Category: Public Policy

Congress has left for August recess, but they landed a budget deal that will allow for deliberations on their spending bills. This includes the $2 million for the CDC Tourette Syndrome Program. To encourage support for this program, the TAA will be providing the State Chapters and Support Groups email drafts that you can send to your local Senator's offices. Get involved, and encourage your friends and family to reach out to their Senators to have them support the CDC Tourette Syndrome Program.
During our recent Youth Ambassador and Rising Leaders training in Orlando, Florida, we discussed the three basic types of advocacy: self, individual or systems advocacy. According to the Merriam-Webster Dictionary, advocacy is defined as “the act or process of supporting a cause or proposal: the act or process of advocating something.” Advocacy is not only lobbying your Members of Congress and Senators, though that is also an important part.
For patients with Tourette Syndrome (TS) and Tic Disorders, it can be difficult to find specialists and many drive hours or travel lengthy distances for physician visits. This is especially true in rural areas.  The ability to conduct medical appointments/evaluations through a computer or electronic platform via telehealth could reduce leave from work and travel costs.
The President recently signed into law the Defense, Labor-HHS-Education Appropriations for Fiscal Year (FY) 2019 which included the continued funding of $2 million for the Centers for Disease Control and Prevention (CDC) Tourette Syndrome Public Health Education and Research Program. This program is critical for the Tourette Syndrome (TS) and Tic Disorder community.