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Category: Public Policy

We have been hard at work preparing for our Virtual Gala coming up on October 29. I am excited to share that ticket sales are now available and are affordable for the whole community. In addition, our online auction has gone live with a plethora of amazing items – from an autographed Billie Eilish photo, to an exclusive trip to Greece, autographed sports memorabilia and so much more. Join us, spread the word and peruse a number of amazing items, that fit all budgets, just in time for the holiday season. There is a phenomenal lineup of speakers planned for the Virtual Gala that I can confidently say, without giving anything away, you won’t want to miss. The conversations we’ve had gearing up for the event have spanned the gamut from ear-to-ear smiling to tears – in the most touching of ways. The evening will showcase the resiliency, tenacity, and compassion of our community that is breaking down barriers for all to live their most authentic life.
Our public policy efforts expand far beyond the steps of Capitol Hill on National Advocacy Day. The TAA evaluates the needs of the TS community across the country and advocates for topics related to education and disabilities, general health care, telehealth, funding of research, access to treatment and care, and prevention of genetic and other forms of medical discrimination. In Fiscal Year 20, the TAA signed on in support of 11 bills that directly support the TS and Tic Disorder community.
Dear Friend, I am excited to share updates on progress being made on behalf of our resilient community. We’ve launched a new donor exclusive series that delves deeper into advancements made as a direct result of your contributions. There has always been a heightened need for access to TS programs and offerings that support underserved areas across the US. In our current state, we have tripled offerings to ensure everyone – underserved or locally supported by a TAA Chapter or Support Group – can have the access that is so desperately needed.
In the last several weeks we've seen a spike in outreach to the TAA encompassing stories related to workplace, housing and corporate discrimination. This is not something our community is unfamiliar with, but the national spotlight on similar topics reminds us that we must equip ourselves with knowledge. It is important to understand your rights and when they are being violated. Later this month is the 30th anniversary of the Americans with Disabilities Act (ADA). This landmark civil rights law extended the right for our community, and many others, to access public places, businesses, and to participate in the same everyday activities as other citizens. In celebration, there is a free webinar on July 29 highlighting workplace accommodations and disability rights which we hope you will attend.
Expanding coverage of telehealth is a public policy priority for TAA. Why? Increased coverage for telehealth would help address the shortage of doctors and providers who specialize in Tourette Syndrome or other Tic Disorders by allowing patients to travel shorter distances and take less time off of work and school for their appointments when a virtual appointment could work. We want to ensure this increased coverage continues after the PHE. Advocacy is always strengthened with personal stories of success, so we want to hear from you! Please send in your success stories of how telehealth coverage during the PHE has benefitted you, or your child, in the care of Tourette Syndrome or other Tic Disorders.
In the last several weeks we've seen a spike in outreach to the TAA encompassing stories related to workplace, housing and corporate discrimination. This is not something our community is unfamiliar with, but the national spotlight on similar topics reminds us that we must equip ourselves with knowledge. It is important to understand your rights and when they are being violated. Later this month is the 30th anniversary of the Americans with Disabilities Act (ADA). This landmark civil rights law extended the right for our community, and many others, to access public places, businesses, and to participate in the same everyday activities as other citizens. In celebration, there is a free webinar on July 29 highlighting workplace accommodations and disability rights which we hope you will attend.
The Americans with Disabilities Act (ADA) was passed by Congress and signed into law by President George Bush, Sr. The ADA is a civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public and private places that are open to the general public. The purpose of the law is to make sure that people with disabilities have the same rights and opportunities as everyone else. This includes Tourette Syndrome, which is a neurodevelopmental disorder that becomes evident in early childhood or adolescence characterized by uncontrollable motor and vocal tics.
Today not only kicks off Tourette Syndrome Awareness Month, it is also the first day of our Virtual Conference 2020. There has never been a more important time to make the TAA your charity of choice. We have all experienced many changes over the last several weeks and now, more than ever, we need to come together to ensure the future of the only national organization dedicated to serving the Tourette Syndrome and Tic Disorder community.
It has been nearly six weeks since we all began actively working to flatten the curve, and the TAA has been doing our part by staying home. These last few weeks have been a test on all of us mentally, physically and emotionally, but it has also taught us a lot about our community. Each of you in the Tourette Syndrome and Tic Disorder community embody strength and resilience every single day, pandemic or not. It has also allowed for some of the most productive, collaborative and creative times to develop new and exciting programs and information.