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I remember it like it was yesterday, though in fact it was 25 years ago. I was a 5-year-old kid enjoying life and all of a sudden I am having these uncontrollable feelings inside me, forcing me to jump in the air and while doing so twitch my neck into my right shoulder. I remember it being painful and I honestly had no clue what was going on.
The education and training of future mental health providers is essential in improving the identification, diagnosis, and treatment of people with tics and Tourette Disorder. In this program, graduate students in psychology, social work, and mental health counseling are invited to learn about the etiology, presentation, and symptoms of Tourette Disorder, and the associated emotional, behavioral, and learning challenges.
I am a nurse. I also have Tourette Syndrome. During the Coronavirus pandemic it’s been challenging to manage the two. I wish I could say that it was the same as every other day, but the reality is my work and tics are impacted by the coronavirus and my tics impact my work. Whether I’m about home or at work, I have unsettling anxiety about what’s going to happen in the coming days and weeks.
Dr. Matthew Capriotti and Dr. Christine Conelea discussed and demonstrated the key to providing thoughtful, high-quality CBIT treatment to clients via telehealth. In addition, they provided an overview on teletherapy basics, with specific considerations for providing teletherapy in the context of the COVID-19 crisis. They also demonstrated how to implement CBIT effectively over videoconferencing, commenting on specific adaptations and considerations for telehealth.
My name is Olivia Woodrich and I am a Rising Leader for the Tourette Association of America. I consider myself a powerful advocate thanks to the training and tools I have received from the TAA, however nothing could have prepared me for what I’d experience due to the COVID-19 pandemic. With help from the TAA I have been equipped with the tools I need to confidently educate those around me about Tourette Syndrome and Tic Disorders. In my role as Miss Route 66, representing the state of Oklahoma, I have spoken to packed auditoriums and appeared in the news, but I wasn’t prepared for all the stares and angry looks because of my coughing tic.
During these uncertain times, you may notice that Tourette Syndrome and Tic Disorder symptoms may intensify, as well as the co-occurring conditions like ADHD, OCD, Anxiety, Depression and more. Children in particular may have difficulty understanding what is going on, and may have trouble expressing their feelings. Here are resources that can support the community.
At the time of this writing, the CDC recommendation is to cancel or postpone gatherings of 50 or more people for the next eight weeks. The TAA will follow these guidelines and closely monitor updates as they become available. Online and virtual programming will ramp up in the coming days to ensure we remain your best resource during this complicated and confusing time. Please continue to check tourette.org for additional communications and further information. The TAA has closed its physical offices and transitioned to work-from-home through March 27. At that time we will reevaluate best next steps to ensure ongoing mission delivery, the safety of our staff, and the health of the organization. In the meantime, we remain 100% committed to meeting the needs of our community. All managers and staff members of the TAA team are just a phone call or email away. Please visit our staff page to reach staff directly via email with any questions or concerns.