Things are heating up at the Tourette Association of America and it’s not just the July weather! Our summer has been packed with innovative programming for patients, practitioners and families. We continue to travel throughout the US to meet with Chapters, donors and healthcare professionals to advance our mission. Most recently I was in Houston and San Antonio meeting with Chapter leadership, members and our latest group of Youth Ambassador trainees. What an amazing group of people. In particular, I had a touching conversation with one of our newest YA’s, Riyani, and her father Yogi. In an effort to elevate their public awareness efforts, Riyani has recently published a book titled “The Boy Battle”. Our Research and Medical team is working closely with our grant recipients on their initiatives to advance understanding of and treatment for Tourette Syndrome and Tic Disorders. And of course, we continue to build awareness and foster social acceptance through our Chapter network, website and social media platforms.
Working closely with the TAA leadership team and Board of Directors, we have identified new strategic priorities for the Association. These efforts will work to strengthen our operational capacity and infrastructure, increase programmatic impact and mission delivery, invest in our people and foster connections to bolster organizational awareness.
If you haven’t had the opportunity to do so, please take advantage of the many resources, information and support that the Tourette Association has to offer. As you go through this issue of TouretteConnect, I would like to invite you to become part of the process — whether through membership, a donation, or by participating in a special event. Our work to make life better for all people affected by Tourette Syndrome and Tic Disorders is only made possible by the support of the communities we serve. We rely on you to help us in all of our endeavors so please let us know how we are doing. Your feedback is integral to our ability to serve the TS and Tic Disorder Community.
Wishing you and your family a wonderful summer.
Youth Ambassador Raising Tourette Awareness
Katie is a teen from Broomfield, Colorado who is on a mission to raise awareness for Tourette Syndrome. This past weekend she, and 21 others, traveled to San Antonio to be trained as a Tourette Association of America Youth Ambassador and continue her education efforts!
Clinical Research Training Scholarship in Tourette Syndrome
The Tourette Association of America is committed to making a difference in the lives of patients by supporting innovative clinical research and encouraging the next generation of Tourette researchers, which is why we have collaborated with the American Academy of Neurology/American Brain Foundation to support a 2019 Clinical Research Training Scholarship in Tourette Syndrome.
Applying for Standardized Test Accommodations
The process of applying for standardized test accommodations for students with Tourette Syndrome and other disabilities can be complex. With the new school year approaching it is important to begin the process early, as it can be time-consuming and will often involve requests for additional information.
The Importance of Public Policy
Every day there are individual heroes who fight for Tourette awareness, research and support. The Tourette Association of America serves as an important bridge between policy makers and their constituents. When direct services are needed, it is each of you that will make a difference. Ask your local elected officials for support that generates innovative solutions. It only takes one person to make a difference in your community. Get involved and take action today!
[News & Events]
- 7/25: FREE Webinar: Coordinating a Team for Your Child’s Tourette and Associated Disorders
- 10/5 – 10/7: jetBlue Long Beach Marathon & Half Marathon Weekend
- 10/20: TS across a Lifespan: What you need to know
- 11/15: Gala Honoring Domenick A. Cama
- 1/9/19 – 1/13/19: Walt Disney World® Marathon Weekend Presented by Cigna®