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Category: Research & Medical

Happy Tourette Syndrome Awareness Month! It is my favorite time of year, with exciting programs and awareness initiatives for all. What I love most is our community coming together in monumental ways to lift each other up through stories, togetherness, and local communities lit up Teal in the name of Tourette Awareness. We recently shared a powerful video that showcases the realities of the condition as well as the physical and psychological impact. In collaboration with AIST Onlus Associazione Italiana Sindrome di Tourette, we discussed the heightened need for awareness on a global scale and how kindness, compassion and knowledge can go great lengths.
The Centers for Disease Control estimates that 0.3% of children age 6 – 17 years in the United States have received a diagnosis of Tourette syndrome (about 148,000 children), but some reviews put this number as high as 0.9%.  At least half of children with this condition remain undiagnosed, a somber fact given the potential for significant adverse psychosocial impacts from this neurodevelopmental condition. TS is poorly understood amongst both the lay and physician community, leading to both misconceptions and stigmatization of individuals suffering from this treatable disorder.
While the hustle and bustle of the day continues, the work the TAA is doing is for each of you. We are inspired by you. We are always learning from you. We are here for you, giving the support you need. The spring affords ample opportunities to get connected and involved from free or low-cost programs such as Virtual Conference, our Provider Webinar Series, Miles for Tourette and more. Next month will kick-off Tourette Syndrome Awareness Month and you can look forward to fun and engaging ways to join us in raising awareness.
’ve spent a fair amount of time thinking about what I’d like to say to you all this holiday season. To be honest, I’ve struggled to steer clear of being too cliché, too negative, too positive, or too predictable. I’ve struggled with these thoughts because it’s been such an unpredictable time in an uncertain year. When we gathered together in January to plan the year ahead, the TAA team and I could not have imagined a year like 2020. Above anything else, this was a year where our need for one another was highlighted, bold-faced, ENLARGED. We needed to acclimate, pivot, and turn on a dime — that’s something the TAA has done particularly well in the face of COVID-19.