Our 45th Anniversary year is coming to an end and the Tourette Association of America has a lot to celebrate! Over the last year we have fostered new discoveries into the genetics behind Tourette Syndrome, we have raised awareness through national media including What Would You Do?, Inside Edition and the Today Show and we have provided support with the delivery of care packages containing comprehensive tool-kits and other information to our chapters around the country. Additionally, we are proud to report that we received the Platinum Seal of Transparency from GuideStar, the world’s largest source of information on nonprofit organizations.
While we celebrate the holidays and new year, we know this time can be difficult for many people impacted by Tourette Syndrome and Tic Disorders. Marge Henning, TAA Education Advisory Board Member, recently discussed and shared some insight into how to manage sensory overload during the holidays on Facebook LIVE.
If you would like to learn more about this and other topics, we encourage you to register for our National Conference. The Newly Diagnosed Seminar on March 1st is perfect for those who have recently learned they are impacted by Tourette Syndrome or a Tic Disorder. March 2nd and March 3rd include a robust schedule of sessions and seminars all geared to educate individuals, families, physicians and practitioners with what they need to know to navigate Tourette Syndrome. We hope you will join us.
The Tourette Association remains steadfast in its commitment to providing hope and help for the Tourette and Tic Disorder community but we cannot do it alone. Give the gift that means the most. Give the gift of progress by supporting the Tourette Association today.
In closing, I would like to thank you all for your support of the organization. We are grateful for your generosity now and throughout the year. On behalf of the Board of Directors and the TAA staff, we wish you a joyous holiday season and a happy 2018.
TAA Goes Platinum
This past year the Tourette Association of America earned the Platinum GuideStar Nonprofit Seal of Transparency, the highest level of recognition offered by GuideStar, the world’s largest source of nonprofit information. by sharing metrics that highlight progress the Tourette Association of America is making toward its mission, we have demonstrated our commitment to transparency and to giving donors and funders meaningful data to evaluate our impact. Visit our GuideStar profile to learn more.
Genetic Research Breakthrough
The Tourette Association of America researchers located definitive genetic centers for Tourette Syndrome and related disorders. The TAA-funded research investigating highly complex genetic risk indicators for Tourette Syndrome and related disorders were published in the prestigious scientific journal Neuron. This major research milestone represents a large-scale collaborative effort involving dozens of clinicians, geneticists and advocacy leaders from around the world. Learn more about this and other research highlights.
Fundraising Events Exceed Expectations!
We are incredibly grateful to the countless number of people who supported our fundraising events this year. The Tourette Association hosts events throughout the year to raise money, support its essential programs, and fulfill its mission to serve the Tourette and Tic Disorder Community. This year we saw growth in participation and funds raised through our Gala honoring Ken Moelis, the Illinois Golf Classic and the National Walk. Learn more about our upcoming events and how you can get involved.
Board of Directors Welcomes New Members
The TAA is proud to welcome Julie Haddon, Susan Courey, Ph.D., and Peter Hollenbeck, Ph.D. to the Board of Directors. Ms. Haddon is the Senior Vice President of Marketing for the National Football League and brings over 20 years of experience building and leading startup and global consumer brands from the early stage to large-scale operations. Dr. Courey is the Department Chair of Early Childhood General and Special Education at the Touro Graduate School of Education in New York City where she works with colleagues and doctoral students on research projects in the areas of mathematics and learning challenges, mathematics and music, teacher preparation, and Universal Design for Learning. Dr. Hollenbeck is the Vice Provost for Faculty Affairs and a Professor of Biological Sciences at Purdue University where he provides strategic direction for a wide array of initiatives and was the former Chair of the Scientific Advisory Board of the Tourette Association of America. Click below to meet all of the TAA Board of Directors.
Faces of the TAA
The Tourette Association of America benefited from enhanced visibility in national and local media outlets thanks to the willingness of our chapter, youth and celebrity ambassadors to educate and share their experiences with Tourette Syndrome publicly. Thanks to Loren Brovarnik from 90 Day Fiance, actor Gardiner Comfort, Olympic gold medalist Anthony Ervin, comedian Chelsea White, and all our ambassadors. Each brought Tourette Syndrome and Tic Disorder awareness to our communities.