Details

The Tourette Association of America Long Island Chapter is a volunteer led, nonprofit organization supporting the needs of individuals and families affected by Tourette Syndrome and Tic Disorders. We are committed to raising public awareness and fostering social acceptance; advancing scientific understanding, treatment options and care; educating professionals to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders; advocating for public policies and services that promote positive school, work and social environments; Providing help, hope and a supportive community across the nation; and empowering our community to deal with the complexities of this spectrum of disorders.

Events

2016 Tourette Symposium: A Primary Care Provider's First Encounter

Join the Tourette Association of America and the New York State Consortium Center of Excellence for a FREE Tourette workshop for educators and families affected by Tourette and Tic Disorders. This symposium will offer an overview on Tourette and Tic Disorders, and impact of TS and Tic Disorders on student learning and management in school settings, an overview of the resources offered through the NY Centers of Excellence, and managing periods of life-transition, whether it is going to college, entering the work force, and other aspects of living with Tourette or Tic Disorders.

Date: Saturday, November 5th, 2016
Time: 8:30 AM – 1:00 PM EDT
Register: Click Here

2016 Tourette Symposium: Understanding Tourette: From a Family, Student, Educator, and Young Adult Perspective

Understanding Tourette: From A Family, Student, Educator, and Young Adult Perspective
Join the Tourette Association of America and the New York State Consortium Center of Excellence for a FREE Tourette workshop for educators and families affected by Tourette and Tic Disorders. This symposium will offer an overview on Tourette and Tic Disorders, and impact of TS and Tic Disorders on student learning and management in school settings, an overview of the resources offered through the NY Centers of Excellence, and managing periods of life-transition, whether it is going to college, entering the work force, and other aspects of living with Tourette or Tic Disorders.

Date: Saturday, November 5th, 2016
Time: 1:00pm—4:15pm EDT
Register Here: http://ts-symposiumpm.eventbrite.com
Click here to learn more

Services

Support Groups: Children, Teens, Adults

Meet the first Friday of the month from September through June, except where noted otherwise. All sessions begin at 7:30 p.m

We will have three separate support groups running simultaneously: for children, teens and parents/adult. As usual, siblings of TS kids are invited. The Youth Ambassador (peer education) training program participants will also meet. And as always, our teen Buddies will be available to the children. The DeMatteis Center is located on the north side of Northern Boulevard in Old Brookville, directly opposite the New York Institute of Technology campus. To get there from the Long Island Expressway (495), take Exit 39N (Glen Cove Road). Follow Glen Cove Road north to Northern Boulevard (Rte. 25A). Make a right and proceed east, about one mile to second traffic light. Make a left into the Center’s parking lot. The Center is approximately one mile east of Glen Cove Road and one mile west of Route 107.

Location: The DeMatteis Center in Old Brookville.

Tourette Association New York Centers of Excellence

New York State Consortium
Weill Cornell Medical College
New York, NY
Director: John Walkup, M.D.
Co-Director: Shannon Bennett, Ph.D.
(212) 746 1891

Northwell Health
Manhasset, NY
Director: Cathy Budman, M.D.
Co-Director: Jane Zwilling, Psy.D.
(516) 562-3223

University of Rochester Medical Center
Rochester, NY
Director: Jonathan Mink, M.D., Ph.D.
Co-Director: Heather Adams, Ph.D.
(585) 275-2808

Ichan School of Medicine at Mount Sinai
New York, NY
Director: Barbara Coffey, M.D.
Co-Director: Wayne Goodman, M.D.
(212) 659-1677

Youth Ambassador Program

The TAA Youth Ambassador Program brings together, trains and supports teens to advocate for and talk about Tourette and Tic Disorders in their community, with their elected officials and before their peers at school, sports leagues, scout troops, camps and after-school programs. Learn More

Education In-Service

The TAA conducts in-service presentations around the state with various schools on an as needed basis. It can make a tremendous difference in your child’s academic experience to have the school staff educated about the many facets of TS. Learn More

Leadership

Jane Zwilling, Psy.D., Co-Chair
Kate Callan, Co-Chair
Jen Argenzio, 1st Vice Chair
Lisa Filippi, Ph. D, 2nd Vice Chair
Florentina Lazaroaie, 3rd Vice Chair
Rachel Gibbons, Esq., Treasurer
Amy Fuhrman Secretary
Demetria Marino Secretary
Shelly Bloch Secretary
Rachel Brenner-Bliss Secretary
Julia Vinsky, M.H.A., Liaison
Jen Zwilling Honorary Board Member/Director YAs