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If you believe the commercials, the holiday season is a bottomless bowl of peace, joy, relaxation, and happiness. Unfortunately, the reality is that for many people the holidays are a source of significant stress, anxiety, worry, and frustration. But this does not have to be the case.
“Words matter.” It’s a phrase we hear and use frequently. It’s also something that can be a particularly tricky mine field for those living with Tourette Syndrome (TS) and, more specifically, coprolalia. In October, we shared with you a story out of Indiana where a young man living with TS was asked to leave his college campus as a result of offensive and unnerving phrases he involuntarily uttered. Unfortunately, this isn’t the only incident that has come across my desk in the last few weeks.
Are you a sibling of someone with Tourette Syndrome? If so, come join us on Thursday, November 19 at 7pm EST for a free forum! This forum, led by Dr. Heather Simpson, is open to siblings ages 11-17 who are looking for additional support and would like to meet others who are having some of the same experiences. Learn more about the Tourette Syndrome diagnosis and why your role as a member of your siblings care team is so important!
2020 has certainly proven to be one of the most unpredictable and challenging years for everyone. While the uncertainty of the pandemic may have made us rethink how we support the community, it did not derail us. In fact, by the close of this year the Tourette Association of America will have tripled our virtual offerings, with almost 100 virtual support initiatives – from a free Virtual Conference, weekly webinars, a Virtual Gala and virtual walks around the country. To continue at this pace, we need your financial support.
We have been hard at work preparing for our Virtual Gala coming up on October 29. I am excited to share that ticket sales are now available and are affordable for the whole community. In addition, our online auction has gone live with a plethora of amazing items – from an autographed Billie Eilish photo, to an exclusive trip to Greece, autographed sports memorabilia and so much more. Join us, spread the word and peruse a number of amazing items, that fit all budgets, just in time for the holiday season. There is a phenomenal lineup of speakers planned for the Virtual Gala that I can confidently say, without giving anything away, you won’t want to miss. The conversations we’ve had gearing up for the event have spanned the gamut from ear-to-ear smiling to tears – in the most touching of ways. The evening will showcase the resiliency, tenacity, and compassion of our community that is breaking down barriers for all to live their most authentic life.