Living with Tourette & Tic Disorders: A Guide for Patients and Families (Tool Kit)

Tourette Education and Health Program

You or a family member have just received a new diagnosis of Tourette Syndrome or other Tic Disorder. The Tourette Association of America recognizes that it may have been a difficult journey to receive an accurate diagnosis.

This guide is meant to serve as a starting point for you. It will provide you with an overview of Tics, Tourette Syndrome, and other Tic Disorders, addressing several areas of living with
these conditions. Since TS and Tic Disorders may present and impact each person differently, you can use the information in this kit as it pertains to your needs or that of your family

If you would like to learn more about a specific area, we encourage you to visit the Tourette Association website for a comprehensive library of resources or contact TAA by email or phone.

To request a hard copy of this tool kit, please contact the Tourette Association of America at (718) 224-2999.





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Special thanks to several members of the Tourette Association of America Centers of Excellence and staff at the Tourette Association of America for their contributions and expertise to the development of this resource.
Michael B. Himle, PhD
University of Utah
Joseph Jankovic, MD
Baylor College of Medicine
Rebecca K. Lehman, MD
Palmetto Health - USC
Jonathan W. Mink, MD, PhD
University of Rochester
Heather Simpson, MOT, OTR/L
UF Health Center for Movement Disorders and Neurorestoration

Kevin St.P. McNaught, PhD
Executive Vice President, Research and Medical Programs
Kathy Giordano
Tourette Education Specialist
Alexandra Gemma, MPH, CHES
CDC Program Director

This publication was supported by the Grant or Cooperative Agreement Number, 1 NU38DD005375-01-00, funded by the Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessar-ily represent the official views of the Centers for Disease Control and Prevention or the Department of Health and Human Services.