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Throughout the COVID-19 pandemic, doctors and patient associations have noticed a surge in tics in people with Tourette Syndrome and they have also noticed what appears to be a potentially related type of movement disorder among youth that closely resembles a Tic Disorder. The Tourette Association of America (TAA) convened an international, multidisciplinary working group to help understand this functional neurological disorder and its relationship to Tourette Syndrome.

May 19, 2021

What Makes Them Tic? The Facts about Tourette Syndrome

https://tourette.org/what-makes-them-tic-the-facts-about-tourette-syndrome/

The Centers for Disease Control estimates that 0.3% of children age 6 – 17 years in the United States have received a diagnosis of Tourette syndrome (about 148,000 children), but some reviews put this number as high as 0.9%. At least half of children with this condition remain undiagnosed, a somber fact given the potential for significant adverse psychosocial impacts from this neurodevelopmental condition. TS is poorly understood amongst both the lay and physician community, leading to both misconceptions and stigmatization of individuals suffering from this treatable disorder.

December 29, 2020

Provider Education Webinar Series

https://tourette.org/resources/provider-education-webinar-series/

This series of webinars is geared towards medical providers who are interested in learning more about Tourette Syndrome treatment and management strategies. We invite physicians, nurses, nurse practitioners, and psychologists, regardless of Tourette Syndrome experience, to attend these webinars. All webinars will be accredited for CMEs; more information will be provided soon.

January 2, 2020

Provider Webinar Series

https://tourette.org/resources/provider-webinar-series/

In a webinar series geared towards providers to individuals living with Tourette Syndrome, the TAA has identified relevant topics to support the community’s needs.

August 23, 2019

Webinar Series for Adults with Tourette

https://tourette.org/resources/webinar-series-for-adults-with-tourette/

May 6, 2016

Receiving a Diagnosis of Tourette Syndrome

https://tourette.org/resource/receiving-diagnosis-tourette-syndrome/

Receiving a diagnosis of Tourette Syndrome can be a difficult and uncertain time, and families can have many questions about TS, such as how to find the right treatment, and how to tell others about living with TS. This article is intended for parents of children with TS and anyone who wants to know more about TS. Readers will learn about: · TS and its characteristics. · Why it is important and how to educate your child, family and friends, school staff, and others about TS. · Available behavioral treatments and medicines, and how to find health care professionals who are knowledgeable about treating TS.

May 6, 2016

Associated Physical Health Issues with Tourette Syndrome

https://tourette.org/resource/associated-physical-health-issues-tourette-syndrome/

People with TS often have other conditions, such as OCD and ADHD. It is important to know about the risks of medications used to treat these conditions and ways to monitor and prevent side effects of these medications. This article is intended for physicians and other health providers who work with children with TS. Key highlights from the article include: · Many individuals may be prescribed medications to help manage their symptoms, but these can have side-effects such as weight gain and metabolic dysfunction (conditions related to increased blood pressure, high blood sugar, increased body fat and/or high cholesterol levels that can increase risk of heart disease, stroke, and diabetes). Therefore, it is important that physicians carefully follow patients while they are taking medication. · Doctors should teach patients about the side effects and how to monitor their physical health, while taking medication. In some instances they may want to provide referrals to a dietician or exercise professional for further guidance and support. · Parents and caregivers can play a crucial role in helping their child with healthy eating and taking part in regular physical activity that can be used at home and in school.

September 11, 2017

What are some common supports provided by a 504 Plan?

https://tourette.org/common-supports-provided-504-plan/

Ask the Expert: Q. We are having a 504 meeting for my child. What are some common supports provided by a 504 Plan?

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