Advocacy Archives - Tourette Association of America

From all of us at the Tourette Association of America, we wish you a joyous holiday season and a prosperous new year. 2019 was an impactful year, engaging the community with more training, education, events, and other awareness opportunities around the country. We hope to continue to shift public perception and inspire greater acceptance and inclusion for the TS community. This work is only made possible through your support.

December 16, 2019

TAA Supports Telehealth Medicare Coverage Expansion Legislation

https://tourette.org/taa-supports-telehealth-medicare-coverage-expansion-legislation/

The TAA understands the importance of telehealth services for communities across the country. In an effort to improve access and coverage to telehealth for Medicare recipients, the TAA has endorsed the Connect for Health Act. The bill removes barriers and improves telehealth coverage for Medicare through the Social Security Act.

November 25, 2019

TouretteConnect – November

https://tourette.org/touretteconnect-november2019/

To kick-off the season of giving, we hosted the 2019 annual Gala honoring David Begnaud, Lead National Correspondent for CBS This Morning, on November 18. The event raised more than $850,000 and featured empowering messages from David, TAA Youth Ambassadors Mia Mantei and Jordan Falkenstern, NYC Public Advocate Jumaane D. Williams, and an amazing performance by the Michael Wolff Trio. We all know the best deals are on Black Friday and Cyber Monday, but it's Giving Tuesday that's the most rewarding. For this international day of giving, we are calling on you to join the movement and support the TAA by making a donation, hosting a Facebook fundraiser, or by sharing our important messages throughout the day.

October 18, 2019

TouretteConnect – October

https://tourette.org/touretteconnect-october2019/

It's October, and while many of us are making plans to celebrate Halloween we cannot ignore some important causes the month sheds light upon. October is National Bullying Prevention Month, ADHD Awareness Month and OCD Awareness Week. Tourette Syndrome is an extremely layered and complex disorder and remains so vastly misunderstood among the general public. There is no one-size-fits-all approach, and because of this, the TAA partners with like-minded organizations that support our efforts. I encourage you to reflect on your journey with Tourette Syndrome and if you’ve been impacted by any of the above, please send us your personal story to help us join their efforts in elevating awareness for TS and co-occurring conditions.

August 29, 2019

Free Webinar: Workplace Accommodations and Disability Rights

https://tourette.org/free-webinar-workplace-accommodations-and-disability-rights/

The first webinar, as part of a six-part series designed for adults with Tourette Syndrome, will be focused on understanding your rights in the workplace and will review questions about disclosure and accommodations at every step of the process— from the application process and interview issues that may arise on the job.

July 24, 2019

July TouretteConnect

https://tourette.org/july-touretteconnect/

The July TouretteConnect features the Facebook Fundraising guide, a review of the recent Orlando Youth Ambassador and Rising Leader training, and an update from Amanda.

July 23, 2019

What is Advocacy?

https://tourette.org/what-is-advocacy/

During our recent Youth Ambassador and Rising Leaders training in Orlando, Florida, we discussed the three basic types of advocacy: self, individual or systems advocacy. According to the Merriam-Webster Dictionary, advocacy is defined as “the act or process of supporting a cause or proposal: the act or process of advocating something.” Advocacy is not only lobbying your Members of Congress and Senators, though that is also an important part.

June 25, 2019

Discussing Disclosure July Facebook Live

https://tourette.org/discussing-disclosure-facebook-live/

Join us for a Facebook Live this July during our YA and Rising Leaders training in Orlando, Florida. The speakers include Sarah Reed, Ph.D., and Jake Melton, who will discuss the topic of disclosure in regards to Tourette Syndrome.

May 29, 2019

TAA Educational Resources and Support

https://tourette.org/taa-educational-resources-and-support/

Join us on Tuesday, June 18 for a free webinar where members of the TAA Health Education department share with you all of the resources we have to help navigate life with TS!

May 14, 2019

A Self-Study Option for Social Workers

https://tourette.org/a-self-study-option-for-social-workers/

Ellie Jarvie writes about New Self-Study Options for Social Workers to learn more about Tourette Syndrome.

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