Jennifer Khedaroo, Author at Tourette Association of America

The Centers for Disease Control estimates that 0.3% of children age 6 – 17 years in the United States have received a diagnosis of Tourette syndrome (about 148,000 children), but some reviews put this number as high as 0.9%. At least half of children with this condition remain undiagnosed, a somber fact given the potential for significant adverse psychosocial impacts from this neurodevelopmental condition. TS is poorly understood amongst both the lay and physician community, leading to both misconceptions and stigmatization of individuals suffering from this treatable disorder.

May 19, 2021

The Gift I Got: An Interview with the Jarvie Sisters

https://tourette.org/the-gift-i-got-an-interview-with-the-jarvie-sisters/

A Tourette conversation between Ellie Jarvie, an advocacy specialist with Disability Rights Wisconsin in Madison, WI who has TS, and her younger sister Michelle Jarvie Eggart, Sr Lecturer in engineering at MI Tech University.

May 19, 2021

Scouts Honor: A Gift that Keeps Giving

https://tourette.org/scouts-honor-a-gift-that-keeps-giving/

Teen resident, and senior at Kellenberg Memorial High School, Giovanni Kubanick recently received his Eagle Scout status and commendation. He now joins a league of gentlemen and, more recently, ladies who’ve climbed to the zenith of Scout mastery. The ranks include presidents, astronauts, composers, billionaires, movie moguls, and others. Rising to the challenge in itself is astonishing, but Giovanni had to double down on hard work and dedication. Why? Because he not only had to accomplish the extraordinary but do it while tackling the daily trials of living with Tourette Syndrome (TS).

April 27, 2021

Homeschooling: A Flexible, Fluid, Child-Focused Education

https://tourette.org/homeschool/

Are you thinking about starting to homeschool? Are you generally interested in learning more about homeschooling? Join the Tourette Association of America and Gina Schlicksup, founder of Parent Empowerment Groups, on Thursday, June 17 at 7pm EST as she provides information on the topic.

April 19, 2021

TouretteConnect: Conference, Community, and Connections

https://tourette.org/april-tc/

While the hustle and bustle of the day continues, the work the TAA is doing is for each of you. We are inspired by you. We are always learning from you. We are here for you, giving the support you need. The spring affords ample opportunities to get connected and involved from free or low-cost programs such as Virtual Conference, our Provider Webinar Series, Miles for Tourette and more. Next month will kick-off Tourette Syndrome Awareness Month and you can look forward to fun and engaging ways to join us in raising awareness.

April 16, 2021

Expanding Telehealth Coverage after the Pandemic

https://tourette.org/expanding-telehealth-coverage-after-the-pandemic/

While telehealth has been a public policy priority of the TAA for several years, during the COVID-19 pandemic we have seen a drastic increase in the utilization of telehealth across the nation, proving its value. The TAA is working with other patient groups and coalitions to help promote the continued and expanded reimbursement of telehealth services beyond the pandemic.

April 6, 2021

Recognizing Re-Entry Anxiety in a Post-Pandemic World

https://tourette.org/recognizing-re-entry-anxiety-in-a-post-pandemic-world/

The idea of re-entering society during a post-pandemic world might be stressful to some, particularly for those living with Tourette Syndrome and Tic Disorders.

March 23, 2021

Jerry Gidner Joins the TAA Board of Directors

https://tourette.org/jerry-gidner-joins-the-taa-board-of-directors/

The Tourette Association of America (TAA), the only national nonprofit organization serving the Tourette Syndrome (TS) and Tic Disorder community, is pleased to announce that Jerry Gidner, has joined its Board of Directors.

March 22, 2021

TouretteConnect: Working Together, Living Better

https://tourette.org/touretteconnect-working-together-living-better/

What a year. It’s hard to believe that so much time has passed, but I am proud to say that we‘ve united in exceptional ways to charge forward. The Tourette Association of America made it our mission to develop quality support efforts and we were excited to see the highest levels of participation from the TS community ever.

March 19, 2021

Back to School Time: Post-Quarantine Edition

https://tourette.org/back-to-school-time-post-quarantine-edition/

Across much of the United States, back-to-school time has come in the Spring instead of the Fall. Whether your children have been entirely at home or doing some form of hybrid education, many students are heading back to school full time. Transitions can be difficult for those with Tourette Syndrome, and this transition, in particular, presents some additional challenges.

For Myself

For Someone I Know

Through My Profession