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Impact Survey

2022 Impact Survey Findings

The Tourette Association of America (TAA) conducted a web-based survey (December 2021 – January 2022), disseminated electronically to the Tourette Syndrome and Tic Disorder community via the TAA website, email, and social media.

The survey was also distributed via email through the TAA’s Centers of Excellence to affected individuals and families. Participants were informed that all data would be collected anonymously and would be used in aggregate by the Tourette Association of America (TAA) to communicate to the public and to policy-makers about the impact that Tourette Syndrome and Tic Disorders have on individuals and families. Participants had to be over 18 to take this survey. For those under 18, a parent or caregiver was required to fill out the survey on the child’s behalf. survey on the child’s behalf.

Responder Profile

  • Adult with TS: 50.34% (601)
  • Adults replying on behalf of a child with TS: 49.66% (593)

Total: 1,194

* Responders who noted that they “do not have TS/Tic Disorder” were routed to the end of the survey bypassing the survey.