CDC Tourette Syndrome Program

Congress has left for August recess, but they landed a budget deal that will allow for deliberations on their spending bills. This includes the $2 million for the CDC Tourette Syndrome Program. To encourage support for this program, the TAA will be providing the State Chapters and Support Groups email drafts that you can send to your local Senator's offices. Get involved, and encourage your friends and family to reach out to their Senators to have them support the CDC Tourette Syndrome Program.
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Prove What I Can Do

Throughout my Air Force career, there were times where I worried military medical bureaucracy would prevent me from doing the things I wanted to do. I was determined that I would not take no for an answer, and pushed hard to show that I could do the job … I graduated top of my class from Explosive Ordnance Disposal school, and commanded an EOD flight, the military equivalent of a bomb squad.
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Kai’s Story

At first, my family and I thought my symptoms were compulsions, but this was disapproved by doctors. My tics continued until I was 13, and then I came down with Lyme disease. As a result, my tics skyrocketed and I was referred to a movement specialist at Yale Children’s Hospital. There, they diagnosed me with Tourette Syndrome.
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Free Webinar: Building Resilience with Tourette Syndrome

While living with tics and other co-occurring conditions can certainly bring substantial difficulty, coping with a chronic condition like Tourette Syndrome can also build persistence, grit, and determination. In this free webinar, Dr. Kenneth Phelps, Associate Professor of Clinical Psychiatry, will identify key components of adapting and thriving while living with tics.
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California Pizza Kitchen Fundraiser

California Pizza Kitchen and the TAA Southern California Chapter have teamed up to raise funds for Tourette Syndrome! Visit one of select California Pizza Kitchen locations (list TBD) in the Southern California area, mention this promotion, and the restaurant will donate a 20% of the bill directly to the SoCal TAA chapter.
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Facebook Live: Social Relationships

Navigating social relationships can be difficult for anyone, especially with the added challenge of Tourette Syndrome. However, through self-advocacy, patience, a kind refusal to be defined for your TS, and this webinar, a fulfilling social life is certainly within reach.
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Submit Your Story

Are you interested in helping others find hope and inspiration through your personal experiences? The Tourette Association of America is looking for personal stories from the Tourette Syndrome community to be featured throughout the upcoming annual report. We believe experiences from our community are the most impactful way to improve awareness and understanding, and will reshape what people think about TS.
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July TouretteConnect

The July TouretteConnect features the Facebook Fundraising guide, a review of the recent Orlando Youth Ambassador and Rising Leader training, and an update from Amanda.
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What is Advocacy?

During our recent Youth Ambassador and Rising Leaders training in Orlando, Florida, we discussed the three basic types of advocacy: self, individual or systems advocacy. According to the Merriam-Webster Dictionary, advocacy is defined as “the act or process of supporting a cause or proposal: the act or process of advocating something.” Advocacy is not only lobbying your Members of Congress and Senators, though that is also an important part.
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Life with Tourette…

"People notice and they wonder. 'Are you cold?' they ask politely as I shake in my seat. 'No, I just have Torrette’s,' I tell them."
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