TAA Sheds Light on TS Medical and Scientific Advances

On October 16, the TAA and the Congressional Tourette Syndrome Caucus held the briefing, Shining Light on Tourette Syndrome: Medical and Scientific Advances in Tourette Syndrome Research and Treatment. This is the third annual fall briefing to outline medical and research advancements. It highlighted the need for continued federal research funding for Tourette Syndrome. At the briefing, Amanda Talty, TAA President, gave an overview of the impact of Tourette Syndrome on individuals and shared results of the TAA Impact Survey. Joohi Jimenez-Shahed, MD, Matthew Capriotti, PhD, and Nicole Calakos, MD, PhD. were the featured speakers. They discussed barriers to treatment, outlined patient engagement for the next generation of CBIT, presented on neurocircuits underlying Tourette Syndrome and enforced the need for Young Investigator funding. Talty, TAA Board Chairman Randi Zemsky, TAA Board Member Cheri David, VP of Medical and Research Programs Diana Shineman and TAA VP of Public Policy Diana Felner all met with staff of senators and congressmen to underscore the research and work that affects 1 out of every 100 school-aged children diagnosed with Tourette Syndrome or a Tic Disorder.
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Facebook Live: Transitions to Adulthood

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TouretteConnect – October

It's October, and while many of us are making plans to celebrate Halloween we cannot ignore some important causes the month sheds light upon. October is National Bullying Prevention Month, ADHD Awareness Month and OCD Awareness Week. Tourette Syndrome is an extremely layered and complex disorder and remains so vastly misunderstood among the general public. There is no one-size-fits-all approach, and because of this, the TAA partners with like-minded organizations that support our efforts. I encourage you to reflect on your journey with Tourette Syndrome and if you’ve been impacted by any of the above, please send us your personal story to help us join their efforts in elevating awareness for TS and co-occurring conditions.
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Layers of Tourette Syndrome

If there’s one thing Tourette’s knows how to do well, is being unpredictable, and everything changes all the time. For me, tics got relatively worse after my teens, and the (um, literal) pain of it is what shocked me enough to do some digging into “what is up with me”. But, I guess I’m pretty used to ticcing by now. It’s something I’ve done since I was 9, as far as I remember, and it can be annoying, and the absolute worse, but also, just fine. What I never saw coming, though, was how wild the *other* side of Tourette’s would get for me. Because it’s not just tics...
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Online Support Groups for Tourette Syndrome

A series of online support groups both for young adults and parents. These support groups are available for people who may be located in an area without easy access to support.
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Improving Research. Improving Lives.

When you invest in research, there is a clear and direct impact on the lives of individuals with TS. Please consider making a gift today that will bring hope, help, and acceptance to the hundreds of thousands of individuals who live with Tourette Syndrome and Tic Disorders across the nation.
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15 Days of School

15 days of school. 4 telephone meetings. Daily behavior report cards and multiple emails. He’s six years old. He hates himself because he “can’t be good”. My fun loving, intelligent, intuitive son has had maybe three full “good” days of school. I believe there are certain parents who have pulled away from us because he is a “bad” kid and they do not want their children influenced. We have had BIP’s, IEP’s, a 1:1 and yet still school sees a different version of the child I see. I’ve been asked questions like, “Has anyone said he has ADHD or mentioned ODD to you?” The answer is no. The answer is I wish I had an answer.
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TouretteConnect – September

The month of September is National Suicide Prevention Awareness Month. I am grateful for the continued public awareness and open discussions about this very serious topic. In a recent Impact Survey led by the TAA, an alarming 51% of adults and 32% of parents of children with TS reported to have considered suicide or participated in self-harming behaviors. In light of this, there are a number of helpful organizations (AFSP, NIMH, NAMI) and resources to support you and your loved ones, including Chapters and Support Groups across the country. Please know that if you need help, there is always someone to call. A Support Group Leader from the TAA Florida Chapter shared a personal story about how suicidal thoughts impacted her family that really hit home for me.
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OCD in Tourette Syndrome – A Primer for Parents and Families

Join the TAA for a FREE webinar where Dr. Erica Greenberg will discuss the basics of obsessive-compulsive disorder, including when and how it typically presents and the current treatments options. She will focus on “early-onset” OCD - OCD that arises in late childhood and/or early adolescence and will discuss in detail “Tourettic OCD” – the type of OCD more frequently seen in children/adolescents with tic disorders. Dr. Greenberg will also discuss how to begin to separate OCD-compulsions from complex tics, and why that differentiation may be informative from a treatment perspective.
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Everybody is Somebody in New Mexico

The Tourette Association of America (TAA) Tourette Syndrome Health and Education Program (THEP) delivers presentations and educations across the nation to the people in the Tourette Syndrome and Tic Disorder community, the general public, physicians, allied professionals, and school personnel. After an intense and unfortunate bullying situation occurred, Albuquerque’s Public Schools sought out an education opportunity to enlighten students and administrators. Representatives from TAA traveled to New Mexico on September 10 and 11 to deliver a powerful educational experience about Tourette Syndrome and Tic Disorders to nearly 1,000 people.
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