Author: Jennifer Khedaroo

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october tc 2021
October is a mega-month for our community and for the Tourette Association of America. Together we celebrate National Bullying Prevention Month, ADHD Awareness Month and OCD Awareness Week. I say celebrate because it is a wonderful thing that we can reflect on past struggles that have effected real and lasting change. For those of us who have endured any and all of those conditions, we also know the burden and weight they can bring. It is why we keep shining light on the important efforts of the TAA and our community partners so that everyone can feel supported and understood.
sept TC
Recently our country celebrated a monumental milestone – 20 years since the tragedy, bravery, and heroism of 9/11. It’s hard to believe that so much time has passed, because like many of you, I remember my precise whereabouts, thoughts, and feelings from that day. Each year we pay tribute, as we will truly #neverforget. Throughout the posts on our social feeds, there was a sense of unity and solidarity in our respects for the day, but I also read many remarks about the impact it had on our community. For some, the stress, fear and anxiety caused tics to skyrocket. For others, it was the first indication that what they were experiencing was tics and they needed to consult a doctor. This continued reflection of the last 20 years has underscored how far resources and support have come for us in the TS community. One thing remains, we are all in this together.
dc
As many of you now, the end of the federal government is quickly approaching on September 30. One of the many to do items facing Congress in September is the need to pass legislation that funds the U.S. government by this deadline. It is looking increasingly likely that this will not happen. This is not new and has happened more regularly in recent years. What does this mean?
aarav How I cope with my tics in my daily life as a teen
I check the clock. It’s 11:13pm. Almost 30 minutes after I switched the lights off and decided to go to bed. But my tics have kept me up all this while— head shaking and quick grunts telling me not to relax and sleep. But I fight that urge, taking deep breaths repeatedly until my consciousness takes over and puts me to sleep. It’s been difficult having Tourette Syndrome as a teen, but I’ve found ways to make it much more manageable.
sabchair
The Tourette Association of America (TAA) is thrilled to announce Dr. John Piacentini as the new co-chair of the Scientific Advisory Board (SAB). Dr. Piacentini is currently director of the TAA Center of Excellence UCLA Child OCD Anxiety and Tic Disorders Program (Psychiatry). As a well-respected doctor with his robust involvement in neurodiverse conditions, Dr. Piacentini is a valued leader who will be joining Dr. Aryn Gittis as SAB co-chair.
bts resources
For those who started back at school with a child or teen with TS, and those who will be going back soon, the Tourette Association of America (TAA) has a wide range of resources to help you navigate educating school personnel, educate other students and peers, prepare for 504 and IEP meetings, and suggested accommodations for your child at school. Please join us to learn about our resources and how you can use these resources throughout the school year.