If your child makes movements and/or sounds that they can’t control, it could be Tourette Syndrome (TS) or another Tic Disorder.
They’re not alone – 1 in 50 school-aged children in the US currently live with TS or another Persistent Tic Disorder and that extends into adulthood. While living with these conditions can bring serious challenges, with the proper support, the vast majority of people affected go on to live full and happy lives.
Unfortunately, it’s estimated that only 50% of people living with these conditions get diagnosed. Diagnosis is an extremely important step in accessing the most powerful care and accommodations that can make an incredibly positive difference in the lives of people living with TS or another Tic Disorder. Here are just a few benefits:
Getting a diagnosis can take time as there is often a wait to see specialists, so it’s important to begin you journey today. Read below to learn more about TS and other Tic Disorders and find the answers, treatment and support that you and your family need.
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Tourette Syndrome is a neurodevelopmental disorder that affects children, adolescents and adults. The condition is characterized by sudden, involuntary movements and/or sounds called tics. Tics can range from mild/inconsequential to moderate and severe, and are disabling in some cases. Tourette Syndrome is one type of Tic Disorder and tics are the primary symptoms of a group of childhood-onset neurological conditions known collectively as Tic Disorders.
In collaboration with the Centers for Disease Control and Prevention (CDC), we’ve created a library of comprehensive materials about Tourette Syndrome and Tic Disorders in a variety of languages. Click the guides below to view and download the resources or view all toolkits here.
This toolkit is a starting point for patients and families and provides an overview of tics, TS, and other Tic Disorders. Since TS and Tic Disorders present and impact each person differently, you can use the information in this kit as it pertains to the needs of you or your family member.
Designed for children age 7 to 12, this toolkit empowers them to articulate Tourette Syndrome to peers, friends, and family. It explains what TS is, its potential impact at school, and includes supportive content alongside enjoyable games.
This toolkit is a comprehensive guide for young adults transitioning into adulthood with TS, a condition often missunderstood as a childhood disorder. The toolkit offers support and insights for navigating the unique challenges and opportunities young adults face.
This toolkit is intended as a guide for teens age 13 to 17 who are learning to navigate life with TS. Teens face many life transitions and have much to learn and consider when living with TS. This toolkit serves as a guide and a resource to assist when you face new experiences.
Symptoms of Tourette Syndrome tend to emerge between the ages of 5-7 years and often increase in frequency and severity between the ages of 8-12 years. The first symptoms of Tourette Syndrome (TS) usually are involuntary movements (tics) of the face, arms, limbs or trunk, but can also involve involuntarily vocalizations. These involuntary (outside the patient’s control) tics may also be complex, involving the entire body. Many persons report what are described as premonitory urges — the urge that comes before a tic.
Learn more about the diagnosis criteria of Tourette Syndrome and other Tic Disorders.
Take the next step in getting support for you or your loved one. Access treatment by connecting with a provider near you by using our Find a Provider tool.
Symptoms of Tourette Syndrome (tics) tend to emerge between the ages of 5-7 years and often increase in frequency and severity between the ages of 8-12 years. In addition to the medical and behavioral challenges that come hand-in-hand with TS, children also face challenging social and educational situations, which can be stressful.
While many people experience a reduction in the severity of their tics as they grow older, adults can struggle with symptoms associated with having Tourette Syndrome or another Tic Disorder. The Tourette Association of America is dedicated to support people of all ages with Tourette and Tic Disorders and are here to help you through your whole journey!
For more than 50 years, Tourette Association has led the way in research and therapeutic development for Tourette Syndrome and other Tic Disorders. The TAA has awarded $21 million to over 450 research projects across 16 countries. Every $1 of TAA grant funding has helped investigators obtain approximately $10 in grant funding from the National Institutes of Health (NIH).
Tourette Syndrome or other Persistent Tic Disorders affect one in 50 students. Many school-aged children with TS have a co-occurring condition, like ADHD, anxiety or depression. The tools linked below are designed to assist educators and support staff in recognizing complex symptoms and serve as a guide towards developing effective support plans to allow children with Tourette Syndrome and Tic Disorders to thrive both socially and academically.
People with TS often face discrimination & stigmatization in the workplace. Many adults with TS don’t pursue job interviews or job advancements due to their tics. Many also feel that their tics keep them from fulfilling their fullest potential. By creating a more understanding & accommodating workplace, companies can help individuals with TS thrive and be successful in their careers.
Tics can increase in high stress situations, such as being stopped by law enforcement. It is critical to be aware that an encounter with a law enforcement or emergency responder might cause someone with Tourette Syndrome (TS) to tic and exhibit more symptoms than in a calmer situation. First responders can use the resources linked below to improve outcomes when serving our community.
