Category: Research & Medical

TouretteConnect – October

It's October, and while many of us are making plans to celebrate Halloween we cannot ignore some important causes the month sheds light upon. October is National Bullying Prevention Month, ADHD Awareness Month and OCD Awareness Week. Tourette Syndrome is an extremely layered and complex disorder and remains so vastly misunderstood among the general public. There is no one-size-fits-all approach, and because of this, the TAA partners with like-minded organizations that support our efforts. I encourage you to reflect on your journey with Tourette Syndrome and if you’ve been impacted by any of the above, please send us your personal story to help us join their efforts in elevating awareness for TS and co-occurring conditions.
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Improving Research. Improving Lives.

When you invest in research, there is a clear and direct impact on the lives of individuals with TS. Please consider making a gift today that will bring hope, help, and acceptance to the hundreds of thousands of individuals who live with Tourette Syndrome and Tic Disorders across the nation.
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TouretteConnect – September

The month of September is National Suicide Prevention Awareness Month. I am grateful for the continued public awareness and open discussions about this very serious topic. In a recent Impact Survey led by the TAA, an alarming 51% of adults and 32% of parents of children with TS reported to have considered suicide or participated in self-harming behaviors. In light of this, there are a number of helpful organizations (AFSP, NIMH, NAMI) and resources to support you and your loved ones, including Chapters and Support Groups across the country. Please know that if you need help, there is always someone to call. A Support Group Leader from the TAA Florida Chapter shared a personal story about how suicidal thoughts impacted her family that really hit home for me.
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Misconceptions about Comprehensive Behavioral Intervention for Tics

Common Misconceptions About CBIT There has been a lot of conversation about behavioral therapies for Tourette Syndrome such as Comprehensive Behavioral Intervention for Tics, or CBIT. As psychologists who have witnessed many of our patients, both children and adults, benefit so greatly from behavioral therapy, we’re excited to hear such a vigorous conversation about this topic. LET’S START WITH THE BASICS, WHAT IS CBIT? CBIT is a 10-week behavior therapy program in which a person works with a trained provider to develop individualized skills they can use to effectively manage their tics. We know from multiple, large-scale, scientifically sound studies that CBIT is effective for teaching tic management skills, which in turn result in a decrease in tics and tic-related challenges for many (but not all) individuals. What we also know to be true about CBIT is, when delivered properly, it does not cause harmful side effects, such as those that can occur with various medication treatment options. Recently, the American Academy of Neurology recommended CBIT as the first line of treatment for people with TS, which is a tremendous step toward making sure that all TS patients will have the same experience no matter where they are treated. CBIT
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AAN Tourette Syndrome and Tic Disorder Guidelines

Tourette Association of America President and CEO Amanda Talty issued the following statement on today’s release of the first-ever treatment guidelines issued by the American Academy of Neurology. TAA has been an ongoing participant in the development of the guidelines; ten of the co-authors are involved closely with TAA.
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Annual Research and Medical Meeting

The Tourette Association of America (TAA) hosted its Annual Research and Medical Meeting of our Scientific Advisory Board, Medical Advisory Board and Centers of Excellence from April 9 - 10 in New York City. The meeting covered the latest news on research and medical practices for Tourette Syndrome and brought leading experts together to share their knowledge.
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Tourette Syndrome Major Focus at 2018 Child Neurology Society Meeting

This year’s Neurobiology of Disease in Children meeting, as part of the larger Child Neurology Society Conference, focused on Tourette Syndrome for the first time in approximately 10 years. The Tourette Association of America supported and presented at this all-day meeting in Chicago, which included a number of Young Investigators interested in learning more about TS.
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TAA Collaborators Announce Findings From Largest Ever DNA Sequencing Study of TS

TOURETTE ASSOCIATION OF AMERICA COLLABORATORS ANNOUNCE FINDINGS FROM LARGEST EVER DNA SEQUENCING STUDY OF TOURETTE SYNDROME Research Collaboration with TIC Genetics and the Tourette Syndrome Genetics Southern and Eastern Europe Initiative The Tourette Association of America (TAA), the premier national non-profit organization serving the Tourette Syndrome (TS) and Tic Disorder community, and its collaborators recently announced findings from the largest DNA sequencing study of Tourette Syndrome (TS). New data has been revealed that suggests a potential role for disruptions in cell polarity in the development of TS. The research study was led by the Tourette International Collaborative (TIC) Genetics and included collaborations with the TAA International Consortium for Genetics (TAAICG), the Tourette Syndrome Genetics Southern and Eastern Europe Initiative (TSGENESEE). Research samples were also received from the Uppsala Tourette Cohort in Sweden. The researchers focused on “de novo” or rare mutations that arise anew at conception, rather than being inherited from parents. They observed that these mutations tend to affect genes with a role in cell “polarity,” which is the process by which cells differentiate “top” and “bottom.” This is particularly important in the brain, where neurons must form with specialized information gathering and transmitting sides to function properly. “These
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American Brain Foundation Partnership

The American Brain Foundation and Tourette Association of America are pleased to support clinical research training in Tourette Syndrome. The AAN Research Program demonstrates the AAN Board of Directors’ dedication to promoting neurology and neuroscience research and training.
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