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My name is Emily Blattberg. I am 16 years old and I’m in 11th grade. I was diagnosed with Tourette Syndrome in 4th grade, but I’ve probably had tics since I was 5 years old. For the longest time, I struggled to accept my diagnosis because of the misconceptions that I had of what TS was and that led me to be in denial. I was afraid of what others would think of me. I was scared and confused about what my life would become.
At 37 years old, living with Tourette Syndrome has been challenging at times for Rochelle Bono. She was diagnosed in 1990 when she was 8 years old. Her tics included head jerking, blinking, grimaces, sniffling, clicking her tongue, barking like a dog, bird whistles and making crossed eyes. As an adult, she experienced suicidal tendencies, loneliness, low self-confidence, and isolation. She struggled with school and work, leading to homelessness and job loss. Still, she has used her experiences with Tourette Syndrome to help others.
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Happy New Year! Looking back on the last decade, we have made significant strides towards greater understanding, awareness and acceptance of Tourette Syndrome and co-occurring conditions. We continue to extend our footprint across the country with more national events including the Funders Breakfast in New York City, new webinars, increased provider education programming and an expanded Centers of Excellence program. 2020 is also monumental as it marks the return of our biennial National Conference.
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As part of O, The Oprah Magazine’s December 2019 issue featuring women who live with chronic health conditions, Nikki Burdine shared her story and experiences with Tourette Syndrome. "In my case, I’m no longer embarrassed about having Tourette. I just don’t want it to be a distraction from my job or a reason for people to treat me differently. The truth is, everyone is battling something. My struggle is just a little more obvious.” - Nikki
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One of the most common co-occurring conditions is Attention-Deficit/Hyperactivity Disorder (ADHD). This webinar will discuss the diagnostic criteria for ADHD and how the clinical presentation of ADHD presents from the preschool years to adulthood. It will also cover the co-occurrence of ADHD, tics and related comorbid disorder and the treatment options and issues associated with co-occurring ADHD and tics.