There has been a lot of buzz around the upcoming release of Motherless Brooklyn, in which Edward Norton portrays a detective with Tourette Syndrome. Last week we attended the New York Film Festival screening of the movie and had the pleasure of meeting Ed Norton. He shared stories of people, strangers and friends, who served as inspiration for the role; one he fought hard to bring to life on the big screen. On October 30 Norton will introduce his adaptation of Jonathan Lethem’s novel at a private screening in Los Angeles. Stay tuned for details on how you can join us for this exclusive opportunity!
A few times each year the Tourette Association of America, in collaboration with the Congressional Tourette Syndrome Caucus, hosts Tourette Syndrome and Tic Disorder briefings on Capitol Hill. The importance of these assemblies have proven to be tremendous in showcasing the continued need for funding and support from the government. The most recent briefing was Shining Light on Tourette Syndrome: Medical and Scientific Advances in Tourette Syndrome on October 16. TS Caucus Co-Chair Rep. Steve Cohen joined us alongside policy makers and staff to learn about medical advances in Tourette Syndrome and Tic Disorder research and treatment. Joining me from the TAA was Randi Zemsky, Chairman of the Board of Directors, Diana Shineman, Vice President of Research and Medical, and Diana Felner, Vice President of Public Policy. Leading the discussions were prestigious medical professionals from the community including Joohi Jimenez-Shahed, MD, Matthew Capriotti, PhD, and Nicole Calakos, MD, PhD.
It’s October, and while many of us are making plans to celebrate Halloween we cannot ignore some important causes the month sheds light upon. October is National Bullying Prevention Month, ADHD Awareness Month and OCD Awareness Week. Tourette Syndrome is a layered disorder that remains misunderstood among the general public. There is no one-size-fits-all approach, and because of this, the TAA partners with like-minded organizations that support our efforts.
The TAA Teal & White Gala is only a few, short weeks away! On November 18 we will honor David Begnaud, CBS News Correspondent, for his commitment to Tourette Syndrome awareness. The evening’s keynote will be Jumanne Williams, NYC Public Advocate, and a special musical performance by Michael Wolff, former TAA Board Chair, and his trio at our biggest fundraising event of the year. For tickets and sponsorships click here.
In closing, I sincerely hope that you will take advantage of the many resources, events or support networks we have available across the nation. You are not alone on this journey. We are in it together.