The Tourette Association recently held a webinar on managing coprolalia. Coprolalia, the involuntary outburst of obscene words or socially inappropriate and derogatory remarks, can affect 1 in 10 people living with Tourette Syndrome. Those living with coprolalia can find it excruciatingly difficult to get through the day.
This webinar was designed to provide support and feedback for helping children, teens, and young adults living with Tourette Syndrome and coprolalia. Hear stories and advice about managing coprolalia in the community, at school and in college.
Key Takeaways:
- Managing coprolalia in the community involves advocacy for children and self-advocacy for young adults.
- College students can be successful by being self-advocates, finding support and using strategies to manage coprolalia.
- Students in elementary, middle and high school can use accommodations, educate for awareness and use strategies to help them manage coprolalia in school.
About Kate and Kaden Mielitz
Kate and Kaden Mielitz were part of the Raising Tourettes show on A&E in 2018. Since then Kaden has developed Coprolalia and the family has had positives and negatives within the community handling Tourettes and a Coprolalia diagnosis. While not professing to have all the answers, Kate and Kaden are always willing to share what has gone right (and not so right) for them in navigating Kaden’s Coprolalia.
About Apostolos-Christos Lianos and Dr. Kelly Pinter
- Apostolos-Christos Lianos is currently in his senior year of college studying for a major in criminal justice and a minor in communication. He will go on to do a 2 year graduate school program focusing on adult community and professional education to work in the advocacy field to help individuals with disabilities. Moreover, he’d like to teach them how to advocate for themselves. He sees his condition as an opportunity. “You can use this condition to your advantage as a skill you need to learn which is Advocating for yourself,” he added.
- Dr. Pinter is a Senior Lecturer in Criminal Justice and Sociology at Carroll University. She has a PhD in Sociology from Loyola University and an MA in Criminology, Law, and Justice from the University of Illinois at Chicago. Her specializations include race and ethnicity, sex and gender, intersectionality, and victimology. She is also a member of Carroll University’s team for intuitional inclusion and works with colleagues on making Carroll University the most inclusive environment possible for students, faculty, and staff.
