sept TC

TouretteConnect: A Focus on Remembrance, Research, and Resources

Dear Friend,

Recently our country celebrated a monumental milestone – 20 years since the tragedy, bravery, and heroism of 9/11. It’s hard to believe that so much time has passed, because like many of you, I remember my precise whereabouts, thoughts, and feelings from that day. Each year we pay tribute, as we will truly #neverforget. Throughout the posts on our social feeds, there was a sense of unity and solidarity in our respects for the day, but I also read many remarks about the impact it had on our community. For some, the stress, fear and anxiety caused tics to skyrocket. For others, it was the first indication that what they were experiencing was tics and they needed to consult a doctor. This continued reflection of the last 20 years has underscored how far resources and support have come for us in the TS community. One thing remains, we are all in this together.

To remain at the forefront of necessary discovery and education we continue to need your support and it’s a particularly great time of year to give back to support our Medical and Research programming. The Ochsman Foundation has once again generously agreed to match your gift dollar-for-dollar up to $100,000 if received by December 31, 2021. That means your gift can go twice as far in supporting research, education, awareness and other advancements that break down barriers and improve life for all impacted by TS or a Tic Disorder.

Your involvement is crucial now and in the future. We can’t accomplish our mission without the help of our constituents and we rely on the generosity of people like you. This time of year always brings a rise in communications from the TAA. Please see the outline below of what you can expect within the weeks and months ahead. We are grateful for your involvement – whether attending, supporting, or spreading the word.

  1. Research Update
  2. Gala Communications
  3. National Conference Updates
  4. #GivingTuesday

Gratefully,

ticnightout200

Be You at the Zoo

[Awareness]

The Tic & Tourette Service at Akron Children’s Hospital, a TAA Center of Excellence, recently hosted its fifth annual “T.I.C. Night Out” event where families joined together to celebrate their Tourette Syndrome connection and raise awareness!

This year’s event took place at the Akron Zoo. Families participated in animal encounters, face painting, dancing, and also heard from a TAA Youth Ambassador to learn more about Tourette Syndrome and Tic Disorders.

young investigator

Young Investigator Awards

[Research]

The TAA is proud to support cutting-edge research and career development. To this end, we are offering Young Investigator Awards to early career researchers who choose to invest their efforts and expertise in Tourette research.

These researchers help broaden the biological understanding of Tourette Syndrome, pursue clinical research aimed at improving patient care, and develop and test new therapies. Apply for the Young Investigator Award by submitting a pre-proposal! Pre-proposals are due on December 11.

suicide prevention webinar

Suicide Prevention Awareness Month

[Support]

In a recent Impact Survey led by the TAA, an alarming 51% of adults and 32% of children reported having considered suicide or participated in self-harming behaviors. In light of this, the TAA has partnered with the American Foundation for Suicide Prevention for a free webinar on mental health and suicide prevention on September 28.

Please know that there is always someone to turn to. If you, or someone you know, are having suicidal thoughts, or require immediate support, please call the National Suicide Prevention Lifeline at 1-800-273-8255 or call 911 immediately.

CDC 200

Continuing Resolutions: What You Need to Know

[Public Policy]

The end of the current funding year for the federal government is quickly approaching. Before September 30, Congress will need to pass legislation that funds the U.S. government for the next funding year. It is looking increasingly likely that this will not happen. This is not new and has happened more regularly in recent years.

How does this impact the funding of the CDC Tourette Syndrome Public Health Education and Research program? If the government is funded through a Continuing Resolution for Fiscal Year 2022, the CDC TS program would be funded at the enacted funding level for FY2021 of $2 million dollars. But in the event of a government shutdown, the CDC TS Program is not deemed an essential service and CDC activities of the program would cease during the shutdown. The TAA Public Policy team is continuously working to ensure the continued funding of the CDC Tourette Syndrome Program for FY22 and into the future. You can join our efforts by taking action!