Last weekend we hosted a Treating Tourette Together (TTT) Summit in Minneapolis, Minnesota to discuss the next generation of behavioral therapy for Tourette Syndrome. It was an amazing experience surrounded by the best and brightest in Tourette Syndrome research and care. This event brought together close to 50 individuals with TS, healthcare providers, and researchers who worked collaboratively to develop an agenda for conducting the next generation of research on CBIT. If I had to summarize the experience, I think Ben Brown said it best, “To all Touretters reading this, please know that the Tourette science community truly cares and is shaping the research agenda to the actual needs of the community. Solid, solid people who raised a lot of questions I wasn’t even thinking about, myself. Lucky to have them.”
In addition to the TTT Summit, inquiries about the use of medical marijuana (cannabis) to alleviate the symptoms of Tourette Syndrome have been on the rise. In response to this, the TAA has released a position statement on this topic. To better understand the role of medical marijuana in treating Tourette Syndrome and Tic Disorders, the TAA formed a Cannabis Consortium comprised of leading clinicians and researchers in the field.
While there are many exciting research and medical advancements, we can’t forget it’s back to school season! Meeting new teachers, heading back to the classroom, and the fear of not being understood can be a lot to handle. We’re here to help. We have compiled some of the most useful tools and resources to support children, teens, parents, and educators to ensure a smooth start to the new school year. One of my personal favorites is the ‘Dear Teacher‘ video, a visual guide created for students to prepare a note for teachers about their Tourette Syndrome.
The year is flying by and before we know it the 2020 National Tourette Conference will be here. You can learn more about this event, take the opportunity to submit a proposal to present, and learn the many others happening across the nation by visiting tourette.org/events.
We can’t accomplish our mission without the help of our constituents. By making a donation, getting involved locally, or taking the Tourette Pledge, you can help further Tourette Syndrome awareness and make a difference.