Youtube Archives - Page 2 of 2 - Tourette Association of America

Two individuals, Ellie Jarvie and Andy Tiefenthaler, sit down in Wisconsin to discuss their various experiences and challenges with living with Tourette Syndrome. Andy Tiefenthaler is a young adult with Tourette Syndrome who shares his experience working at the Tourette Syndrome Camp USA. Ellie Jarvie also shares her experiences as a TAA Wisconsin Chapter Chairmember. Ellie Jarvie speaks about her life as she was a young teen into her thirties and her struggles with going in public with her tics. The two also discuss a dance they both attended that was organized by Andy Tiefenthaler in the 9th grade to raise money and awareness for Tourette Syndrome. "Tourette's is just another art form." -Andy Tiefenthaler

June 28, 2018

A Tourette Conversation: Pat O’Leary

https://tourette.org/resource/22154/

Pat O'Leary sits down to discuss his experiences with having Tourette Syndrome. Pat O'Leary speaks about what gets his out of bed in the morning and his passion to be present in influencing the next generation. He also discusses his accomplishments and struggles in dealing with accommodations in the workplace and how to best deal with his co- workers in relation to his tics. He expresses how joining the Tourette Community helped him to not feel alone and shares his experiences at the Annual Conference. "The first time I came to the Annual Conference and saw people ticking out loud and visibly, it made me cry a little bit to know that finally here's a group of people that I'm not going to be the one person with this thing." -Patrick O'Leary

June 28, 2018

A Tourette Conversation: Tanya Sockol and Connor Harrington

https://tourette.org/resource/a-tourette-conversation-tanya-sockol-and-connor-harrington/

A mother and son, Tanya Sockol and Connor Harrington, sit down to talk about the effects of Tourette Syndrome on their lives, including depression and suicidal thoughts. Tanya Sockol is the mother of two children with Tourette Syndrome and the spouse of a husband with Tourette Syndrome. Tanya Sockol speaks of her experiences with her children and husband and how frustrated she is with the lack of knowledge and understanding of the disease. Connor Harrington also speaks about his own experiences and struggles, including trouble in school, depression, and the support of his friends and family. Connor Harrington shares his experiences about his own depression and how he overcame it. The mother and son converse about what Connor would say to the children with Tourette Syndrome that are suffering with depression and suicidal thoughts. "As time went on and I got older, I started to realize that there's so much more to me than Tourette Syndrome." -Connor Harrington

June 27, 2018

A Tourette Conversation: Dr. Doug Woods and Dr. Michael Himle

https://tourette.org/resource/a-tourette-conversation-dr-doug-woods-and-dr-michael-himle/

Two Professors of Psychology, Dr. Doug Woods and Dr. Michael Himle, sit down to discuss their research on Tourette Syndrome. Dr. Doug Woods is a Professor of Psychology at Marquette University. Dr. Doug Woods discusses his over 20 years of research on Tourette Syndrome, focusing on CBIT, and the advancements and initial reactions to his studies. He also recalls his fondest memory at the World Congress in London where individuals from across the world joined together to discuss Tourette Syndrome. Similarly, Dr. Michael Himle, a Professor of Psychology at the University of Utah, offers his experiences through his research of Tourette Syndrome and his memory of a young ambassador's assisting in one of his talks on Tourette Syndrome. "All of these advances that we are finding scientifically will ultimately help us develop new drug and non drug treatments." -Dr. Douglas Woods

June 27, 2018

A Tourette Conversation: Jackie and Scott Nau

https://tourette.org/resource/a-tourette-conversation-jackie-and-scott-nau/

Jackie and Scott Nau sit down to discuss the effects of Tourette Syndrome on their lives as spouses. Jackie Nau has Tourette Syndrome and discusses bullying she suffered because of her Tourette Syndrome. She also highlights how her diagnosis brought her a sense of peace to have a name for her disability and know it is not her fault. Jackie's husband, Scott Nau, discusses the difficulty for those living with Tourette Syndrome as a husband to Jackie and pediatrician, as well as the various different types of motor and vocal tics. "You were the first person I remember as a professional and friend that ever said the words to me "You may have Tourettes but it doesn't define you," and for me that was pivotal because I always felt like it did." -Jackie Nau

June 27, 2018

A Tourette Conversation: Hayley Gripp and Eric McGowan

https://tourette.org/resource/a-tourette-conversation-hayley-gripp-and-eric-mcgowan/

Two young adults, Hayley Gripp and Eric McGowan, sit down to speak about their lives living with Tourette Syndrome. Hayley Gripp discusses her diagnosis experience, co- occurring conditions, CBIT, and how she manages her symptoms by creating a more positive environment through education. Similarly, Eric McGowan discusses how he addresses his symptoms with others through honesty about his diagnosis. The young adults bond over managing their symptoms through doing what they love, music and cooking. "There are days I hate my diagnosis and days where I think I wouldn't trade it for the world." -Hayley Gripp

June 27, 2018

A Tourette Conversation: Hayley Gripp and Janine Tejada

https://tourette.org/resource/a-tourette-conversation-hayley-gripp-and-janine-tejada/

Hayley Gripp and Janine Tejada sit down in Southern California for a conversation on Tourette Syndrome. Hayley Gripp and Janine Tejada speak on their diagnosis reaction and experiences with Tourette Syndrome. Hayley Gripp, who has educated over 200,000 individuals since becoming a youth ambassador for Tourette Syndrome, shares how a negative experience made her realize the importance of advocacy and awareness. Hayley Gripp explains how the introduction of her and Janine Tejada offered hope while Janine accepted a difficult diagnosis for her son. Janine Tejada is the mother of Jonah, who has Tourette Syndrome, and speaks about the importance of education because of the misunderstandings of Tourette Syndrome. "Tourette is one of the most misunderstood neurological conditions." -Janine Tejada

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