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Category: Research & Medical

The education and training of future mental health providers is essential in improving the identification, diagnosis, and treatment of people with tics and Tourette Disorder. In this program, graduate students in psychology, social work, and mental health counseling are invited to learn about the etiology, presentation, and symptoms of Tourette Disorder, and the associated emotional, behavioral, and learning challenges.
Dr. Matthew Capriotti and Dr. Christine Conelea discussed and demonstrated the key to providing thoughtful, high-quality CBIT treatment to clients via telehealth. In addition, they provided an overview on teletherapy basics, with specific considerations for providing teletherapy in the context of the COVID-19 crisis. They also demonstrated how to implement CBIT effectively over videoconferencing, commenting on specific adaptations and considerations for telehealth.
At the time of this writing, the CDC recommendation is to cancel or postpone gatherings of 50 or more people for the next eight weeks. The TAA will follow these guidelines and closely monitor updates as they become available. Online and virtual programming will ramp up in the coming days to ensure we remain your best resource during this complicated and confusing time. Please continue to check tourette.org for additional communications and further information. The TAA has closed its physical offices and transitioned to work-from-home through March 27. At that time we will reevaluate best next steps to ensure ongoing mission delivery, the safety of our staff, and the health of the organization. In the meantime, we remain 100% committed to meeting the needs of our community. All managers and staff members of the TAA team are just a phone call or email away. Please visit our staff page to reach staff directly via email with any questions or concerns.
Happy New Year! Looking back on the last decade, we have made significant strides towards greater understanding, awareness and acceptance of Tourette Syndrome and co-occurring conditions. We continue to extend our footprint across the country with more national events including the Funders Breakfast in New York City, new webinars, increased provider education programming and an expanded Centers of Excellence program. 2020 is also monumental as it marks the return of our biennial National Conference.
From all of us at the Tourette Association of America, we wish you a joyous holiday season and a prosperous new year. 2019 was an impactful year, engaging the community with more training, education, events, and other awareness opportunities around the country. We hope to continue to shift public perception and inspire greater acceptance and inclusion for the TS community. This work is only made possible through your support.
To kick-off the season of giving, we hosted the 2019 annual Gala honoring David Begnaud, Lead National Correspondent for CBS This Morning, on November 18. The event raised more than $850,000 and featured empowering messages from David, TAA Youth Ambassadors Mia Mantei and Jordan Falkenstern, NYC Public Advocate Jumaane D. Williams, and an amazing performance by the Michael Wolff Trio. We all know the best deals are on Black Friday and Cyber Monday, but it's Giving Tuesday that's the most rewarding. For this international day of giving, we are calling on you to join the movement and support the TAA by making a donation, hosting a Facebook fundraiser, or by sharing our important messages throughout the day.
It is estimated that 1 MILLION Americans have Tourette Syndrome (TS) or a Tic Disorder. While that number may be staggering, our collective awareness efforts have increased understanding of the disorder, resulting in improved time to diagnosis. In a recent impact study led by the TAA, 71% of caregivers of children with TS reported receiving a diagnosis in less than 2 years, where most adults were diagnosed after 10+ years. HOWEVER, THE NEED FOR PROGRAMS AND SUPPORT RESOURCES CONTINUES TO GROW. Make a year-end gift and it will be doubled, thanks to the Ochsman Foundation.
Developing from a teenager to a young adult can be a challenging and rewarding process, especially for individuals with Tourette Syndrome. Through self-advocacy as well as recognizing and utilizing their strengths, young adults can feel empowered to take control over their life. Dr. Anthony Rostain and Dr. Marc Schmidt recently discussed the process of transitioning from childhood to adulthood.