I hope you had a wonderful holiday celebrating with family and friends. Holidays mean a break from school, which is a special time for me because of added time with my children. However, I am sure all parents can relate to the stress of juggling responsibilities while keeping our children engaged, happy, and safe. Changes in daily routine can be difficult, so please take advantage of the many resources we offer.
The Tourette Association of America hosted its annual Research and Medical Meeting, including members of our Scientific Advisory Board, Medical Advisory Board and Centers of Excellence, on April 9 -10 in New York City. The meeting brought together leading experts in research, clinical care, and treatments for TS, as well as TAA partners and collaborators from the government and pharmaceutical industry. The two-day event featured presentations and updates on TS initiatives from previously funded TAA scientists, international collaborative efforts, treatment and care options, and telehealth for the TS community. We are thankful to the researchers, medical professionals and other thought leaders who are dedicated to working in the TS field.
As we near Tourette Syndrome Awareness Month (May 15 – June 15), I invite you to learn about our many initiatives that will continue to raise awareness and understanding. The goal of this year’s Awareness Month activities focuses on the strengths of the TS community. We have seen careless remarks being made by the media, misrepresenting and perpetuating stigma. We want to remind people that we are mothers, fathers, children, educators, award-winning journalists, Olympic Gold medalists and professional athletes, actors, rising pop musicians, authors and so much more. In the coming weeks, we will be launching a Tourette Syndrome Pledge that I hope you will sign and inspire others to do the same.
There are a number of national initiatives that I hope you find exciting and encourage you to participate in:
- Driving and Tourette Syndrome: FREE webinar on May 7
- Youth Ambassador Training Program: July 12 – 13 ages 12 – 17
- NEW Youth Ambassador Rising Leaders Program: July 12 – 13 ages 18 – 25
- Behavior Therapy Trainings in Birmingham, Alabama: May 3 – 4 and Orlando, Florida: June 14- 15