The 19th century was a remarkable period for neurology because it was during this period that many of the brain disorders known today were either discovered, recognized as disease entities or were clearly documented in the medical literature. Many physicians and scientists contributed to this work, but much credit is attributed to Jean-Martin Charcot (1825-1893), a brilliant and prolific French neurologist who is often considered to be the father of modern neurology1. While working at the famous Salpêtrière hospital in Paris, France, Dr. Charcot studied and lectured on nervous system disorders, and attended to patients with a wide range of neurological illnesses1. Dr. Charcot later became director of the Salpêtrière hospital and his strong reputation in neurology attracted many students whom he would train and mentor. These included Sigmund Freud, a famous pioneer in the fields of psychology and psychiatry, and Georges Albert Édouard Brutus Gilles de la Tourette, who would later be credited with describing the symptoms of the neurological disorder that now bears his name. The early years Gilles de la Tourette was born on October 30, 1857, in the small town of Saint-Gervais-les- Trois-Clochers, France2. Little is known about his early life, but he began his medical

A collection of scientific abstracts from the 1st World Congress on Tourette Syndrome held in London UK in 2015. Organized by the Tourette Association of America

‪#‎TouretteConf16 webinar recap was on Thursday March 31st at 8:00pm: • Event highlights from the conference • What to expect from TAA and ‪#‎Tourette Health & Education Program • Following the action on Social Media moving forward ‪#‎Rally4Tourette • a special message from President & CEO John Miller

Here is the afternoon session for the CME Tourette workshop for all allied healthcare professionals working with Tourette and tic disorders, courtesy of the Weill Cornell Medical College and the NY State Consortium Centers of Excellence with the Tourette Association of America. This symposium will offer an overview on tic disorders for community healthcare providers to help them accurately diagnose and manage tic disorders and comorbid conditions across the lifespan. In a highly interactive format, health care providers will receive practical information and tools for their first patient encounter with Tourette and tic disorders.

Watch the Weill Cornell Medical College and the NY State Consortium Centers of Excellence with the Tourette Association of America give a CME Tourette workshop for all allied healthcare professionals working with Tourette and tic disorders. This symposium will offer an overview on tic disorders for community healthcare providers to help them accurately diagnose and manage tic disorders and comorbid conditions across the lifespan. In a highly interactive format, health care providers will receive practical information and tools for their first patient encounter with Tourette and tic disorders.

Watch part two of the Weill Cornell Medical College and the NY State Consortium Centers of Excellence with the Tourette Association of America give a CME Tourette workshop for all allied healthcare professionals working with Tourette and tic disorders. This symposium will offer an overview on tic disorders for community healthcare providers to help them accurately diagnose and manage tic disorders and comorbid conditions across the lifespan. In a highly interactive format, health care providers will receive practical information and tools for their first patient encounter with Tourette and tic disorders.

Pat O’Leary, a software developer for Microsoft, shares five tips for employers to aid employees with Tourette Syndrome in the workplace.

This fact sheet provides the basics about 504 plans and what they offer. It provides an overview about 504 plans; determining students’ eligibility; defining an impairment; and additional resources for further information.

Before working with the student, the aide/paraprofessional should be provided information regarding Tourette Syndrome (TS) and be educated on how specific symptoms of TS and related disorders affect the student. This article provides strategies for developing a trusting and healthy relationship.

Two swimmers, Anthony Ervin and Pedro Cavour, sit down to discuss how they live their lives with Tourette Syndrome. Anthony Ervin explains how he has overcome the challenges of being a swimmer with Tourette Syndrome to go on to win a Gold Medal in Rio and his experiences as an adult with Tourette Syndrome. Pedro Cavour, who witnessed Anthony Ervin win his gold medal, explains how swimming has aided his tics and co- occurring conditions by soothing his anxiety. The two share their different experiences with Tourette Syndrome and how it has effected them both negatively and positively in their swimming.

“Every time I get into the water I feel so much better.” -Pedro Cavour

Two Professors of Psychology, Dr. Doug Woods and Dr. Michael Himle, sit down to discuss their research on Tourette Syndrome. Dr. Doug Woods is a Professor of Psychology at Marquette University. Dr. Doug Woods discusses his over 20 years of research on Tourette Syndrome, focusing on CBIT, and the advancements and initial reactions to his studies. He also recalls his fondest memory at the World Congress in London where individuals from across the world joined together to discuss Tourette Syndrome. Similarly, Dr. Michael Himle, a Professor of Psychology at the University of Utah, offers his experiences through his research of Tourette Syndrome and his memory of a young ambassador’s assisting in one of his talks on Tourette Syndrome.

“All of these advances that we are finding scientifically will ultimately help us develop new drug and non drug treatments.” -Dr. Douglas Woods

Dr. Peter Hollenbeck, a Professor of Biological Sciences at Purdue University, sits down to discuss his experiences having Tourette Syndrome. Dr. Peter Hollenbeck discusses how his symptoms have waxed and waned throughout his life and how it influenced his childhood as his symptoms have reached a low point now. He speaks about childhood bullying and how having Tourette Syndrome has allowed people with Tourette Syndrome to come across genuine friends. Dr. Peter Hollenbeck also discusses his parents’ successful approaches to dealing with his Tourette Syndrome throughout his childhood.

“The best thing they did was not to chase after a cure because there is no cure. It wasn’t to chase after things to try and make me perfect because they couldn’t make me perfect.” -Dr. Peter Hollenbeck

Dr. Shannon Bennett, a Director at the TAA Center of Excellence at Weill Cornell in Manhattan, sits down to discuss her research and experiences in the field of Tourette Syndrome. Dr. Shannon Bennett discusses his introduction to Tourette Syndrome through her work on the co- occurring conditions of Obsessive Compulsive Disorder and anxiety. She explains how she became passionate about her work through meeting members of the Tourette community and shares an experience she had using CBIT with a patient. Dr. Shannon Bennett concludes by speaking of the exciting advancements occurring in neuroscience, genetics, and technology.

“I train other young people, psychiatrists, and psychologists, and I emphasize how rewarding this work is.” -Dr. Shannon Bennett

Two individuals, Ellie Jarvie and Andy Tiefenthaler, sit down in Wisconsin to discuss their various experiences and challenges with living with Tourette Syndrome. Andy Tiefenthaler is a young adult with Tourette Syndrome who shares his experience working at the Tourette Syndrome Camp USA. Ellie Jarvie also shares her experiences as a TAA Wisconsin Chapter Chairmember. Ellie Jarvie speaks about her life as she was a young teen into her thirties and her struggles with going in public with her tics. The two also discuss a dance they both attended that was organized by Andy Tiefenthaler in the 9th grade to raise money and awareness for Tourette Syndrome.

“Tourette’s is just another art form.” -Andy Tiefenthaler

Two young adults, Hayley Gripp and Eric McGowan, sit down to speak about their lives living with Tourette Syndrome. Hayley Gripp discusses her diagnosis experience, co- occurring conditions, CBIT, and how she manages her symptoms by creating a more positive environment through education. Similarly, Eric McGowan discusses how he addresses his symptoms with others through honesty about his diagnosis. The young adults bond over managing their symptoms through doing what they love, music and cooking.

“There are days I hate my diagnosis and days where I think I wouldn’t trade it for the world.” -Hayley Gripp

Hayley Gripp and Janine Tejada sit down in Southern California for a conversation on Tourette Syndrome. Hayley Gripp and Janine Tejada speak on their diagnosis reaction and experiences with Tourette Syndrome. Hayley Gripp, who has educated over 200,000 individuals since becoming a youth ambassador for Tourette Syndrome, shares how a negative experience made her realize the importance of advocacy and awareness. Hayley Gripp explains how the introduction of her and Janine Tejada offered hope while Janine accepted a difficult diagnosis for her son. Janine Tejada is the mother of Jonah, who has Tourette Syndrome, and speaks about the importance of education because of the misunderstandings of Tourette Syndrome.

“Tourette is one of the most misunderstood neurological conditions.” -Janine Tejada

Jackie and Scott Nau sit down to discuss the effects of Tourette Syndrome on their lives as spouses. Jackie Nau has Tourette Syndrome and discusses bullying she suffered because of her Tourette Syndrome. She also highlights how her diagnosis brought her a sense of peace to have a name for her disability and know it is not her fault. Jackie’s husband, Scott Nau, discusses the difficulty for those living with Tourette Syndrome as a husband to Jackie and pediatrician, as well as the various different types of motor and vocal tics.

“You were the first person I remember as a professional and friend that ever said the words to me “You may have Tourettes but it doesn’t define you,” and for me that was pivotal because I always felt like it did.” -Jackie Nau

Pat O’Leary sits down to discuss his experiences with having Tourette Syndrome. Pat O’Leary speaks about what gets his out of bed in the morning and his passion to be present in influencing the next generation. He also discusses his accomplishments and struggles in dealing with accommodations in the workplace and how to best deal with his co- workers in relation to his tics. He expresses how joining the Tourette Community helped him to not feel alone and shares his experiences at the Annual Conference.

“The first time I came to the Annual Conference and saw people ticking out loud and visibly, it made me cry a little bit to know that finally here’s a group of people that I’m not going to be the one person with this thing.”

-Patrick O’Leary

A mother and son, Tanya Sockol and Connor Harrington, sit down to talk about the effects of Tourette Syndrome on their lives, including depression and suicidal thoughts. Tanya Sockol is the mother of two children with Tourette Syndrome and the spouse of a husband with Tourette Syndrome. Tanya Sockol speaks of her experiences with her children and husband and how frustrated she is with the lack of knowledge and understanding of the disease. Connor Harrington also speaks about his own experiences and struggles, including trouble in school, depression, and the support of his friends and family. Connor Harrington shares his experiences about his own depression and how he overcame it. The mother and son converse about what Connor would say to the children with Tourette Syndrome that are suffering with depression and suicidal thoughts.

“As time went on and I got older, I started to realize that there’s so much more to me than Tourette Syndrome.” -Connor Harrington

TAA Education Advisory Board Members Ellen Meyers discusses preparing for college for young adults with Tourette Syndrome. She offers 3 key points to consider: students in college are responsible for their own behavior in college; college students with disabilities need to self advocate; and information sharing with college can be a challenge as students in college are over 18.

This presentation offers insight that was presented at the first world congress on Tourette Syndrome and Tic Disorders. Andrea Ludolph

TS AND THE ADA (Americans With Disabilities Act) an Introduction to Your Rights Lea esta articulo en español   In 1990, the Americans with Disabilities Act—the ADA—was passed by Congress and signed by President George Bush, Sr. This landmark civil rights law extended to all people with disabilities the right to access public places and businesses, and to participate in the same everyday activities as any other citizens. Areas covered by the ADA include work, transportation, leisure, shopping, and public services. According to the Federal Department of Justice, Tourette Syndrome is a disability covered by the ADA. However, some people with TS have had problems asserting their rights under the law, because such legal actions hinge not just on having a diagnosis of a disability, but also on proving that the condition substantially limits one or more major life activities. Some judges have quibbled over what constitutes “major life activities,” using a narrow definition that considers only very basic functions, such as eating, toileting, or walking. However, the Department of Justice has noted that interacting with others and working are also major life activities—and these are certainly areas where many people with TS encounter disability-related barriers. Individual judges can and

A significant percentage of school-aged children with Tourette also have accompanying worry and anxiety. They may worry or feel self-conscious about their peers noticing their tics. They may be concerned about being accepted and fitting in socially. In addition to a diagnosis of Tourette or Tic Disorder, they may also have an Anxiety Disorder diagnosis, such as Social Anxiety, Separation Anxiety or Generalized Anxiety Disorder. Along with monitoring and treatment by medical professionals, teachers and school professionals can offer assistance to the child to help him manage his anxiety over the course of the school day. Helping students to face stressors rather than avoid them altogether, and experience success while taking small, manageable steps, will build their confidence so they can handle stressful situations. Various strategies offered in this article.

Advice from Dr. Shemmassian for students with Tourette syndrome to apply and transition to college.

Ask the Expert article. Julie Hertzog of Pacer answers questions and offers strategies regarding bullying of children and adults with Tourette

People with TS often have other conditions, such as OCD and ADHD. It is important to know about the risks of medications used to treat these conditions and ways to monitor and prevent side effects of these medications.

This article is intended for physicians and other health providers who work with children with TS. Key highlights from the article include:

· Many individuals may be prescribed medications to help manage their symptoms, but these can have side-effects such as weight gain and metabolic dysfunction (conditions related to increased blood pressure, high blood sugar, increased body fat and/or high cholesterol levels that can increase risk of heart disease, stroke, and diabetes). Therefore, it is important that physicians carefully follow patients while they are taking medication.

· Doctors should teach patients about the side effects and how to monitor their physical health, while taking medication. In some instances they may want to provide referrals to a dietician or exercise professional for further guidance and support.

· Parents and caregivers can play a crucial role in helping their child with healthy eating and taking part in regular physical activity that can be used at home and in school.

Ellen Meyers, M.S., M.Ed., Tourette Association Education Committee Member talks about how ADHD impacts a significant number of students with Tourette Syndrome and how it can have a major impact on a child’s academic performance. Strategies are discussed to assist students with this common related disorder in this clip taken from the DVD, “Tourette Syndrome in the Classroom, School and Community,” available through the Tourette Association. Funding for this DVD, “Tourette Syndrome in the Classroom, School and Community” was made possible by the cooperative agreement award number 1U38DD000727-01 from the Centers for Disease Control and Prevention and the presentation was generously supported by the Quantum Foundation, Palm Beach County, FL.

Returning to school after summer break can be difficult for many students. Transitioning back into a classroom after being homeschooled can be a big adjustment. This presentation will explore: Important legal rights to consider Strategies for a successful school year Answers to commonly asked questions Presenter: Kathy Giordano is the Tourette Association of America’s Education Specialist, Chair of the TAA Education Advisory Board, and has previously worked for the PTIC at The Advocacy Center, now Starbridge, in upstate NY. For over twenty years, she has given presentations on Tourette Syndrome and on managing educational and behavioral issues of children with TS and related conditions.

Alternative behavior management strategies for the classroom for children with Tourette Syndrome and neurological disorders.

In this segment (Part Three) of the bullying session filmed at the 2010 national Tourette Association conference, Julie Hertzog (PACER’s Bullying Prevention Project Director) and Sandra Hollis (former Chair of the Tourette Association Education Committee) discuss various bullying prevention strategies, with topics including developing a meditation team, informing and educating the people around your child and the importance of peer intervention.

Ellen Meyers, M.S., M.Ed., Tourette Association Education Committee Member talks about Bullying Prevention and Peer Training for Tourette Syndrome. Video.

How to handle Bullying, definition, helpful tools and resources, questions & answers.

Frequently Asked Questions about Comprehensive Behavioral Intervention for Tics (CBIT).

Behavior issues are one of the biggest challenges facing some students. Positive, proactive supports are essential in successful management but knowing how to identify and choose those supports can be tricky.

This presentation will explore:
* The concept of “behavior”.
* How to determine which supports might be most effective.
* Special attention will be paid towards strategies that can support students with Tourette Syndrome.

How to manage Tics in the classroom, Knowledge and understanding are key elements to creating an accepting and supportive educational environment. When school personnel have information about Tourette Syndrome (TS), students have greater opportunities for success. This resource, while not all-inclusive, provides strategies that will help you develop compassionate and effective supports.

Clinical & Counseling Perspectives Allied clinical and counseling professionals play a significant role in helping people and families affected by Tourette Syndrome (TS.) Families may seek counseling to help them understand and manage the effects of a new diagnosis for their child. Individuals may seek counseling to help with a wide range of issues: dealing with tic symptoms, rejection by peers, school and learning problems, when to tell others about Tourette Syndrome, dating and socializing, treatment approaches and many more concerns. The Tourette Association welcomes the interest of practicing clinicians in social work, psychology, counseling, nursing, rehabilitation counseling, and various other related professional disciplines. On this page, we will feature articles offering a clinical perspective on service and supports for individuals and families with TS and related conditions such as ADHD, OCD and Learning Disabilities. We urge you to share this page with your colleagues. We want to help counseling professionals increase awareness of and skills in working with Tourette Syndrome. In partnership with the CDC, the Tourette Association conducts FREE Medical, and Allied Professional education seminars throughout the U.S. The partnership has produced medical and allied professional education materials in print, CD, DVD, and web video formats, many of

Getting into college can be a challenge for young adults with Tourette Syndrome or disabilities. Dr. Shirag Shemmassian is an expert on college admissions and offers advice and insight for getting into college and transitioning to college life.

IEP meetings can be stressful for many reasons. Below are common questions and resources with information which may be helpful in reducing anxiety.

Speaker: Amanda Coffman, ME.d Topic: Communicating with your child’s school Key Takeaways: • Building relationships with school personnel. • Tics may not always be the biggest barrier at school; focus on what is most interfering. • Focus on normalizing your child’s school experience rather than making your child “normal”.

Comprehensive Behavioral Intervention for Tics With Doctor Woods

Comprehensive Behavioral Intervention for Tics (CBIT) Chinese Download

Comprehensive Behavioral Intervention for Tics (CBIT) is a revolutionary non-medication treatment for Tourette Syndrome.

Comprehensive Behavioral Intervention for Tics (CBIT) French Brochure  

Comprehensive Behavioral Intervention for Tics (CBIT) Korean Download Also Available English | Chinese | Spanish

Intervención Global de Comportamiento para Tics or CBIT brochure (Spanish Language)

Comprehensive Behavioral Intervention for Tics Demonstration by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee; featuring Carlos Guevara, taken from the DVD, “Comprehensive Behavioral Intervention for Tics”.

Toward making life better for all people affected by Tourette Syndrome or Tic Disorders, the Tourette Association of America’s Public Policy office is making specific “asks” of Congressional leaders.

Speaker: Shannon M. Bennet, PhD Topic: Coping with stress and anxiety Key Takeaways: • Stress is part of life. • It is important not to avoid things that make you feel anxious. • Cognitive Behavior Therapy and SSRI medication are the leading evidence-based treatments for anxiety.

Deep brain stimulation (DBS) may improve disabling tics in severely affected medication and behaviorally resistant Tourette syndrome (TS). Here we review all reported cases of TS DBS and provide updated recommendations for selection, assessment, and management of potential TS DBS cases based on the literature and implantation experience. Candidates should have a Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM V) diagnosis of TS with severe motor and vocal tics, which despite exhaustive medical and behavioral treatment trials result in significant impairment. Deep brain stimulation should be offered to patients only by experienced DBS centers after evaluation by a multidisciplinary team. Rigorous preoperative and postoperative outcome measures of tics and associated comorbidities should be used. Tics and comorbid neuropsychiatric conditions should be optimally treated per current expert standards, and tics should be the major cause of disability. Psychogenic tics, embellishment, and malingering should be recognized and addressed.

Learn some tips for informing teacher and classmates about Tourette Syndrome from the perspectives of children, education specialists, and parents.

Deep Brain Stimulation in Tourette Syndrome, taken from the DVD, “Hot Topics in Evaluation, Treatment and Management of Tourette Syndrome and Co-occurring Conditions”; available through the Tourette Association. John Walkup, M.D., Child and Adolescent Psychiatrist @ Johns Hopkins Hospital, TSA/MAB Chairman Samuel Zinner, M.D., Pediatrician @ University of Washington School of Medicine Tanya Murphy, M.D., Ph.D., Child Psychiatrist @ the University of Florida Lawrence Scahill, MSN, Ph.D., Nurse Practitioner of Child Psychiatry Jorge Juncos, M.D., Neurologist @ Emory University School of Medicine Cathy Budman, M.D., Adult Psychiatrist @ North Shore University Hospital LIJ Health System Discuss Deep Brain Stimulation in Tourette Syndrome

Speaker: Barbara J. Coffey, MD, MS Topic: Diagnosis of Tourette Syndrome and Tic Disorders Key Takeaways: • What are Tics, Tourette Syndrome, and Tic Disorders? • Diagnosis of Tourette. • Tourette is often accompanied by other co-occurring disorders that can often be more problematic than the tics themselves.

Kathy Giordano, Education Specialist for the Tourette Association of America, explains the difference between 504 Plan and IEPs for students with Tourette Syndrome, taken from the DVD, “Tourette Syndrome in the Classroom, School and Community.” Individualized Education Programs (IEP’s) and 504 Plans are frequently confused. A 504 Plan is a document that typically details accommodations and modifications a student needs in order to have equal access to an education. An IEP could contain the same provisions as a 504 Plan but additionally details the individualized supports and services to be provided. Both are roadmaps for school personnel detailing the additional supports which allows a student with a disability to receive a free and appropriate public education.  

Scientific Session from 1st World Congress on Tourette Syndrome & Tic Disorders, Do People with Tourette have cognitive deficits? by Beth Hobson, BSc

Sandra Hollis talks about Dysinhibition– The ability to inhibit behaviors, emotions, statements is often extremely difficult for people with TS and can result in difficult social situations., taken from the DVD, “Tourette Syndrome in the Classroom, School and Community”; available through the Tourette Association.

When parents of children with TS or the children themselves are asked about the most difficult part of having TS, the most frequent answer is dealing with peers. Social interactions are potentially very challenging for children with TS. One of the most important things we can do for our children is to educate their peers about the disorder. This is admittedly not easy, but it is one of the most successful ways to reduce social problems.

This presentation offers essential information on Tourette Syndrome and related conditions for school-based staff. This resource will discuss the following: Overview of TS: What is it, what does it look like, and how common is it? TS and co-occurring conditions in the classroom: The impact on learning and possible management strategies. How to promote communication between educators and parents. Through education, teachers can help end stigma and promote acceptance of students with TS in the school setting.

Education of the Patient and Family of Tourette Syndrome, taken from the DVD, “Hot Topics in Evaluation, Treatment and Management of Tourette Syndrome and Co-occurring Conditions”; available through the Tourette Association. John Walkup, M.D., Child and Adolescent Psychiatrist @ Johns Hopkins Hospital, TSA/MAB Chairman Samuel Zinner, M.D., Pediatrician @ University of Washington School of Medicine Lawrence Scahill, MSN, Ph.D., Nurse Practitioner of Child Psychiatry Jorge Juncos, M.D., Neurologist @ Emory University School of Medicine Leon Dure, M.D., Child Neurologist @Children’s Hospital, Birmingham Alabama Barbara Coffey, M.D., @ NYU School of Medicine, NYU Child Study Center Discuss Education of the Patient and Family of Tourette Syndrome

Developing an Education Plan: The purpose of this document is to provide a sampling of suggestions to get you started when developing an education plan for your student. This list is not all-inclusive; some of these suggestions may work for one student but not for others; they may work for a student and suddenly no longer be effective. Because of the complex and often changing nature of symptoms, there is no “one size fits all” program, strategy, or technique that will be successful for all students with TS at all times. Using the suggestions in this document as a guide for developing unique and creative strategies/techniques is the most beneficial approach for the challenges students with TS face on a daily basis.

El síndrome de Tourette y sus efectos sobre el aprendizaje

El síndrome de Tourette y sus efectos sobre el aprendizaje

El síndrome de Tourette y sus efectos sobre el aprendizaje notes

El síndrome de Tourette y sus efectos sobre el aprendizaje PPT

Executive dysfunction in adults with TS can be a challenge. Adults need support and planning.

Speaker: Pamela Malley, MA, CCC-SLP Topic: Executive Functioning Key Takeaways: • Executive function skills are critical for success in school, relationships, and late employment, so it is important to address them early. • A thorough evaluation is necessary to determine what specific areas are impaired and to develop an effective treatment plan. • Consistency and a team approach are critical for successful treatment outcomes.

Abigail Levrini, Ph.D. and Clinical Psychologist discusses executive function deficits in people with Tourette Syndrome. Dr. Levrini offers strategies for Teens with Tourette for managing tasks.

Exercise, Sports and Tourette Syndrome Soccer star Tim Howard, baseball MVP Jim Eisenreich, and NASCAR driver Steve Wallace have something in common. You probably already know that it’s Tourette syndrome. There’s more than a diagnosis connecting these men, however. TS may very well have been a driver in their sporting success, not an impediment to overcome. That’s because a bit of obsessiveness, repetition and high energy are nothing but helpful for the would-be sports champion. Indeed, neurologist Oliver Sacks has suggested that extraordinarily quick reflexes may be a beneficial core feature of TS1—and obviously this would be an advantage for anyone participating in sports. In return for their hard work, sports gave these champs many benefits, including self-discipline, better health, and (important for young people who are often the target of cruel taunts) a way to show up those who teased them for ticcing. Better Health and Fitness So what is known about the potential benefits of exercise programs and participation in sports for people with TS? Only one thing is certain: your mileage may vary. There is no study proving that a particular form of exercise will reduce tics or improve TS-related symptoms for everyone, although there are many

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Presented by Cathy Budman, MD This presentation will explore: • Characteristics of explosive outbursts in TS • Impulse control issues that occur with TS • Special attention will be paid towards treatment strategies

Dr. Calvert F. Cazier talks about the importance of resiliency when living with Tourette Syndrome. Dr. Cazier believes that resiliency can be taught and can be learned — and can help lead to a happier life.

A glossary of terms that parents need to know related to education advocacy.

Kathy Giordano, Education Specialist for TAA discusses understanding Manifestation Determinations and federal protections for students with disabilities. Tourette Syndrome is highly misunderstood, so parents must understand the protections available to their child.

5 things college professors should know and understand about students with Tourette Syndrome. Insight form education and tourette experts.

Functional Behavioral Assessment A Workbook for Conducting a Functional Behavioral Assessment and Writing a Positive Behavior Intervention Plan for a Student with Tourette Syndrome. Includes ADHD, Obsessive Compulsive Disorder, Executive Dysfunction & Sensory Integration Issues The Individuals with Disabilities Education Act (IDEA) requires that a Functional Behavioral Assessment (FBA) be conducted and a (positive) behavior intervention plan (PBIP) be developed whenever the behavior of a student interferes with the ability of that or other students to learn. This assessment is conducted exclusively to provide information which will assist in developing positive and proactive interventions and supports to be implemented by the school district. The ultimate purpose of these interventions is to limit the likelihood of the behaviors re-occurring by providing accommodations, teaching skills and/or strategies that are written into a positive and proactive behavior intervention plan (PBIP). Click here to download the Workbook!

Kathy Giordano, Tourette Association Education Specialist, talks about Functional Behavioral Assessment and Positive Intervention Plans and how critically important for those students whose challenges interfere with their education, taken from the original TAA DVD “Tourette Syndrome in the Classroom, School and Community” which is available free of charge by contacting TAA.

A step-by-step guide for parents who need to ask their school for help with regard to their child with Tourette Syndrome

This step-by-step guide for students with Tourette Syndrome addresses the many questions that you — and your parents — will ask as you go through the process of applying to colleges. From standardized test preparation to creating your own criteria for finding the right school, this detailed brochure has been created by TSA to help college bound students make good choices. Here are 10 steps to success!

These guidelines are provided to assist applicants in the development of competitive proposals involving human subjects.

Dysgraphia, or written language deficits, is a common issue for students with Tourette Syndrome (TS). This interferes with and sometimes prevents them from being able to transfer thoughts into writing.

Students with TS can have numerous difficulties that cause them to be less than successful in a number of different areas of academic achievement. Therefore, it is important to request evaluations for any and all suspected disabilities in order to determine if supports need to be provided by the school.

Colleen Beaudoin, M.Ed. offers advice to parents regarding advocating for your child at school. Three key take aways to help parents be successful

An education specialist gives instructions on organizing a binder for school meetings, including IEP/504 plans, assessments and evaluations, medical records, work samples, communication, discipline issues, and TAA resources.

Jack Kearney and his mother gives tips on how to prepare for a successful school year. The pair shares their negative and positive experiences with Tourette Syndrome in the classroom in order to aid others in preparing for the start of a new school year.

I have Tourette, but Tourette doesn’t have me Teachers Guide

Iceberg Illustration Poster Click here to download! Download this resource in: Chinese French Spanish

This resource provides quotes/information from the US Dept. of Education regarding IEP eligibility for students who are denied due to education evaluations/assessments indicating average or above average intellectual abilities, and/or academic achievement.

Children with Tourette Syndrome often face significant challenges in school due to vocal and motor tics, as well as co-occurring conditions such as ADD, ADHD, OCD, dysgraphia, etc. Effective communication with school administrators and your child’s “team” is essential to helping your child succeed and benefit from appropriate accommodations such as IEPs and 504 plans. Click here to download the presentation slides!

Impulse Control, Aggression and Anger Outbursts in Tourette Syndrome, taken from the DVD, “Hot Topics in Evaluation, Treatment and Management of Tourette Syndrome and CO-occurring Conditions”; available through the Tourette Association. John Walkup, M.D., Child and Adolescent Psychiatrist @ Johns Hopkins Hospital, TSA/MAB Chairman Samuel Zinner, M.D., Pediatrician @ University of Washington School of Medicine Tanya Murphy, M.D., Ph.D., Child Psychiatrist @ the University of Florida Lawrence Scahill, MSN, Ph.D., Nurse Practitioner of Child Psychiatry Jorge Juncos, M.D., Neurologist @ Emory University School of Medicine Cathy Budman, M.D., Adult Psychiatrist @ North Shore University Hospital LIJ Health System Discuss Impulse Control, Aggression and Anger Outbursts in Tourette Syndrome

Customizable Individual Meeting Request Letter   Related Resources: Meeting Confirmation Letter | Post Meeting Thank you and Follow Up Letter

In this clip, Ellen Meyers, M.S., M.Ed., Tourette Association Education Committee member, gives a 28 minute overview of Tourette Syndrome that assists educational professionals with identifying symptoms and creating effective strategies. This clip is taken from the DVD, “Tourette Syndrome in the Classroom, School and Community” which is available through the Tourette Association. Funding for this DVD was made possible by the cooperative agreement award number 1U38DD000727-01 from the Centers for Disease Control and Prevention and the presentation was generously supported by the Quantum Foundation, Palm Beach County, FL.

Job interviews can be stressful for people with Tourette Syndrome. Successful attorney Jim Merklinger offers inspiring advice for people with Tourette Syndrome. Read more about getting and keeping a job.

Speaker: Marge Henning, MS, OTR/L Topic: Latest technology for students with Tourette Key Takeaways: • Tics and associated disorders can interfere visual focus and attention while reading. • Many students with TS struggle with handwriting and notetaking. • TS can impact the ability to organize information, complete worksheets and do math problems.

By federal law, schools must provide an “Appropriate” education in the Least Restrictive Environment

You or a family member have just received a new diagnosis of Tourette Syndrome or other Tic Disorder.
The Tourette Association of America recognizes that it may have been a difficult journey to receive an accurate diagnosis.

This tool kit is meant to serve as a starting point for you. It will provide you with an overview of Tics, Tourette Syndrome, and other Tic Disorders, addressing several areas of living with
these conditions. Since TS and Tic Disorders may present and impact each person differently, you can use the information in this kit as it pertains to your needs or that of your family
member. If you would like to learn more about a specific area, we encourage you to visit the Tourette Association website for a comprehensive library of resources or contact TAA by email or phone.

This tool kit is meant to equip health care providers with the necessary information to recognize TS and Tic Disorders. Guide to treatment and diagnosis.

Una guía de tratamiento para profesionales médicos Posiblemente haya aprendido sobre el síndrome de Tourette (ST) y otros trastornos de tics en su formación profesional. Sin embargo, entre muchos profesionales de atención medica el ST y los trastornos de tics siguen suscitando confusión, lo cual puede conducir a demoras para que las personas afectadas reciban la atención adecuada. Este kit de herramientas tiene el propósito de equipar a los proveedores de atención medica con la información necesaria para reconocer el ST y los trastornos de tics en el marco de la práctica profesional para que puedan ofrecer diagnósticos precisos, hacer derivaciones, recomendar los tratamientos adecuados y orientar a los padres para que vayan a los lugares corrector en busca de recursos y apoyo. Para obtener más información, le recomendamos que visite el sitio web de la Asociación Estadounidense para el Tourette (Tourette Association of America, TAA) donde podrá consultar una biblioteca completa de recursos o que se comunique con la TAA por correo electrónico por teléfono.

Matthew and His Tics is a story that young children can take to school for his teacher or peers to read. Helps elementary school children understand Tourette and what to expect; Helps a child with Tourette be understood by his peers and assimilate.

Medication Managment for Tourette Syndrome, taken from the DVD, “Hot Topics in Evaluation, Treatment and Management of Tourette Syndrome and Co-occurring Conditions”; available through the Tourette Association. John Walkup, M.D., Child and Adolescent Psychiatrist @ Johns Hopkins Hospital, TSA/MAB Chairman Samuel Zinner, M.D., Pediatrician @ University of Washington School of Medicine Lawrence Scahill, MSN, Ph.D., Nurse Practitioner of Child Psychiatry Jorge Juncos, M.D., Neurologist @ Emory University School of Medicine Leon Dure, M.D., Child Neurologist @Children’s Hospital, Birmingham Alabama Barbara Coffey, M.D., @ NYU School of Medicine, NYU Child Study Center Discuss Medication Managment for Tourette Syndrome

Customizable Meeting Confirmation Letter Related Resources: Individual Meeting Request Letter | Post Meeting Thank you and Follow Up Letter

Successful adult Mike Higgins talks about overcoming the odds. Mike Higgins showed signs of Tourette since childhood, but was only diagnosed at age 28 while serving in the military. He is a successful adult, community leader, pastor and has a family. This is an inspiring story of overcoming the odds and a call to educate others about Tourette Syndrome and Tic Disorders.

Request a no-cost presentation about CBIT. Certification is not offered for this presentation.

No-cost programs on diagnosing and treating Tourette Syndrome and tic disorders.

Flyer to request a no-cost presentation in your school or classroom about Tourette Syndrome and Co-occurring conditions.

Obsessive Compulsive Disorder/Behaviors often present differently in people with Tourette Syndrome and can be difficult to manage. Recognizing the symptoms is the first step toward providing strategies for students. Ellen Meyers, M.S., M.Ed., Tourette Association Education Committee Member talks about Tourette Syndrome and Obsessive Compulsive Disorder in this clip taken from the DVD, “Tourette Syndrome in the Classroom, School and Community,” available through the Tourette Association. Funding for this DVD, “Tourette Syndrome in the Classroom, School and Community” was made possible by the cooperative agreement award number 1U38DD000727-01 from the Centers for Disease Control and Prevention and the presentation was generously supported by the Quantum Foundation, Palm Beach County, FL.

Hosted by the Tourette Health and Education Program, occupational therapists Dr. Heather Simpson and Dr. Tana Carson address the many ways occupational therapists can improve living with Tourette Syndrome and Tic Disorders. The objectives of this webinar are to: Understand the role of Occupational Therapy, Describe the role of Occupational Therapy in managing those living with Tourette Syndrome and Tic Disorders, Briefly explore the various strategies that occupational therapists can be effective in treating the complex needs of Tourette and Tic Disorders in order to allow person to live a productive and fulfilling life and Identify ways to locate and advocate for occupational therapy services for all ages and in all settings close to home.

Scientific Session from 1st World Congress on Tourette Syndrome & Tic Disorders, Oliver Sacks Lecture : Emerging Treatments by John Walkup, M.D.

Pediatric Autoimmune, Neuropsychiatric Disorder Assoc with Streptococcus, taken from the DVD, “Hot Topics in Evaluation, Treatment and Management of Tourette Syndrome and Co-occurring Conditions”; available through the Tourette Association. John Walkup, M.D., Child and Adolescent Psychiatrist @ Johns Hopkins Hospital, TSA/MAB Chairman Samuel Zinner, M.D., Pediatrician @ University of Washington School of Medicine Tanya Murphy, M.D., Ph.D., Child Psychiatrist @ the University of Florida Lawrence Scahill, MSN, Ph.D., Nurse Practitioner of Child Psychiatry Jorge Juncos, M.D., Neurologist @ Emory University School of Medicine Cathy Budman, M.D., Adult Psychiatrist @ North Shore University Hospital LIJ Health System Discuss Pediatric Autoimmune, Neuropsychiatric Disorder Assoc with Streptococcus

Scientific Session from 1st World Congress on Tourette Syndrome & Tic Disorders, Personality Traits in patients with Tourette Syndrome by Kirsten Muller Vahl, M.D.

Roundtable discussion on complementary and alternative treatments for Tourette Syndrome, taken from the Tourette Association DVD, “Hot Topics in Evaluation, Treatment and Management of Tourette Syndrome and Co-occurring Conditions”; available from the Tourette Association. The 11 minute segment features: John Walkup, M.D. (Director of the Division of Child and Adolescent Psychiatry, Weill Cornell Medical College and New York-Presbyterian Hospital); Samuel Zinner, M.D. (Pediatrician, University of Washington School of Medicine); Tanya Murphy, M.D., Ph.D. (Director and Professor, Rothman Center for Pediatric Neuropsychiatry, Pediatrics and Psychiatry, University of South Florida); Lawrence Scahill, MSN, Ph.D. (Nurse Practitioner of Child Psychiatry, Yale University); Jorge Juncos, M.D. (Neurologist, Emory University School of Medicine); and Cathy Budman, M.D. (Adult Psychiatrist, North Shore University Hospital LIJ Health System).

Keith A. Coffman, a physician with more than ten years experience with patients with Tourette Syndrome, offers advice on planning for a successful doctor’s visit.

Speaker: Cathy L. Budman, MD Topic: Planning the First Visit with the Doctor Key Takeaways: • Identifying the questions you would like to have answered will help you decide which clinician to see. • Prepare for your visit by writing your top 3-5 questions that you want to have answered. • Ask your clinition about next steps and any recommendations for further assessment or follow-up.

Speech Language Pathologist and TAA Education Advisory Board Member Pamela Malley discusses 3 key points regarding behavior as it relates to children with Tourette: How do we define behavior and what does that imply; the difference between “symptoms” and “behavior;” and positive, proactive supports that are more effective than punishment.

Post Meeting Thank you and Follow Up Letter Related Resources: Individual Meeting Request Letter | Meeting Confirmation Letter

Prevalence of Tourette Syndrome and Tic Disorders, taken from the DVD, “Hot Topics in Evaluation, Treatment and Management of Tourette Syndrome and Co-occurring Conditions”; available through the Tourette Association.

Speaker: Kath Giordano Topic: Proactive Steps for Discipline Key Takeaways: • Positive and proactive plans for discipline work better for children with TS than plans that are negative. • Proactive intervention plans can help students come up with strategies. • Positive and proactive plans can teach the student what to do in the moment. Using these strategies can be helpful in managing TS throughout life.

La digrafía o los déficits en el lenguaje escrito, son un problema común para estudiantes con el síndrome de Tourette (ST). Esto interfiere y a veces les previene el transferir sus pensamientos al escrito.

Proof of Concept Study of an Oral Orthotic in Reducing Tic Severity in Tourette Syndrome The purpose of the proposed study is to assess the utility of an oral orthotic device for reducing tic severity in children. The device, known in dentistry as an “occlusal splint,” is a removable mouth-piece typically used for the orthodontic treatment of Temporomandibular Joint Dysfunction. This randomized, double-blind, placebo controlled trial will enroll participants ages 7-17 years with Tourette syndrome (TS) or Chronic Tic Disorder (CTD). Twenty-four participants will be enrolled; twelve participants will receive an oral orthotic adjusted to the appropriate therapeutic height, and twelve participants will receive an identical placebo device that is not adjusted to the appropriate therapeutic height. When treating temporomandibular joint dysfunction (TMD) in dental patients, improvement in tic severity was observed in those patients with co-occurring TMD and tic disorders. This phenomenon has been reported in the medical literature, and the novel treatment is now being used to treat children and adults with tic disorders (with and without TMD). Though there is an abundance of anecdotal evidence to support the use of the device for TS, no clinical trial has collected any data on the safety and efficacy of

Psychosocial Intervention for Tourette, taken from the DVD, “Hot Topics in Evaluation, Treatment and Management of Tourette Syndrome and Co-occurring Conditions”; available through the Tourette Association. John Walkup, M.D., Child and Adolescent Psychiatrist @ Johns Hopkins Hospital, TSA/MAB Chairman Samuel Zinner, M.D., Pediatrician @ University of Washington School of Medicine Lawrence Scahill, MSN, Ph.D., Nurse Practitioner of Child Psychiatry Jorge Juncos, M.D., Neurologist @ Emory University School of Medicine Leon Dure, M.D., Child Neurologist @Children’s Hospital, Birmingham Alabama Barbara Coffey, M.D., @ NYU School of Medicine, NYU Child Study Center Discuss Psychosocial Intervention for Tourette

Scientific Session from 1st World Congress on Tourette Syndrome & Tic Disorders, Quality of Life in Children & Adults with Tourette Syndrome by Andrea Cavvana, M.D., Ph.d

Receiving a diagnosis of Tourette Syndrome can be a difficult and uncertain time, and families can have many questions about TS, such as how to find the right treatment, and how to tell others about living with TS.

This article is intended for parents of children with TS and anyone who wants to know more about TS. Readers will learn about:
· TS and its characteristics.
· Why it is important and how to educate your child, family and friends, school staff, and others about TS.
· Available behavioral treatments and medicines, and how to find health care professionals who are knowledgeable about treating TS.

Scientific Session from 1st World Congress on Tourette Syndrome & Tic Disorders, Recent insights into the pathophysiology of Tourette by Bradley Schlaggar, M.D., Ph.D

Educators and families should be aware of common challenges that impact school performance among children with TS. Sometimes these challenges are misunderstood or thought of as ‘purposeful behaviors’ that are not related to TS, or other related conditions.

These challenges often become a larger issue in middle and high school than in elementary school. A common, yet highly unrecognized, reason, is that a student’s intellectual abilities can disguise symptoms in elementary school, while in higher grades, symptoms begin to interfere with demonstrating intellectual abilities. Additionally, students often put more energy into suppressing and/or masking symptoms due to social acceptance.

Judy Peterson discusses strategies to reduce the stress and anxiety which can increase symptoms in Tourette Syndrome in this clip from the DVD, “Tourette Syndrome in the Classroom, School and Community” available from the Tourette Association. Funding for this DVD, “Tourette Syndrome in the Classroom, School and Community” was made possible by the cooperative agreement award number 1U38DD000727-01 from the Centers for Disease Control and Prevention and the presentation was generously supported by the Quantum Foundation, Palm Beach County, FL.

Ellen Meyers, M.S., M.Ed., Tourette Association Education Committee Member, highlights many of the common related disorders (learning disabilities, dysgrahia, processing difficulties, social skills deficits, sensory processing issues, , that need to be recognized for a student’s success, taken from the DVD, “Tourette Syndrome in the Classroom, School and Community”; available through the Tourette Association. Funding for this DVD, “Tourette Syndrome in the Classroom, School and Community” was made possible by the cooperative agreement award number 1U38DD000727-01 from the Centers for Disease Control and Prevention and the presentation was generously supported by the Quantum Foundation, Palm Beach County, FL.

Tourette Association of America’s research and medical progress report for 2014-2015, featuring grants, conferences, forums and programs.

Tourette Association of America’s Research Progress Report 2015-2016 featuring research, grants, fellowships and programs.

2016 Research Progress Report

2017 Research Progress Report

2018 Research Progress Report

It may surprise you to learn that you probably have taught a student with Tourette Syndrome (TS), and will likely again. Often teachers and school personnel, as well as physicians and families, miss the symptoms that are associated with TS. Studies estimate that 1 in 160 (0.6%) school-aged children in the United States have TS. Remember, a child with TS is a person first…who happens to have TS. As an education professional, it is important to remain curious regarding how to teach and be supportive of a student with this complex neurodevelopmental disorder. While every student is unique, the following are general suggestions that may help a student who has TS or tics, to attain academic and social success. Recognize that tics are involuntary movements and sounds that wax and wane and can change unpredictably. In many cases, students with TS will attempt to suppress their tics to avoid negative attention from others. While the tics may appear to be within the students’ control and are being done purposefully, they are not. Reduce Stress/Anxiety. Stress typically increases symptoms. Therefore, noting what factors increase stress and implementing appropriate accommodations or special education services will frequently reduce symptoms. Identify the skills deficits

Safety in Medications with Tourette Syndrome, taken from the DVD, “Hot Topics in Evaluation, Treatment and Management of Tourette Syndrome and Co-occurring Conditions”; available through the Tourette Association.taken from the DVD, “Hot Topics in Evaluation, Treatment and Management of Tourette Syndrome and Co-occurring Conditions”; available through the Tourette Association. John Walkup, M.D., Child and Adolescent Psychiatrist @ Johns Hopkins Hospital, TSA/MAB Chairman Samuel Zinner, M.D., Pediatrician @ University of Washington School of Medicine Tanya Murphy, M.D., Ph.D., Child Psychiatrist @ the University of Florida Lawrence Scahill, MSN, Ph.D., Nurse Practitioner of Child Psychiatry Jorge Juncos, M.D., Neurologist @ Emory University School of Medicine Cathy Budman, M.D., Adult Psychiatrist @ North Shore University Hospital LIJ Health System Discuss the Safety in Medications with Tourette Syndrome

The process of applying for Standardized tests accommodations for students with disabilities can be complex. For students with TS, this often involves requests for additional information as well as significant and time-consuming documentation. It is advisable to begin the process as early as possible. For example, if your child is taking Advanced Placement (AP) classes in high school, you will want to speak with your child’s counselor and apply for accommodations as soon as school begins. For SAT tests, it is wise to begin the process during the year before the student will be taking the test.

TAA Education Advisory Board member Ellen Meyers talks about the importance of seeing your child first — and his or her Tourette Syndrome second. Key takeaways for this video are: A child with TS is a child first; the importance of instilling self esteem; and your child’s mental health is more important than his or her grades.

A webinar on Sensory Integration and Tourette Syndrome designed to define sensory Integration and what are Sensory Processing Disorder and behaviors

Many people with Tourette Syndrome (TS) often struggle with social functioning when they have tics and other co-occurring conditions such as ADHD or anxiety. Motor and vocal tics may seem strange and disruptive to someone who is not aware or does not understand the range of TS symptoms. The term “social functioning” relates to how well someone does in social settings and their ability to get along with people and make and keep friends. Children with TS may lack social self-esteem and are often bullied because of a lack of social acceptability, particularly around middle school age.

This article has information to help clinicians and other professionals who work with children with TS. It discusses:

· Developing friendships and adjusting to social settings.
· Enhancing quality of life by addressing the underlying reasons for peers’ perceptions as well as self-perception.
· Establishing an individual’s strengths and weaknesses to determine the appropriate interventions.

Stand Up for Tourette Syndrome Teacher’s Guide for Elementary and Middle School Students

Ellen Meyers, M.S., M.Ed., Tourette Association Education Committee Member talks about standardized testing and the accommodations that typically are necessary for students with Tourette Syndrome in this clip taken from the DVD, “Tourette Syndrome in the Classroom, School and Community,” available through the Tourette Association. Funding for this DVD, “Tourette Syndrome in the Classroom, School and Community” was made possible by the cooperative agreement award number 1U38DD000727-01 from the Centers for Disease Control and Prevention and the presentation was generously supported by the Quantum Foundation, Palm Beach County, FL.

Stimulants for ADHD and Kids with Tics or Tourette Syndrome, taken from the DVD, “Hot Topics in Evaluation, Treatment and Management of Tourette Syndrome and CO-occurring Conditions”; available through the Tourette Association. Syndrome John Walkup, M.D., Child and Adolescent Psychiatrist @ Johns Hopkins Hospital, TSA/MAB Chairman Samuel Zinner, M.D., Pediatrician @ University of Washington School of Medicine Tanya Murphy, M.D., Ph.D., Child Psychiatrist @ the University of Florida Lawrence Scahill, MSN, Ph.D., Nurse Practitioner of Child Psychiatry Jorge Juncos, M.D., Neurologist @ Emory University School of Medicine Cathy Budman, M.D., Adult Psychiatrist @ North Shore University Hospital LIJ Health System Discuss Stimulants for ADHD and Kids with Tics or Tourette Syndrome

Katie McIntyre is a middle school teacher and a mom of a child with Tourette Syndrome. Katie offers advice for teachers regarding Tourette and Tics in the classroom.

Ellen Meyers M.S., M.Ed Tourette Association Education Committee Member, discusses important strategies for teachers and substitute teachers on how to help children with Tourette Syndrome be successful in school, taken from the DVD, “Tourette Syndrome in the Classroom, School and Community,” available through the Tourette Association. Funding for this DVD, “Tourette Syndrome in the Classroom, School and Community” was made possible by the cooperative agreement award number 1U38DD000727-01 from the Centers for Disease Control and Prevention and the presentation was generously supported by the Quantum Foundation, Palm Beach County, FL.

10 tip and techniques the college professors can use to help students with Tourette Syndrome and co-occurring conditions – ADHD, OCD

Ellen Meyers, M.S., M.Ed, member of the Tourette Association Education Committee, talks about the role of the school nurse for students with Tourette, taken from the DVD, “Tourette Syndrome in the Classroom, School and Community” available from the Tourette Association. Ellen advises school nurses how they can help/problem solve when a student with Tourette comes to their office as well as how to help the student release stress and ways to avoid the stress around them. Funding for this DVD, “Tourette Syndrome in the Classroom, School and Community” was made possible by the cooperative agreement award number 1U38DD000727-01 from the Centers for Disease Control and Prevention and the presentation was generously supported by the Quantum Foundation, Palm Beach County, FL.

Ellen Meyers, M.S., M.Ed., Tourette Association Education Committee member, discusses an interactive exercise which has been proven to sensitize individuals to the difficulties students face on a daily basis. A 4 minute clip from the Emmy winning “I Have Tourette’s but Tourette’s Doesn’t Have Me” in which students discuss their experience living with TS symptoms provides first-hand knowledge of how symptoms impact their lives. This clip was taken from the DVD “Tourette Syndrome in the Classroom, School and Community” which is available through the Tourette Association. Funding for this DVD, “Tourette Syndrome in the Classroom, School and Community” was made possible by the cooperative agreement award number 1U38DD000727-01 from the Centers for Disease Control and Prevention and the presentation was generously supported by the Quantum Foundation, Palm Beach County, FL.

CBIT Parenting Webinar by Doug Woods. A full overview Comprehensive Behavior Intervention for Tics (CBIT), its success rate and how it compares to medication therapy.

Strategies for teachers to help children with Tourette manage tics in the classroom. Various tips and strategies are offered in this article.

Below please find the a list of the top 10 resources that may be helpful for educators, medical professionals, and parents of children living with Tourette Syndrome and Tic Disorders. 1. 10 Things Teachers Can Do For Students with Tourette Syndrome 2. Classroom Strategies and Techniques for Students with Tourette Syndrome 3. Identifying Common Education Difficulties with Tourette Syndrome 4. Anxiety Management in the Classroom 5. Disinhibition and Tourette 6. Educator’s Guide for Developing Plans for Students with Tourette Syndrome 7. Educator’s Guide for Developing Plans for Students with Tourette Syndrome 8. Tics in the Classroom: An Educator’s Guide 9. Understanding Behavioral Symptoms in Tourette Syndrome 10. IEP Plans & 504 Accommodations

Judy Peterson talks about the Transitions in Tourette Syndrome, taken from the DVD, “Tourette Syndrome in the Classroom, School and Community”; available through the Tourette Association. Funding for this DVD, “Tourette Syndrome in the Classroom, School and Community” was made possible by the cooperative agreement award number 1U38DD000727-01 from the Centers for Disease Control and Prevention and the presentation was generously supported by the Quantum Foundation, Palm Beach County, FL.

A PSA aired in Times Square, New York City for 24 hours about Tourette Syndrome. Special thanks to TAA Youth Ambassador, Josh, for filming with the TAA and being part of this exciting Tourette Awareness initiative.

In this segment (Part One) of the bullying session filmed at the 2010 national Tourette Association conference, Julie Hertzog (PACER’s Bullying Prevention Project Director) and Sandra Hollis (former Chair of the Tourette Association Education Committee) discuss what bullying is, and the various types of bullying that occur in schools and the community. They also discuss how children with Tourette may be bullied more and how to prevent it through educating teachers and their peers

In this segment (Part Two) of the bullying session filmed at the 2010 national Tourette Association conference, Julie Hertzog (PACER’s Bullying Prevention Project Director) and Sandra Hollis (former Chair of the Tourette Association Education Committee) discuss how to react to bullying situations and how parents should handle the situation, how a child should self-advocate and how to discuss bullying with adults.

Shannon Bennett, Ph.D. for Cornell Weill Medical College provides an overview of co-occurring disorders that are common with Tourette Syndrome. She discusses Pediatric OCD, Anxiety & Depression and ADHD.

Additional resources describing Tourette and IDEA, disabilities rights in education, overview for parents and educations, accommodations backed by federal government

Sandra Hollis talks about engaging and educating community members in order to develop a positive environment for people with Tourette Syndrome and The Community, taken from the DVD, “Tourette Syndrome in the Classroom, School and Community”; available through the Tourette Association. Funding for this DVD, “Tourette Syndrome in the Classroom, School and Community” was made possible by the cooperative agreement award number 1U38DD000727-01 from the Centers for Disease Control and Prevention and the presentation was generously supported by the Quantum Foundation, Palm Beach County, FL.

Tourette Syndrome: Dealing With Anxiety & Stress Stress and anxiety can often make symptoms of Tourette Syndrome worse. Finding and using effective coping strategies to manage your stress and anxiety can be very beneficial to those who are affected by Tourette and its co-occurring conditions such as ADHD and OCD, as well as those who work with someone who has Tourette Syndrome. In his presentation, Dr. Specht will provide an overview of the causes and impact of stress and anxiety on those affected by Tourette and effective management strategies. TAA-CDC Presenter: Matt W. Specht, Ph.D In the Division of Child and Adolescent Psychiatry at Johns Hopkins, Matt W. Specht, Ph.D., focuses on neuropsychiatric disorders, namely Tourette’s disorder and OCD. He began his career at Johns Hopkins in 2006 as a project coordinator and therapist for the Johns Hopkins portion of the NIMH-funded behavior therapy for children with Tourette’s Disorder trial. He currently serves as the Johns Hopkins site principal investigator (since 2010). He is also a co-investigator (since 2010) for the NINDS-funded Tourette Association Genetic Linkage Study. Dr. Specht joined the Johns Hopkins faculty in 2008 as an Instructor and has since been promoted to Assistant Professor (2011).

• Transitioning years of adolescence towards becoming independent (e.g. going to/coming back from college, starting a job after high school, etc.).
• Stress and anxiety experienced by adolescents and families during these transition periods.
• Strategies for parents, family members and individuals to help reduce and alleviate the stress and anxiety.

Educational assessment measures what has been learned in reading, math, spelling and other academic areas documenting how the disability negatively impacts a student.

Tourette Syndrome and its related disorders can manifest as behaviors that often appear to be purposefully disruptive, attention seeking or manipulative. It is therefore not unusual to misinterpret symptoms of the disorder as behavioral problems rather than the neurological symptoms that they are.

Tourette Syndrome (TS) and its related disorders can manifest as behaviors that often appear to be purposefully disruptive, attention seeking or manipulative. Therefore, it is not unusual to misinterpret these neurological symptoms of the disorder as behavioral problems.

This article explains coprolalia pronounced cop-row-lahl-ya)—one of the most baffling and socially unacceptable symptoms of Tourette Syndrome (TS). TS is an inherited disorder which develops in childhood, and affects people of all races and cultures. Symptoms include motor and vocal tics. Vocal tics are the utterance of noises, words and sometimes unacceptable language. Motor tics involve involuntary movements of the body.

Jenna Koning and Becky Richards of the Child and Parent Resources Institute in Canada discuss reactive rage in children with TS. Three key take-aways: the importance for kids with TS to have language to understand what’s going on with them; understanding that frustration builds up – analogous to a beaker getting too full; and strategies to diffuse the frustration that triggers rage.

What is Tourette Syndrome (Chinese brochure)

Spanish language brochure explaining Tourette syndrome, treatment, diagnosis and support. Co-occuring conditions with Tourette.

A downloadable brochure that describes Tourette Syndrome symptoms, diagnosis, treatment and co-occurring conditions. Tics, tic disorders, and Tourette Syndrome
Tics are involuntary, repetitive movements and vocalizations. They are the defining feature of a group of childhood-onset, neurodevelopmental conditions known collectively as Tic Disorders and individually as Tourette Syndrome, Chronic Tic Disorder (Motor or Vocal Type), and Provisional Tic Disorder. The three Tic Disorders are distinguished by the types of tics present (motor, vocal/phonic, or both) and by the length of time that the tics have been present. Individuals with Tourette Syndrome (TS) have had at least two motor tics and at least one vocal/phonic tic in some combination over the course of more than a year. By contrast, individuals with Chronic Tic Disorder have either motor tics or vocal tics that have been present for more than a year, and individuals with Provisional Tic Disorder have tics that have been present for less than a year.

What is Tourette Syndrome (French Brochure)

People with Tourette Syndrome or other disorders may face bullying in the workplace. Strategies, insights and guidance on how to handle these situations.

Funding for this conference was made possible in part by the Centers For Disease Control and Prevention. The views expressed in written conference materials or publications and by speakers and moderators do not necessarily reflect the official policies of the Department of Health and Human Services, nor does the mention of trade names, commercial practices, or organizations imply endorsement by the U.S. Government

Tourette Association of America considers proposals that have the potential to advance a treatment idea to a federally funded randomized controlled trial.

Real-life personal stories from the Tourette Association’s class of 2016 Youth Ambassadors. Kids between the ages of 9 and 18 tell what it’s like to live with Tourette.

Every year, the Tourette Association of America advocates for policies that improve lives for people with Tourette and Tic Disorders. As part of our National Conference, TAA Youth Ambassadors learn how to “Rally4Tourette” before their representatives. It’s a who’s who on Capitol Hill!