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Tag: Awareness

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Are you interested in helping others find hope and inspiration through your personal experiences? The Tourette Association of America is looking for personal stories from the Tourette Syndrome community to be featured throughout the upcoming annual report. We believe experiences from our community are the most impactful way to improve awareness and understanding, and will reshape what people think about TS.
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During our recent Youth Ambassador and Rising Leaders training in Orlando, Florida, we discussed the three basic types of advocacy: self, individual or systems advocacy. According to the Merriam-Webster Dictionary, advocacy is defined as “the act or process of supporting a cause or proposal: the act or process of advocating something.” Advocacy is not only lobbying your Members of Congress and Senators, though that is also an important part.
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“So as I reach the later stages of my life, the tics are a part of me, and don't seem to be going anywhere. Admittedly, if some sort of practical treatment were to come forth, it is my subdued dream to be tic free and see what it is like to be at peace in my body. The years of tics have created some arthritis as well as other aches and pains in the areas of manifestation, and I do not know the peace that a "normal" person knows.” - Kevin