Neurobehavioral Problems In Tourette Sydrome: Evaluating a Multimodal Group Treatment for Children and their Parents

Grant Type
Grant Year
Institution Location
Institution Organization Name
Toronto Western Hospital Canada
Investigators Name
Epstein, Trina, Psy.D, C.Psych

Although Tourette Syndrome (TS) is defined by the presence of tics, it is often the associated features of TS that cause the greatest disruption to patients’ and families’ well being. Certain features, including aggression, anger, and noncompliance are a challenge for some parents of children with TS. These oppositional behaviors are not always reduced with medicine and even may not be responsive to all forms of behavior management. Parents in the TS community have expressed enthusiasm about an approach developed by Dr. Ross Greene known as Collaborative Problem Solving (CPS). Despite its popularity, the effectiveness of this approach has never been studied in the TS population. By using a group format the goal of this study is to determine the efficacy of the CPS approach for parents of children with TS and Oppostional Defiant Disorder. This project will involve two phases: (1) intervention development and (2) a study of feasibility and preliminary efficacy. In the initial phase we will conduct a focus group to obtain feedback from parents who have already received some training in this approach. We will use this feedback to develop the group intervention curriculum. The second phase will involve engaging parents in the group intervention and measuring feasibility in terms of attendance, drop out rate and expressed satisfaction. Preliminary efficacy will be determined by getting the parents to complete questionnaires about the frequency and intensity of their child’s oppositional behavior, and their level of parenting stress pre- and post-intervention. This study was selected as a first step to exploring the value of the CPS model for the TS population. Once the feasibility and preliminary efficacy have been established, it is our hope that future endeavors will include collaboration within the broader TS research community. Trina Epstein, Psy.D., C.Psych., Jennifer Saltzman-Benaiah, Ph.D., C.Psych. Toronto Western Hospital, Toronto, Ontario, Canada Award: $34 ,650 Tourette Association of America Inc. – Research Grant Award 2005-2006