I hope this message finds you well. I wanted to reach out directly to let you know that I will be leaving the Tourette Association effective March 7, 2018 to pursue a new opportunity. This was a very difficult decision for me as I have enjoyed working with each of you and most importantly, the families we serve.
Thanks to your time, advice and efforts, the organization has hand many significant accomplishments over the last couple of years. Together we worked to:
– Upgrade our ratings from Silver to Gold and then from Gold to Platinum with GuideStar and from two to three stars with Charity Navigator.
– Develop and implement a robust marketing and fundraising plan that has already seen results, including new six figure partnerships.
-Increase our national media exposure including coverage by the New York Times, USA Today, The Doctors, TODAY Show, Inside Edition, Neuron, JAMA, and many others.
– Significantly upgrade the level of talent across the organization.
– End this fiscal year in a positive financial position.
in terms of our transition plan, I am pleased to announce that the National Board of Directors has promoted Amanda Talty to the positions of Executive Vice President and Interim CEO, effective March 1, 2018. I have had the opportunity to work with Amanda both here at the Tourette Association of America and previously at the American Red Cross, and have the full expectation that she will do an outstanding job. Amanda has played an integral role in all of our strategic initiatives over the past couple of years. She is an accomplished professional who understands the importance of fulfilling our organization’s mission while being able to demonstrate the importance of our impact. Please join me in congratulating Amanda on her new role.
I look forward to staying in touch and hearing about the organization’s future successes!
2018 National Education Conference & Advocacy Day
March 2 – 4, 2018
Now offering CEU credits! 2018 National Conference is just a few weeks away! This is the most comprehensive conference on Tourette Syndrome and Tic Disorders nationally.
Newly Diagnosed Seminar
March 1, 2018
This seminar is for parents of recently diagnosed children and teens and recently diagnosed adults. Led by renowned Tourette specialist, Dr. John Walkup, you will learn everyday coping strategies and behavioral management tools for living with Tourette Syndrome. Click below for more information and to register.
Webinar: Alternative & Complementary Therapies for TS
February 20, 2018 – 4:00pm – 5:30pm EST
Please join us for this informative webinar on alternative and complementary therapies for Tourette Syndrome and how to talk to your doctor about incorporating theses strategies into your current treatment plan. The webinar will be moderated by Dr. Katie Kompoliti, Professor of Neurology at Rush University Medical Center. For more information and to sign up, click below.
The Impacts of Tourette Syndrome Study
How has having Tourette Syndrome or a Tic Disorder affected you or your family? The Tourette Association of America is looking for participants to take a brief survey on the impacts of having Tourette Syndrome or a Tic Disorder. Click below to take the survey.
Susan Young is the Tourette Association’s Executive Administrator. In this role, she handles major administrative tasks on behalf of the President & CEO and other senior team members and coordinates events such as National Board meetings and the National Education Conference.
[News & Events]
- February 28, 2018: Facebook LIVE: Exploring Life With Tourette Syndrome
- May 20, 2018: 2018 National Awareness 5K Run and Walk. Registration for the 5K Run/Walk is now OPEN!! CLICK HERE to register.
- June 25, 2018: Illinois Golf Classic and Ladies’ Game Day