenzio, 1st Vice Chair
Florentina Lazaroaie, 2nd Vice Chair
Rachel Gibbons, Esq., Treasurer
Amy Fuhrman, Secretary
Demetria Marino, Secretary
Sana Shad, Secretary
Rachel Brenner-Bliss, Secretary
Susan Caron, Secretary
Julia Vinsky, M.H.A., Liaison
Jen Zwilling Honorary Board Member/Director YAs