Research & Medical Archives

Dr. Matthew Capriotti and Dr. Christine Conelea discussed and demonstrated the key to providing thoughtful, high-quality CBIT treatment to clients via telehealth. In addition, they provided an overview on teletherapy basics, with specific considerations for providing teletherapy in the context of the COVID-19 crisis. They also demonstrated how to implement CBIT effectively over videoconferencing, commenting on specific adaptations and considerations for telehealth.

March 19, 2020

Understanding Tics During the COVID-19 Outbreak

https://tourette.org/understanding-tics-during-the-covid-19-outbreak/

With increased cases of COVID-19 (Coronavirus), the pandemic has created a unique concern, especially for members of the Tourette community with coughing tics and caregivers on how they can educate someone on the difference between a tic and an illness.

March 17, 2020

March TouretteConnect

https://tourette.org/march-touretteconnect-2020/

At the time of this writing, the CDC recommendation is to cancel or postpone gatherings of 50 or more people for the next eight weeks. The TAA will follow these guidelines and closely monitor updates as they become available. Online and virtual programming will ramp up in the coming days to ensure we remain your best resource during this complicated and confusing time. Please continue to check tourette.org for additional communications and further information. The TAA has closed its physical offices and transitioned to work-from-home through March 27. At that time we will reevaluate best next steps to ensure ongoing mission delivery, the safety of our staff, and the health of the organization. In the meantime, we remain 100% committed to meeting the needs of our community. All managers and staff members of the TAA team are just a phone call or email away. Please visit our staff page to reach staff directly via email with any questions or concerns.

January 21, 2020

TouretteConnect – January 2020

https://tourette.org/touretteconnect-january-2020/

Happy New Year! Looking back on the last decade, we have made significant strides towards greater understanding, awareness and acceptance of Tourette Syndrome and co-occurring conditions. We continue to extend our footprint across the country with more national events including the Funders Breakfast in New York City, new webinars, increased provider education programming and an expanded Centers of Excellence program. 2020 is also monumental as it marks the return of our biennial National Conference.

December 24, 2019

TouretteConnect – December

https://tourette.org/touretteconnect-december/

From all of us at the Tourette Association of America, we wish you a joyous holiday season and a prosperous new year. 2019 was an impactful year, engaging the community with more training, education, events, and other awareness opportunities around the country. We hope to continue to shift public perception and inspire greater acceptance and inclusion for the TS community. This work is only made possible through your support.

November 25, 2019

TouretteConnect – November

https://tourette.org/touretteconnect-november2019/

To kick-off the season of giving, we hosted the 2019 annual Gala honoring David Begnaud, Lead National Correspondent for CBS This Morning, on November 18. The event raised more than $850,000 and featured empowering messages from David, TAA Youth Ambassadors Mia Mantei and Jordan Falkenstern, NYC Public Advocate Jumaane D. Williams, and an amazing performance by the Michael Wolff Trio. We all know the best deals are on Black Friday and Cyber Monday, but it's Giving Tuesday that's the most rewarding. For this international day of giving, we are calling on you to join the movement and support the TAA by making a donation, hosting a Facebook fundraiser, or by sharing our important messages throughout the day.

November 22, 2019

Double Your Impact

https://tourette.org/support/

It is estimated that 1 MILLION Americans have Tourette Syndrome (TS) or a Tic Disorder. While that number may be staggering, our collective awareness efforts have increased understanding of the disorder, resulting in improved time to diagnosis. In a recent impact study led by the TAA, 71% of caregivers of children with TS reported receiving a diagnosis in less than 2 years, where most adults were diagnosed after 10+ years. HOWEVER, THE NEED FOR PROGRAMS AND SUPPORT RESOURCES CONTINUES TO GROW. Make a year-end gift and it will be doubled, thanks to the Ochsman Foundation.

November 12, 2019

Facebook Live: Transitions to Adulthood

https://tourette.org/facebook-live-transition-adulthood/

Developing from a teenager to a young adult can be a challenging and rewarding process, especially for individuals with Tourette Syndrome. Through self-advocacy as well as recognizing and utilizing their strengths, young adults can feel empowered to take control over their life. Dr. Anthony Rostain and Dr. Marc Schmidt recently discussed the process of transitioning from childhood to adulthood.

October 18, 2019

TouretteConnect – October

https://tourette.org/touretteconnect-october2019/

It's October, and while many of us are making plans to celebrate Halloween we cannot ignore some important causes the month sheds light upon. October is National Bullying Prevention Month, ADHD Awareness Month and OCD Awareness Week. Tourette Syndrome is an extremely layered and complex disorder and remains so vastly misunderstood among the general public. There is no one-size-fits-all approach, and because of this, the TAA partners with like-minded organizations that support our efforts. I encourage you to reflect on your journey with Tourette Syndrome and if you’ve been impacted by any of the above, please send us your personal story to help us join their efforts in elevating awareness for TS and co-occurring conditions.

October 4, 2019

Improving Research. Improving Lives.

https://tourette.org/improving-research-improving-lives/

When you invest in research, there is a clear and direct impact on the lives of individuals with TS. Please consider making a gift today that will bring hope, help, and acceptance to the hundreds of thousands of individuals who live with Tourette Syndrome and Tic Disorders across the nation.

Category: Research & Medical

Providing CBIT via Telehealth: Considerations, Tips, and Tricks Webinar