Wellness and Tourette
Wednesday, August 18, 2021
The trials and tribulations of life can be consuming, and we tend to overlook our own needs. Maintaining your health is of great importance, both physically and mentally. It is particularly important when you are living with a chronic condition such as Tourette Syndrome. Please join Dr. Katie Kompoliti and Ellie Jarvie, LCSW as they discuss methods to maintain your all-around well-being.
- Wellness refers to the ability of an individual to build a physical, psychological, and social wellbeing
- The quest for physical wellness allows the person with tics and Tourette syndrome to mount protective responses and restore equilibrium through exercise, nutrition, and sleep
- Achieving psychological wellness helps control the symptoms of the disease, improves the capacity to cope and face psychological stress
- Social wellbeing allows an individual to build a strong social support network, learn to practice healthy communication, and deal with conflict in a healthy and respectful manner
- Start slowly and build, behavior change takes consistency and time
Dr. Kompoliti is the Educational Director of Movement Disorders, as well as the Director of the Movement Disorders’ Fellowship and the Center of Excellence on Tourette Syndrome and Tic Disorders at Rush University Medical Center. She is an accomplished author, as well as an experienced principal investigator in research focused on several therapeutic areas, including studies to evaluate the safety and efficacy of new compounds to treat Tourette Syndrome, Parkinson’s disease, functional movement disorders and dystonia.
Ellie Jarvie, MSW, LCSW, is an adult with Tourette Syndrome. She has been involved in support and advocacy efforts since her diagnosis in the mid-1980’s. As someone who had very noticeable symptoms from junior high through her early 30’s, she found that educating others about Tourette was a key accommodation for her success in school and in the workplace. Ellie has worked with youth and adults with a variety of disabilities, including extensive experience in community mental health programs. She currently works as an advocacy specialist for Disability Rights Wisconsin.
Past Webinars Available:
Navigating Romantic Relationships
Dr. Kompoliti is the Educational Director of Movement Disorders, as well as the Director of the Movement Disorders’ Fellowship and Center of Excellence on Tourette Syndrome and Tic Disorders at Rush University Medical Center. She is an accomplished author, as well as an experienced principal investigator in research focused on several therapeutic areas, including studies to evaluate the safety and efficacy of new compounds to treat Tourette Syndrome, Parkinson’s disease, functional movement disorders and dystonia.
Eric McGowan has a Bachelor of Science in Acoustics from Columbia College in Chicago and a Master of Arts in Architecture from the University of Kansas. He first became involved with the TAA Southern California Chapter in late 2016 and joined the Board of Directors in March 2018. Eric is passionate about helping those living with TS through advocacy, organization, and attendance of Chapter events, and as the director of Camp George – a sleep-away camp for youth with TS and their families.
Women Living with Tourette Syndrome
Jill was diagnosed at age 48 and later discovered that she was diagnosed as a child, but her family chose to conceal it from her. After going through a slew of emotions, Jill decided to learn as much as she could about her condition and wanted to use this knowledge to help others. For the last six years, Jill has been a co-admin of the largest adult only TS support group on Facebook.
Jackie has suffered from Tourette Syndrome, OCD, and ADHD since age six, but was not properly diagnosed until the age of 22. She now works at the Center for Disabilities and Development at the University of Iowa as a Project Coordinator for the LEND program. Ms. Nau speaks at schools about her with Tourette and comorbid disorders, while also encouraging the inclusion for all persons with disabilities.
Diana has 20 years of experience in government and regulatory affairs. Prior to joining the Tourette Association, she served as Director of Government Affairs for Bunge North America, Inc. and Head, Federal Government Relations for Syngenta. In these roles, Diana served as a Washington representative for these global multi-national corporations.
Olivia was diagnosed with Tourette Syndrome at the age of seven. She is a 2016 Youth Ambassador and 2019 Rising Leader for the Tourette Association of America. As such, she has traveled across the county giving anti-bullying and inclusion presentations on TS to thousands of students, teachers, and school administrators. Olivia is currently a junior at Oral Roberts University in Tulsa, OK, where she is a Political Science/Pre-Law major. She also competes in the Miss America pageant system and has held two titles.