The Tourette Association of America (TAA) hosted its Annual Research and Medical Meeting of our Scientific Advisory Board, Medical Advisory Board and Centers of Excellence from April 9 – 10 in New York City. The meeting brought together leading experts in research, clinical care, and treatment for Tourette Syndrome (TS), as well as TAA partners and collaborators from the government and the pharmaceutical industry. Presentations from previously funded TAA scientists were featured and highlighted the progress in understanding the brain circuits underlying Tourette Syndrome and the complex genetics connected to the condition.
Research that was funded by the TAA 10 – 15 years ago has launched international collaborative efforts that have gone on to garner large amounts of follow-on funding from worldwide government agencies in order to identify genes that will lead to a greater understanding of Tourette and Tic disorders and eventually new treatments. In addition, preliminary results from studies exploring the efficacy of a dental device for Tourette and Comprehensive Behavioral Intervention Therapy delivered via telemedicine were also presented and discussed.
Additional topics discussed at the meeting included a presentation and discussion on public health priorities for Tourette Syndrome, improving access to care in rural areas, advocacy and public policy priorities for TS, and an overview of new treatments on the horizon. The group also discussed results from the TAA’s recent Impact Survey, ideas for further dissemination of these findings, and strategies to make the Impact Survey a regular effort moving forward. Finally, the group brainstormed innovative ideas to infuse the programming for the TAA’s 2020 National Conference with new presentations and interactive elements that will better serve our community at large.
Tourette Syndrome is a unique condition that overlaps many different medical and research disciplines. This annual meeting is unique opportunity to bring these experts together to exchange ideas, learn from one another, and collaborate to ultimately improve care for those living with Tourette Syndrome and Tic Disorders.