In the past year, we have seen a growing number of calls for individual support and training from medical professionals, educators and the general public. Now, more than ever, we need your help to ensure that every child, every family, and every adult who reaches out to us will obtain the assistance they so desperately need. While we have had a significant impact on local communities across the nation, we are reminded of the importance of the work we do when there is, yet another, misguided reference to Tourette Syndrome in the media.
Recently, a 15-year-old boy with Tourette Syndrome was asked to leave a Starbucks because his uncontrollable behavior was deemed disruptive by a store employee. Sadly, this is a story we in the Tourette Syndrome community know all too well. People with TS have long been misunderstood and mocked.
Underneath the uncontrollable symptoms are children and adults – human beings – with hopes, dreams and feelings. The stigma around the condition has devastating effects on those affected. In addition, many suffer from depression, suicidal tendencies and anxiety as a result of bullying and mistreatment by their peers and the public.
We need to band together, speak out, educate and inspire others to be open-minded and break free of the stigmas that surrounds this disorder. We desire a world where a person is seen for more than their outward differences, but we can’t do it alone. The Tourette Association of America is working to create change so children and adults affected by TS can gain the acceptance and support they need to thrive.
We are grateful to the generous donors who continue to support the Association. Join us on this journey of reaching more people and double your impact today. The Ochsman Foundation has agreed to match dollar-for-dollar up to $100,000 of contributions received by December 31, 2018.
Misconceptions Around CBIT
CBIT, or Comprehensive Behavioral Intervention for Tics, is a behavioral therapy designed to teach skills to reduce tic severity and symptoms. Like Tourette Syndrome, CBIT has its own misconceptions that surround the treatment. In this video, Dr. Michael Himle from the University of Utah explains these common misconceptions, including the idea that the therapy increases tic occurrence and that it also treats co-occurring conditions.
How the TAA Helped Eliana’s Ability Day
Eliana participated in her first annual Ability Day, where she not only talked about Tourette Syndrome to her peers and teachers, but she also gave a demonstration of what she goes through on a daily basis. The Tourette Association of America sent her educational resources to support her day.
Every Voice Matters
The recent elections have brought change to Washington D.C. With Democrats winning the majority in the House, power in Congress will be split. As you read this, House members and their staff are packing and unpacking boxes as they move offices over the next month. Change in Washington is something that happens every two years and brings opportunity. This is an important time for TAA to get to know the new Members and Senators. Every voice matters. Join us in Washington D.C. for Advocacy Day on March 5. We need a large sea of teal on Capitol Hill for Advocacy Day from across the country to reach in order to reach out to as many offices and states as we can.
[News & Events]
- 2018 Tourette Syndrome Symposium: Part 1 Part 2 Afternoon
- Participants needed: Tourette and Tic Disorder Study
- 12/17/18: A Kendra Scott Event in Soho, New York City
- 1/8/19: Free Webinar: Plunging Below the Surface: Understanding and Treating Anxiety and Depression in Tourette and Tic Disorders
- 1/12/19: Center of Excellence Application Deadline
- 1/9/19 – 1/13/19: Walt Disney World® Marathon Weekend Presented by Cigna®
- 1/16/19: January Facebook Live – Bullying: What You Need to Know
- 1/26/19 – 1/27/19: TS-BTI (Behavior Therapy Institute/CBIT Training) in Minneapolis, Minnesota
- 2/7/19: Free Webinar: Bullying Prevention: Everyone Has a Role